posted
Does anyone notice a decrease in taste at times? And does your body temp go from sweating to freezing many times a day? Thank you
Posts: 6 | From PA | Registered: Feb 2018
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Do you have an ILADS educated lyme literate doctor (LLMD)?
This is the first question.
As for taste, lyme can attack various nervous system pathways and the cranial nerves that run through the head, ears and oral passages (I think Cranial Nerve 6 or 7) can be rather hard hit. This could account for taste issues.
If you have lyme &/or other tick borne infections, those can play havoc with both sympathetic nervous system and autonomic nervous system . . . and with thyroid, adrenal and other hormonal systems that (when working well and not clobbered with such infections) keep body in a homeostatis including with temperature.
Babesia, one of the tick borne infections (a protozoal infection similar to malaria) was very troubling for me regarding the extremes of body temperature, too. Babesia seems to affect more nighttime sweats but it can run on and off all day long.
Dressing in layers with natural fibers helps. Avoid any clothes close to skin that is not of good cotton, lighter colors. Same with sheets and blanket. Cotton closer to you.
Avoid any body products that contain petroleum products for that can hold in heat and mess with body temp regulation, too.
Treatment for babesia is not at all the same as for lyme. It requires totally different classification of treatment.
If you have a LLMD, be sure to mention this and ask what might help for support - in addition to assertively and directly addressing the various infections.
If you do not yet have a LLMD, please be sure to post in the "Seeking a Doctor" forum.
If you don't have a way to access a LLMD, I suggest getting the four or five different books by Stephen H. Buhner. He's a master herbalist and very much lyme and TBD (tick borne disease) literate.
He has many suggestions for good support methods as well as other things that may offer a more substantive approach. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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quote:Originally posted by Keebler: - Do you have an ILADS educated lyme literate doctor (LLMD)?
This is the first question.
As for taste, lyme can attack various nervous system pathways and the cranial nerves that run through the head, ears and oral passages (I think Cranial Nerve 6 or 7) can be rather hard hit. This could account for taste issues.
If you have lyme &/or other tick borne infections, those can play havoc with both sympathetic nervous system and autonomic nervous system . . . and with thyroid, adrenal and other hormonal systems that (when working well and not clobbered with such infections) keep body in a homeostatis including with temperature.
Babesia, one of the tick borne infections (a protozoal infection similar to malaria) was very troubling for me regarding the extremes of body temperature, too. Babesia seems to affect more nighttime sweats but it can run on and off all day long.
Dressing in layers with natural fibers helps. Avoid any clothes close to skin that is not of good cotton, lighter colors. Same with sheets and blanket. Cotton closer to you.
Avoid any body products that contain petroleum products for that can hold in heat and mess with body temp regulation, too.
Treatment for babesia is not at all the same as for lyme. It requires totally different classification of treatment.
If you have a LLMD, be sure to mention this and ask what might help for support - in addition to assertively and directly addressing the various infections.
If you do not yet have a LLMD, please be sure to post in the "Seeking a Doctor" forum.
If you don't have a way to access a LLMD, I suggest getting the four or five different books by Stephen H. Buhner. He's a master herbalist and very much lyme and TBD (tick borne disease) literate.
He has many suggestions for good support methods as well as other things that may offer a more substantive approach. -
Posts: 6 | From PA | Registered: Feb 2018
| IP: Logged |
posted
Thank you for this information. My dr understands there is a problem with Lyme but really only treats it with doxi and rest, pretty much like fibro. I did not have a positive lyme test, but the dr is sure i have a tick borne illness just not sure which one.
I remember getting bit in 2012, it stung and swelled like a bee sting and i pulled it off of me. My brain swelled and I got meningitis. I had tests and the most they told me was i got fibro from the meningitis. I will get the Stephen Buhner books. I appreciate your help and information. Thanks again
(breaking up the paragraph for easier reading for many here)
[ 02-17-2018, 05:09 PM: Message edited by: Robin123 ]
Posts: 6 | From PA | Registered: Feb 2018
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posted
Thank you Robin123 I will get some zink supplements.
Posts: 6 | From PA | Registered: Feb 2018
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Treating lyme with only doxycycline and rest is not treating lyme. Sorry. Using only doxycyline can cause chronic lyme by the spirochetes going into the cystic form where no antibiotic can touch it. Later, those cysts can break open and have far more spirochetes to contend with.
Is there anyway you can get to a real LLMD who would know how to design a proper protocol for you?
I do hope you can get Buhner's books, too. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
Doesn't sound like your doctor is trained to treat Lyme. You can post in Seeking a Doctor for an LLMD in your area.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
Thank you both for your information. Do you know which of buhners books I should start with? I will look on here for a Dr. Thanks so much.
Posts: 6 | From PA | Registered: Feb 2018
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