Judie
Frequent Contributor (1K+ posts)
Member # 38323
posted
Hi All,
Awhile back I posted to see if there was a test to see if Lyme was still in the body. Someone posted that there was a urine test that looks for the actual spirochetes or Lyme forms (not antibodies).
Are there any other tests for Lyme? I did so many antibiotics, I want to do my best to make sure this is actually as gone as it can be.
I'm exhausted and I don't know if it's life stress or Lyme. I don't want to do antibiotics again if it's unnecessary. I never had a noticeable herx so it's not a good diagnostic for me.
Thanks.
Posts: 2839 | From California | Registered: Jul 2012
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
Global Lyme Alliance -
Posts: 48021 | From Tree House | Registered: Jul 2007
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
DNA Connexions has a PCR test that is actually looking for the dna of the beast.
I'm hearing good things about it.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
posted
Also Julie
This might interest you, especially if money is sparse.
We all know how worthless western blot tests are for diagnosis. 5 reactive bands are hard to come by with a dysfunctional immune system and a test that looks for antibodies only. But they are insurance covered and CAN have some productive value..
I have had numerous western blot tests. The most reactive bands I have had on one test, were 3, bands 30, 39, and 41.
Been in treatment now for 1 1/2 year. I have had 3 western blots during this time frame. I now test positive for 23, 41, and 66. Gone is 30 and 39.
I interpret this to mean I am still fighting a stealth infection, not only because of revolving reactive bands, but also because of debilitating symptoms.
Just make sure you always get a copy of the test results. The ordering doctor will tell you that you are negative for Lyme if you get under 5 reactive bands. This we all know. But what WE want to know and see, is the individual reactive bands itself.
Nothing really to lose by getting another western blot. Until the CDC helps us, we have to try to work with what we have.
Hope this helps. Keep us posted. Inquiring minds want to know. Good luck to you. Posts: 2977 | From Florida | Registered: Nov 2016
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Bartenderbonnie
Frequent Contributor (1K+ posts)
Member # 49177
If you scroll down, this link also provides a breakdown of reactive bands on western blot tests.
Posts: 2977 | From Florida | Registered: Nov 2016
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
I would do bioressonance tests.
Very cheap, you pay the price of the practitioner, basically. You are able to check not only for lyme and coinfections, but many other viruses, bacteria...
It's not 100% good, but no test is 100% good. Dr K uses mostly energy tests (without a bioresonance device, simple muscle tests) to check which pathogens are active at the moment.
That's what I use (muscle tests) for the last 12 years. I think dr K is right that the accuracy is about 80% if the person's regulation is open (functioning).
Posts: 6199 | From Brussels | Registered: Oct 2007
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quote:Originally posted by map1131: DNA Connexions has a PCR test that is actually looking for the dna of the beast.
I'm hearing good things about it.
Pam
Hi, what are you hearing and from whom? We are all interested in better diagnostics.
Posts: 360 | From Massachusetts | Registered: Dec 2012
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dbpei
Frequent Contributor (1K+ posts)
Member # 33574
posted
I had the Nanotrap Lyme antigen testing done recently and the results came back 'highly suspicious' for both a form of borellia and relapsing fever. Results only showed 1 single peptide for each of these conditions and for a confirmed dx, you need 2 peptides. I was told I would not have even one peptide unless my body was still being attacked by tick borne pathogens.
Since my doc who ordered this is out on maternity leave, I contacted the doctors at the lab who provided this testing and they are highly recommending I get tested again to confirm things or perhaps investigate a couple of other types of bacteria that were not included in original testing, based on the information I reported to them.
I do not have typical lyme symptoms of pain and fatigue, but instead, I suffer from many odd symptoms from my neck up including hearing loss, sizzling sensations, buzzing, ringing, visual changes, head pressure, burning in my jaw and skull, and much more. It feels like there is an infection in my body from my neck up!
I should probably start a new post on this, but I would love to hear from others who have had this testing done. I am perplexed about what to do next. After almost an entire year of IV ABX preceded by years of various oral ABX and herbs, rifing, and other alternative treatments, borellia still seems to be invading my body! How do we ever get rid of it?
Posts: 2386 | From New England | Registered: Aug 2011
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