posted
I've been at this for 6+ months and have spent the last couple months wiped out energy wise. I was debating combining many protocols to get better more quickly.
Obviously I'd run the combos by my doctor to make sure it was safe, but has anyone tried combining many treatments to increase the chance of success?
Would definitely be more expensive, but seeing as some things will work for some while they won't for others, seemed logical to me- any thoughts?
Posts: 21 | From Austin, TX | Registered: May 2017
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Brussels
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Member # 13480
posted
I guess, most people combine treatments here!!
I wonder, are there many people doing JUST one type of protocol here??
I think that only adding protocols may not take people out of chronic diseases...
I guess, in my opinion, it's more like LOOKING more holistically that can help more people out.
People that concentrate only on pathogens can be missing important points such as correct diet (to eliminate inflammatory foods)...
... or dental / jaw problems (that can block healing, generally)...
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
I more meant combining multiple protocols like Cowden, Buhner, Zhang etc?
Posts: 21 | From Austin, TX | Registered: May 2017
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Keebler
Honored Contributor (25K+ posts)
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posted
- I do not recommend it for various reasons. Combining, sure, is often good. And there is no "pure" protocol per se . . . there is always taking from here and there, as good medicine is what works and it just does not always come in one neat package.
Yet, in reaching all about it can become a sort slapping together a bunch of things to to try to cover all the bases approach.
To consider are issues of: overlapping / redundancy; competition / miss-matched and potentially either canceling out each other
or causing bad chemistry with combinations that aren't meant to be together . . .
and maybe missing addressing key elements of the pathogens - or body systems - of which we just might not be aware in some important ways.
You need someone with the many years of training in the area of whatever you use whether Rx or herbal approaches as well as with education regarding lyme / tick borne and also other chronic stealth infections.
All this is so very complex. Each infection is so different from the others and all require different approaches.
It's best to find the very best LLMD &/or LL ND you can who is up on the science of lyme, et.al. and who knows just what to suggest from the range of options for your particular and unique case.
Rather not so much actually combining a bunch of protocols, rather pulling together the best elements, compiling the most assertive and comprehensive direct approach specifically targeted to each pathogen -- and with adequate support & protective measures as well.
With the best experienced & educated mind you can find in a LLMD or LL ND. If possible. If not, of course, then it will require you reading all you can and taking a logical approach.
I find outlines & charts to help reduce redundancy and cover basic aspects. But I've been taking a stab at it on a shoestring for so many years. It's hard when exhausted and dizzy and with no degree in all this to be one's own doctor.
It's also hard try to patch together beyond what only a marginally adequate sort of lyme informed doctor might be able to do.
I hope your doctor is a good one and, if so, trust them with your questions about how to be the most assertive at the approach. If a good LL doctor, they should know all the protocols and know how to pull from each to help your particular needs.
Back up, though,
you say that you've "been at this for 6+ months and have spent the last couple months wiped out energy wise" (end quote)
That seems normal, really. It just is how it is and treatment can take several years before feeling better. Still, I'd sure want to know that you have the smartest doctor leading your treatment as it is all about your very life and future.
Be sure you IDENTIFY ALL INFECTIONS, TARGET INFECTIONS according to their science
& include great LIVER SUPPORT and also excellent ADRENAL SUPPORT. They must go with any approach.
Take care -
[ 11-11-2017, 05:24 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Keebler
Honored Contributor (25K+ posts)
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Advanced Topics in Lyme Disease (Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Borne Illnesses
Dr. Burrascano's Treatment Guidelines (2008) - 37 pages
Page 27 - SUPPORTIVE THERAPY & CERTAIN ABSOLUTE RULES for self-care
Page 32 - in the Physical Therapy section
[ 11-11-2017, 05:26 PM: Message edited by: Keebler ]
Posts: 48021 | From Tree House | Registered: Jul 2007
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Brussels
Frequent Contributor (5K+ posts)
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posted
I started with salt/C, that did more harm than good.
Then I started Buhner's herbs (first book, 2005).
I tried many of his herbs for about 2 whole years.
In between I added some of Cowden tinctures, some of Klinghardt tinctures / products, then added loads of Chinese herbs, depending on what I was treating.
I also bought a KMT machine with Rife frequencies, that I also used parallel.
I had been using Freeze Garlic (better than Zhang's garlic pills) for very long too.
I also bought many of the essential oils to keep rubbing on my body.
Well, that answers your question: yes I did mix treatments.
Dr K's practitioners forced me to treat my mouth, they helped me with some parasites.
I also used LOADS OF Sanum products with their help (and on my own).
I used Sanum for many years, even after lyme was gone.
Sanum dealt with most parallel infections that kept coming.
And also with candida, mucor, aspergilus...
I also used loads of homeopathics such as Heel products and other individual tailored homeopathics.
I don't think I would ever get rid of lyme if I hadn't mixed many treatments, and tested them energetically.
I got reinfected quite some times, and so did my daughter. In our case, we fell VERY ILL VERY FAST. Pretty handicapping symptoms.
out of desperation, we did mix things.
AT a certain point, I remember having to fit in 60 different substances a day, I had a sheet with the schedule on the refrigerator door.
It was something like every 10 minutes, I had something to take.
It looked like a mad man's schedule, every body around thought I was crazy.
I did not care!
When your life is on stake, you don't mind about what people think about you!!
I just kept treating, non-stop, until I got lyme under control.
In my opinion, it's not the ADDITION of protocols, substances that make the success. It's the right combination at the right time, with the right amount.
Another point is diet: I guess, eating stuff that causes inflammation is always a point less for your body.
Or GMOs. Or pesticides, glyphosates etc.
Posts: 6199 | From Brussels | Registered: Oct 2007
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Keebler
Honored Contributor (25K+ posts)
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posted
- When I edited a post above this disappeared. So, second try:
When considering herbal / nutritional / adjunct methods:
if at all possible - because each person & each case is different - it's best to consult with an ILADS-educated LL ND (lyme literate naturopathic doctor) (or similar) who has completed four years of post-graduate medical education in the field of herbal and nutritional medicine -
- and someone who is current with ILADS' research & presentations, past and present, and has completed the ILADS Physician Training Program (see: www.ilads.org )
Many LL NDs incorporate antibiotics (depending upon the licensing laws in their state). Some LLMDs and LL NDs have good working relationships.
When possible, it's great to have both a LLMD and LL ND and even better when they have a long-standing professional relationship.
Be aware that integrative doctors can have various levels of formal herbal &/or nutritional education, perhaps even just a short course. Do ask first. Some have learned on their own from experts in the field. There are many ways to acquire knowledge and most are eager to share basic details about their training. You want someone with a deep knowledge.
Some of the specialities above may not actually treat lyme yet, for things such as physical adjustments, it is just good that they are also LL, at least to some degree (to know never to suddenly twist the neck or spine).
Links to many articles and books by holistic-minded LL doctors of various degrees who all have this basic approach in common:
Understanding of the importance of addressing the infection(s) fully head-on with specific measures from all corners of medicine;
knowing which supplements have direct impact, which are only support and which are both.
You can compare and contrast many approaches.
BASIC HERBAL EDUCATIONAL & SAFETY links
Links here to two major sources: Buhner, & Zhang. Be sure to get their books. . . .
quote:Originally posted by Keebler: - also excellent ADRENAL SUPPORT. They must go with any approach. -
can you explain the adrenal support reasoning w/lyme? is this even if cortisol levels are normal?
Posts: 21 | From Austin, TX | Registered: May 2017
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Keebler
Honored Contributor (25K+ posts)
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posted
- Cortisol levels are never really normal with lyme - not all the time - maybe for the time or day of one test but a snap shot in time is not an adequate way to measure.
But just looking at cortisol leaves a lot out of the picture. Often, cortisol is high but then can crash hours later.
Either high or low can cause trouble but the fact that it's often not stable and the adrenal reserves are just shot, that also spells danger.
If you are exhausted ("wiped out energy wise" as you report), and if you have lyme, the HPA-axis has been affected. Lyme creates intense stress on the adrenal system.
In this protocol, CORDYCEPS is the adrenal support suggested as well as proper rest, not getting too tired, avoiding aerobic exercise, rest days even between non-aerobic exercise, and other self care:
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