posted
I had 2 doctor appts this week. My Integrative medicine specialist went over my test results and I have mild SIBO, moderate microscopic yeast and dysbiosis. I have also developed Tinea Versicolor on my back.
He is beginning treatment for this as well as starting another adrenal and immune support supplement regimen.
Today I saw my neurologist and after reviewing all my neuro symptoms and exam (my uvula deviates to the right, gaze provoked nystagmus etc etc) he said (which he has suspected all along) that I now have Multisystem Atrophy C (cerebellar type which has the gait speech, swallowing and automatic nervous system problems).
Has anyone else been diagnosed with this as well as Lyme? I tested positive by Igenex. We are scared to death as MSA is progressive with mortality within 6-9 years from diagnosis.
My Integrative medicine doctor feels like the Lyme attacked my immune system, is still causing chronic inflammatory issues, resulting in central and autonomic nervous system damage.
ANY input is greatly appreciated!!
Posts: 86 | From LA | Registered: Jul 2016
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posted
yeah, its just another BS diagnosis they come up with because they dont want to admit they are terrible at treating lyme.
you dont have mult this or that, you have neuro-lyme (ie - neuroborreliosis) like a lot of poeple. find a doc who follows the burrascano treatment guidelines
and/or get a rife machine and use the DNA frequencies. dont spend money on docs who are incompetent.
Posts: 90 | From Wisconsin | Registered: Mar 2016
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
Get the best lyme disease specialist you can possibly afford. That is a doc whose entire practice is lyme disease. Be willing to travel to get a good one.
As you can read in the Burrascano Guidelines, lyme compromises the immune system. This is significant once you have had lyme at least one year.
Lyme causes lots of inflammation, which is the cause of most lyme symptoms.
Lyme is essentially a disease of the nervous system.
You will see all of these statements in the Burrascano Guidelines.
So, I suspect that all of your symptoms will go away once you get good treatment for lyme disease and any coinfections you have.
If you have not studied the Burracano Guidelines, you definitely need to do so. There is no substitute for an educated patient when it comes to this disease.
You want treatment that lines up with Burrascano. Check your treatment against the Guidelines. You can also tell us your treatment and we can tell you if it lines up with Burrascano. Many have spent years on lousy lyme treatment.
I wasted 2 years that way. Then, I switched to a doc who did everything Burrascano says to do. That is what got me to health.
You MUST do the Burrascano exercise requirement if you are ever going to get your immune system back to normal. It is one continuous hour of weightlifting every OTHER day. Use light weights and do numerous repetitions. Do a full body workout each time.
So, do arm weights for a few minutes, then legs, then abs, chest, back, buttocks. Then, rotate through all the muscle groups again.
YOu can see this described in Burrascano starting on page 31. The weightlifting plus a day of rest will allow your immune system to "rebound." Eventually, it will come back to normal.
"Despite antibiotic treatments, patients will NOT return to normal unless they exercise, so therefore an aggressive rehab program is absolutely necessary. It is a fact that a properly executed exercise program can actually go beyond the antibiotics in helping to clear the symptoms and to maintain a remission.
Although the scientific basis for the benefits of exercises is not known, there are several reasonable theories...."
"Illness present for at least one year (this is approximately when immune breakdown attains clinically significant levels)." (p. 3)
"It is clear that in the great majority of patients, chronic Lyme is a disease affecting predominantly the nervous system." (p. 4)
"Two groups have reported evidence that Borrelia, like several other bacteria, produce neurotoxins. These compounds reportedly can cause many of the symptoms of encephalopathy, cause an ongoing inflammatory reaction.... ." (p. 13)
Read on p. 13 where the Visual Contrast Test can be used to see how well your treatment plan is solving the inflammation problem.
Neurologists know NOTHING about lyme. So, when they see how it affects the nervous system, they are clueless as to the illness they are observing.
I would never go to a neuro if I had lyme disease unless he were one of the handful of neuros in the country that are experts on lyme disease.
Forget everything that guy said and stop going to doctors who do not know lyme!
My next door neighbor got lyme and didn't know it. He had one pupil larger than the other. His doc sent him to the ER and they began checking him for a brain tumor. He was scared to death.
After being there all day long for tests, they found nothing and sent him home!! Needless to say, this was all very upsetting to him. (First, you are ready to die; then there is nothing wrong with you!) All of that is due to ignorance about lyme.
Don't be scared. Get your lyme treated properly. You should then be good to go.
Posts: 9931 | From Maryland | Registered: Dec 2007
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