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Hello there, I'm not sure if this is the right place on forum to post on this subject - if not I'm sorry. Please move the topic to another place
Sorry for my english - as it isn't my native language.
I ahve been struggling with weird symptomes for about half a year. But let's start a little bit earlier.
I had a weird, very short time when I have been feeling ill without illines. I had stomach problems, fatigue, temperature fluctuations.
Then I was diagnosed with depression and I went for 3 month treatment.
About half a year ago I had a first vaginal infection in my life. And I'm about 26
The doctor said that she thinks I have an infection ( nothing on the test result ) and a small Cervical ectropion but she is not sure so she wants me to take Policresulen. I took two packages.
Then I had a candida infection ( m,y test result was clean but the doctor said she thinks it's candida) -
I was taking medicines, then I had a real Staphylococcus infection, but the easy one so uit was cured in one week ( I had Toxicological liver poisoning by an antibiotic ).
So every other test showed I'm healthy down there but I had ( still have ) this weird sensation of burning in the area. Close to place at the height of the clitoris and coil, and around the entrance to the vagina. It emanates in way that it's it's hard to say outside or inside.
The most burning I feel when I'm sitting, I go to sleep in cradle like position. Knees up, and I hold them close to my body.
Also I have red markings in the area.
I made so many test, I have no hpv, herpes, ureaplasma, mycoplasma, anything you can have down there - fungus, viruses or bacteria.
I was being told to take antybiotics for candida even If I have none.
I have red marks on my vulva - they are going worst, and worst. The skin is similar to papyrus, but it does not flake - just hurt. Allergies excluded. All the doctors say they dont know.
Sex is impossible, the pain is horrible. Sitting is hard. Slightly enlarged lymph nodes down there as doctor said. I have spend so much money on so many doctors.
I have met a girl, that had similar symptoms. And you know what? 3 years of constant, every day pain and no social and sexual life - and she found it - LYME.
She was treated for vulvodynia - but it wasn't it. I took test KKI & West Blot. In West Blot I've got nothing but in KKI to result was border. The doctor said he can not say I have Lyme disease. But he can not say I do not have it either. 'Cos there was something but not sure what. The result to start the treatment need to be clear that I have it. Again.
I rememebered that in February this year 2018 - the doctors were trying to find out whats going on. I had fatigue, cosmic joint pain, dizziness, weakness. I slept in days. I could not stand. Knees, elbows and hips hurt. Sometimes wrists. I had stomach problems.
In another time I had typical viral symptoms - fever and sore body. No cold, cough, sore throat.
Right now the only thing I feel is the burning beetween the legs in the places I mentioned, visual red vulva changes ( very similar to those that this girl had ) different then the one connected to infecition.
I asked the girl with Lyme. She had non symptoms, only vaginal. Also she has constant infection with coli there.
I had test and I have new infection, this time real - Enteroccocus Fecalis but the doctor say it could be weird 'cos I have no symptoms and he has seen this kind of infection. I went to a doctor that work with vulvodynia. She said I need to check Lyme. She gave me standard drugs for vulvodynia to start with.
The girl I met - she said she had nothing in her test. And she checked herself for Lyme for so many times in those 3 years and after 3 years - there it is!
She said that it is possible to get Lyme from sexual contact. I had a boyfriend for some time, and he was constantly checking himself for something.
He wasn't saying much but he was feeling tired, he said something about muscles and joints - we laughed that it was his old age I mean he wanted to know why he has problems with it, and doctors werent much of a help. It was a very short relationship.
My mom said I was bitten by tick at the age of 5.
So, does any of you have similar problems? Girl, please. Do tell me what to do I've got nothing. We don't have many specialis on weird vaginal cases here where I live ( almost none in my country) I was told that I am making this up !!!
If you took time to read it, or answear me - thank you. I do wait for help.
(breaking up the post for easier reading for many here)
Brussels
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posted
Just separating the text for people to read:
------------------------------
Hello there,
I'm not sure if this is the right place on forum to post on this subject - if not I'm sorry.
Please move the topic to another place [Smile]
Sorry for my english - as it isn't my native language.
I ahve been struggling with weird symptomes for about half a year.
But let's start a little bit earlier.
I had a weird, very short time when I have been feeling ill without illines.
I had stomach problems, fatigue, temperature fluctuations.
Then I was diagnosed with depression and I went for 3 month treatment.
About half a year ago I had a first vaginal infection in my life.
And I'm about 26 [Razz]
The doctor said that she thinks I have an infection ( nothing on the test result ) and a small Cervical ectropion but she is not sure so she wants me to take Policresulen.
I took two packages.
Then I had a candida infection ( m,y test result was clean but the doctor said she thinks it's candida) - I was taking medicines, then I had a real Staphylococcus infection,
.... but the easy one so uit was cured in one week ( I had Toxicological liver poisoning by an antibiotic ).
So every other test showed I'm healthy down there but I had ( still have ) this weird sensation of burning in the area.
Close to place at the height of the clitoris and coil, and around the entrance to the vagina.
It emanates in way that it's it's hard to say outside or inside.
The most burning I feel when I'm sitting, I go to sleep in cradle like position.
Knees up, and I hold them close to my body.
Also I have red markings in the area.
I made so many test, I have no hpv, herpes, ureaplasma, mycoplasma, anything you can have down there - fungus, viruses or bacteria.
I was being told to take antybiotics for candida even If I have none.
I have red marks on my vulva - they are going worst, and worst.
The skin is similar to papyrus, but it does not flake - just hurt.
Allergies excluded. All the doctors say they dont know.
Sex is impossible, the pain is horrible.
Sitting is hard. Slightly enlarged lymph nodes down there as doctor said.
I have spend so much money on so many doctors.
I have met a girl, that had similar symptoms.
And you know what? 3 years of constant, every day pain and no social and sexual life - and she found it - LYME.
She was treated for vulvodynia - but it wasn't it.
I took test KKI & West Blot. In West Blot I've got nothing but in KKI to result was border.
The doctor said he can not say I have Lyme disease.
But he can not say I do not have it either.
'Cos there was something but not sure what.
The result to start the treatment need to be clear that I have it. Again.
I rememebered that in February this year 2018 - the doctors were trying to find out whats going on.
I had fatigue, cosmic joint pain, dizziness, weakness.
I slept in days. I could not stand.
Knees, elbows and hips hurt.
Sometimes wrists. I had stomach problems.
In another time I had typical viral symptoms - fever and sore body.
No cold, cough, sore throat.
Right now the only thing I feel is the burning beetween the legs in the places I mentioned, visual red vulva changes ( very similar to those that this girl had ) different then the one connected to infecition.
I asked the girl with Lyme. She had non symptoms, only vaginal.
Also she has constant infection with coli there.
I had test and I have new infection, this time real - Enteroccocus Fecalis but the doctor say it could be weird 'cos I have no symptoms and he has seen this kind of infection.
I went to a doctor that work with vulvodynia.
She said I need to check Lyme. She gave me standard drugs for vulvodynia to start with.
The girl I met - she said she had nothing in her test.
And she checked herself for Lyme for so many times in those 3 years and after 3 years - there it is!
She said that it is possible to get Lyme from sexual contact.
I had a boyfriend for some time, and he was constantly checking himself for something.
He wasn't saying much but he was feeling tired, he said something about muscles and joints - we laughed that it was his old age [Wink]
... I mean he wanted to know why he has problems with it, and doctors werent much of a help.
It was a very short relationship.
My mom said I was bitten by tick at the age of 5.
So, does any of you have similar problems? Girl, please.
Do tell me what to do [Frown] I've got nothing.
We don't have many specialis on weird vaginal cases here where I live [Razz] ( almost none in my country) I was told that I am making this up [Frown] !!!
If you took time to read it, or answear me - thank you. I do wait for help.
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It does sound like some type of infection.
Sorry, i can't help as I haven't got your symptoms, but it looks like candida there (or fungi).
Where do you live (in which country)?
I'm in Switzerland, border of Germany.
I never got your symptoms during active lyme...
Have you been treated for candida?
Have you tried baking soda baths and drinking baking soda (or anything extremely alkaline?). Candida do not like alkaline environment.
Are you sugar free?? And milk free? I find milk products make my candida worse (butter, cream, cheese specially...)
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another thing that fungi / candida hates are liposomal vit C.
Vitamin C in high doses have been said to help many conditions, INCLUDING patients in sepsis (meaning, starting organ failure!!).
I can't take high doses of Vit C without bowel problems, so i did the liposomal version that is easier and stronger.
I do have to deal with die off reactions. I rub it all over too (not sure you can rub at the vagina, if it's got alcohol....) I guess no.
You can produce your own without alcohol and try?
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map1131
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Please do some research on European strain of Lyme. Look on the web for ACA & Lyme Disease and also Lymphocytoma & Lyme Disease.
Lymphocytoma is usually associated with swelling and redness of the ear lobe or nipple. But I've got to wonder if your delicate skin of the vagina area has been effected by this?
Brussels, with you also being in Euro area also, can you do some searching and see if you can find some good reading for this young lady on this.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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quote:Originally posted by Brussels: It does sound like some type of infection.
Sorry, i can't help as I haven't got your symptoms, but it looks like candida there (or fungi).
I have no candida - I took so many test for anything possible. Candida wont make some dermatic changes to your skin!
I have no symptoms even. Not even one! It's pain, not ichiness It's feeling of putting a finger inside a wound.
And not in my vagina! Only in places I mentioned.
I know the burning of infection and it's totally differen.
The doctors were giving me treatment for candida 'cos they don't know what it is.
The doctor I'm going now said I have no candida, no symptoms of candida - then 4 doctors said I have not a single sight of infection.
Microbiology says I have nothing like that there too.
Yes, it can be vulvodynia, but to take a treatmend I need to diagnose if it is Lyme.
The girl had identical changes, and identicall feeling.
She found out about lyme possibilities 'cos she found other girls like that.
The Lyme can have neurological symptoms - that's why the doctor isn't sure if I have vulvodynia ( neurological symptoms ), or Lyme ( neurological symptoms + visual ).
I'm living in the city, but to see any specialist I need to travel 'round the country. There are 3 people that treat vulvodynia in my city - and the city population is 403 833
There are few people in Poland that even know what vulvodynia is!
Vaginal dermatosis? Not much!
It is hard, as for example - in my country 99% doctors say that vulvodynia is in your head / or doesn't exist, and in other countries you get normal treatment with drugs,physiotheraphy and care of neurologist ( it's neurological case ).
But In my country they learned 40 years ago it's psychological so now, 40 years later ( when the world found out it is not ) - they say the same
We have so many girls in constant pain, with no posibilitiess of help, orr chance of having children and so much more - 'cos it's all in their heads as they say :|
And about being not typicall - the doctor I went, that specialise in Lyme - said he have a patient that only has sore throat.
Weird, right? But his test says he has Lyme. And you know what?
After treatment he feels better!
So for me - it is possible to have neurotic symptoms there - in a very delicate place, whith so many nerve connections.
I have a new antybiotic 'cos why not ( thats how I'm diagnosed - they give me treatment for something and if it works - it was it! If not - eat other antybiotics )
I want to wait after the treatment for another something hehe - about 6 weeks and take a C6Lyme test.
There is a guy in Poland with own laborathory - very sensitive tests.
I mean, all the lyme test aren't checked here, they are send to other country :/
We don't have the equipment for Lyme in our own laboratories.
So I'm gonna get to his city and get things done.
I feel like I'm making this up, and going crazy.
You know I was given antybiotics without even testing if I have the thing the treatment is for?
I went and took test by myself, so I wont hurt my liver any more
Right now I won't take anything that isn't on the test.
I already have sick stomac 'cos of all the drugs!
Also I have diagnosed endometriosis - I already had my first Laparoscopy 2 years ago Posts: 2 | From Poland | Registered: Jul 2018
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Infectious diseases occupy an important position in gynecology.
Viral, bacterial or fungal diseases are common, but their diagnosis is sometimes not easy.
The affected women often have a long ordeal behind them until they receive the correct diagnosis.
Many diseases have in common that the normal germ spectrum of the vaginal flora changes.
This does not necessarily affect the type of microorganisms, but especially their quantitative ratio.
In a healthy vaginal flora certain lactobacilli strains dominate.
On the one hand, these can form bacteriocins (proteinogenic toxins) that inhibit the growth of pathogenic agents.
On the other hand, they produce an acidic environment in the vagina through the production of hydrogen peroxide (H2O2).
With a pH below 4.5, they create a very unfavorable growth environment for other microorganisms.
Nevertheless, even in an intact vaginal ecosystem there are always potentially pathogenic agents.
For example, in symptomless women, streptococci (up to 20 percent of women), corynebacteria (up to 72 percent), Candida albicans (up to 30 percent) or Clostridium perfringens (up to 9 percent) can be detected.
However, these microorganisms only cause an infection when the number of lactobacilli decreases.
This can be done, for example, by taking antibiotics.
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Hardly known: aerobic vaginitis
Bacterial vaginosis (BV) is a classic example of a disorder of the vaginal flora (see box).
In addition, there is obviously another disease that is characterized by a different etiology and different symptoms.
Itching, burning, pain in the genital area: behind it can hide a variety of diseases.
Professor Gilbert Donders from the University Hospital of Leuven, Belgium coined the term "aerobic vaginitis" (AV) in 2002 (1, 2).
This already shows a fundamental difference: in culture - in contrast to bacterial vaginosis - mainly aerobic bacteria, such as B-streptococci grow.
The number of lactobacilli appears to be greatly reduced in the microscope as in bacterial vaginosis, but missing the typical for this infection key cells.
These clue cells are cells of the vaginal mucosa (squamous epithelial cells).
In a bacterial vaginosis they are densely populated with bacteria, usually Gardnerella vaginalis.
In the case of aerobic vaginitis, leucocytes show increased numbers because the disease is associated with inflammation.
"Whereas bacterial vaginosis tends to suppress the immune response, aerobic vaginitis has a strong immune response," said the gynecologist at a gynecological symposium in Bielefeld (3).
However, the experts do not assume a primary bacteriological cause, but rather an immunological problem in the vaginal epithelium.
The clinical symptoms are also different from bacterial vaginosis.
Patients with aerobic vaginitis report pain in the vagina and dyspareunia (pain during intercourse);
the discharge appears yellowish-green, but has no smell of amines.
The pH is also increased and is above 5.2.
According to Donders, mixtures of both diseases can also occur.
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Difficult to handle
A consistent scheme or guideline for the treatment of aerobic vaginitis does not yet exist.
"Metronidazole is not suitable for treatment," said Donders. He treated depending on the microscopic findings locally with antibiotics, estrogens, antiseptics such as PVP-iodine and pronounced signs of inflammation with corticosteroids.
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Bacterial vaginosis as an ecological disorder
Bacterial vaginosis has some characteristic features.
Thus, the woman usually notices a homogeneous gray-watery discharge as well as a fishy odor that results from amine formation.
The vaginal pH is above 4.5.
Otherwise, the disease will cause no pain, itching or other symptoms as it is not an inflammatory disease.
The microscope shows a 100 to 1000-fold increase in pathological bacteria, in particular GARDNERELLAvaginalis and genital MYCOPLASMAS, while the number of LACTOBACILLI is substantially reduced.
If key cells (clue cells) can be recognized in the phase contrast microscope, this is a clear indication of bacterial vaginosis.
Metronidazole is the standard therapy, either 500 mg twice perorally or twice to 2 g per day for 48 hours 48 hours apart.
The intravaginal application of metronidazole (1 g twice at 24 hours intervals) is as effective as a single oral dose of 2 g according to one study (5).
However, it appears to be better tolerated and to be associated with greater satisfaction and better compliance of women than oral intake.
As an equivalent alternative, clindamycin is available as a 2% vaginal cream (seven days, 5 g daily).
The problem is the high recurrence rate.
For this, a bacterial biofilm is made responsible, which adheres to the vaginal epithelium and can not be eliminated by the usual drugs.
A routine co-treatment of the partner is currently not recommended in the guidelines of the German Society for Gynecology and Obstetrics (DGGG), but is discussed especially in recurrent bacterial vaginosis.
For pregnant women oral or intravaginal administration of metronidazole or clindamycin is allowed after the first trimester.
The guidelines describe intravaginal administration of pH-lowering lactic acid as "effective in prevention".
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Painful: vulvar vestibulitis syndrome
Even the slightest touch in the genital area triggers severe pain in women with vulvar vestibulitis syndrome (VVS).
The women describe these as either burning and stinging or as a feeling of soreness.
The complaints last for months and years.
In extreme cases, the women can hardly sit and no longer walk painless in tight pants.
In bed, women with vulvar Vestibulitis syndrome rarely have fun, because every touch in the genital area can cause severe pain.
In this still largely unknown disease outweigh the uncertainties.
It is clear that "vulva" refers to the female pubic region and "vestibulum" to the vaginal vestibule, which is enclosed by the labia minora.
Here is the pain.
However, there are various names for the suffering.
In the literature, in addition to the "vulvar vestibulitis syndrome," to which the International Society for the Study of Vulvovaginal Diseases (ISSVD) has previously been established, the term "vulvodynia" or "burning vulva syndrome" is also known.
The term "vulvar dysentery syndrome" was also discussed in the ISSVD.
In part, the syndrome is referred to as a specific form of vulvodynia - a condition that involves chronic pain on the female outer genitalia.
The frequency is still unclear.
The figures in the literature vary between 5 and 16 percent of all women.
In textbooks, the disease is scarcely described, and there are few studies on it.
Consequently, the vulvar vestibulitis syndrome is relatively unknown even among gynecologists.
Difficult is also the diagnosis.
Complaints about non-detectable swellings in the genital area lead the doctors astray.
With the naked eye is often only a little redness to recognize.
Correspondingly common are the misdiagnoses.
Many women have been through years of anti-fungal and antibiotic treatments until they have been diagnosed correctly, which has not given them any relief.
An important clue is the location of the pain.
As Donders explains, usually two areas of the vulva and the vaginal vestibule (if you think of this area as a round dial, at 5 and 7 o'clock) are particularly sensitive to pressure when touched with a cotton swab (touch test).
"If four points are painful, ie at 11 and 13 o'clock, women often suffer from very severe pain that makes any sexual life impossible," says the gynecologist.
What the pain syndrome is based on is also unclear.
Discussed is a disturbed regulation of the immune response.
Certainly it seems that neither HPV nor genital Candida infection is associated with it.
Often, the syndrome is associated with interstitial cystitis, a chronic abacterial cystitis.
Those affected often call a trauma as a starting point, such as a difficult birth with a large episiotomy.
The experts agree that the vulvar vestibulitis syndrome is not related to psychosomatic illnesses.
A visit to the psychologist should be recommended to the woman only if her psyche is impaired due to years of pain and serious partnership problems.
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An empirical therapy
All therapeutic approaches in the case of vulvar vestibulitis syndrome are purely empirical, German guidelines are missing.
All that is certain is that the commonly prescribed antifungals and antibiotics do not help.
Since low-dose contraceptives (particularly progestogens) can not be ruled out as triggers, Donders recommends that patients discontinue them immediately.
"You should also tell women that there is no chance of a quick cure," the gynecologist said.
The following therapeutic approaches have proven to be partially successful, but larger studies are missing:
local estrogen application, local corticosteroids, Electrostimulation,
Injections of botulinum toxin, intralesional injection of dexamethasone,
peroral administration of gabapentin or tricyclic antidepressants,
Skin excision.
Some patients seem to respond well to a "biorestorative" cream containing a lysate of cultured cells (human fetal skin cells) with anti-inflammatory cytokines.
The topic is not allowed in Germany.
Donders and his group studied the effect in a placebo-controlled double crossover study.
"We saw no dramatic effect under the cream, but an encouraging trend to recovery," the gynecologist said at a conference (3a).
Surgical removal of painful areas of the skin (excision) is the last resort if all other attempts fail.
A retrospective cohort study with 57 patients attested this method good results.
The pain decreased on average by 66.7 percent.
The vast majority of women (91 percent) were satisfied with the outcome of the operation (6).
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Chlamydia: unnoticed, but not without danger
No pain and only occasional discharge causes one of the most common sexually transmitted diseases: the infection with Chlamydia trachomatis.
It is problematic because in women it causes tubal inflammation and scarring, which can increase the risk of tubal pregnancies or lead to infertility.
Every fourth to fifth woman is sterile after an infection (7).
In Germany, an estimated 100,000 women are affected (8).
Of chlamydia infections, most adolescents have not heard anything yet.
According to the European Center for Disease Prevention and Control (ECDC), men are just as often infected.
An untreated infection can lead to fertility.
The consequences of the infection are often noticed only after years, because the acute infection is often inconspicuous.
Only about 20 percent of women report symptoms such as a yellowish-sticky discharge, mild bleeding or discrete abdominal discomfort.
Even of the men affected only about 50 percent feel signs of infection, such as pain during urination, testicular pain or muco-purulent discharge.
Chlamydia can infect the urethra, prostate and epididymis.
With antibiotics such as tetracycline (doxycycline) or macrolides (azithromycin), they can be treated well.
Experts speak of a "secret epidemic" that spreads especially among adolescents and young adults.
In 2009, ECDC recorded more than 343 000 cases in the EU, especially among 15-24 year olds.
But this seems to be only the tip of the iceberg, because in many countries, including Germany, there is no obligation to register.
Thus, Germany has no figures on the exact infection rate.
An intervention study in Berlin showed worrying results (9).
Ten percent of 17-year-old, predominantly asymptomatic girls had a fresh chlamydia infection without knowing it.
In the population is little known about these infections, especially the adolescents are unaware.
A socio-epidemiological survey found that 83 percent of adolescents had never heard of chlamydia.
Even fewer (94 percent) knew about their high prevalence among adolescents (9).
This is one reason why the screening program launched in 2008 for women under the age of 25 has found little response.
In the laboratory, the genetic material of Chlamydia trachomatis is being searched for in a urine sample.
The participation in this program paid by the health insurance companies is less than 10 percent.
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Lichen sclerosus
Lichen sclerosus (LS) is one of the chronic inflammatory skin diseases and occurs mainly in the vulva area.
Also possible is a localization of the forearm, trunk or neck.
Men or children can also be affected, but women usually fall ill in the 5th to 6th decade of life.
The typically whitish-shining, well-defined foci often cause itching, tenderness, and pain during intercourse.
In advanced disease, sclerosis (hardening) of affected skin, atrophy and labia shrinkage and constriction, for example, at the bladder outlet, may occur.
What the lichen sclerosus is based on is not yet clear.
It discusses autoimmune processes, infectious (such as Lyme disease), genetic or hormonal triggers.
High potency corticoids such as clobetasol 17-propionate are the drugs of choice for all those affected.
Increasingly, calcineurin antagonists such as tacrolimus or pimecrolimus are being successfully used (off-label).
Testosterone-containing creams are not recommended because of their side effects (clitoris swelling, increased hairiness, cycle disorders).
The pharmacy team can recommend to women mild washing detergents as well as the use of lubricants during sexual intercourse.
For care are about Dexpanthenol-containing creams.
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Frequent recurrences of genital herpes
Genital herpes is usually transmitted by the herpes simplex virus (HSV) type 2 during sexual intercourse.
This is widespread with a prevalence of 60 percent in the general population.
However, gynecologists are increasingly finding HSV type 1 in the genital area responsible for cold sores.
The infection usually happens during oral-genital contact.
Herpes simplex type 1 not only triggers the painful cold sores, but is also increasingly detected in genital infections.
"HSV types 1 and 2 are now almost equally common, so that oral herpes is also of great importance for the genital disease," said urologist Professor Dr. med. Florian M. E. Wagenlehner from Giessen at a gynecological symposium in Bielefeld (3a).
Also, co-infections with both types are relatively common.
For those affected especially the first infection in the genital area is very unpleasant.
It leads to painful, partially ulcerating vesicles as well as lymphatic swelling and fever.
Only after two to three weeks do the symptoms heal.
Incidentally, HSV type 2 can also occur at other parts of the body than in the genital area.
Frequently infections are all about tattoos, because skin traumas seem to promote lesions through the virus.
Genital herpes is prone to frequent recurrences, which occur on average five to six times a year. But at least for women, the symptoms decrease with each resurgence.
The disease is not curable.
Patients who recognize the first signs for sure should start treatment immediately to reduce the severity of the recurrence.
Various antiviral drugs are used perorally, such as aciclovir (200 mg five times daily or 400 mg three times daily), valaciclovir (500 mg twice daily) or famciclovir (250 mg three times a day) over five to ten days.
Alternatively, a shorter regimen of acyclovir (800 mg bid) for two days or valaciclovir (500 mg bid) over three days is possible.
The antivirals significantly reduce the severity and duration of the episode, especially in the primary infection.
It should be noted that people with genital HSV have a significantly higher risk of contracting HIV and possibly other sexually transmitted diseases.
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Permanent guest Candida
The yeast Candida albicans is the leading cause of chronic relapsing vulvovaginal candidiasis (CRVC).
By definition, this plagues women more than four times a year, in severe cases even every month.
It is accompanied by itching, burning and increased discharge and poses a major problem for physicians.
Even during prolonged therapy with an antimycotic, acute infections can occur.
Experts assume that the reason lies in a disposition of the woman.
If the local immunodeficiency improves for reasons unknown so far, a renewed infection will not occur.
Since the candidosis is not curable, recommends the DGGG in their guideline for vulvovaginal candidiasis local or oral maintenance therapies.
However, half of the patients relapsed shortly after cessation of continuous therapy, regardless of whether they were treated with clotrimazole (500 mg locally), ketoconazole (100 mg perorally), or fluconazole (150 mg perorally).
Prophylaxis, starting with an initial dose of fluconazole (three times 200 mg per orally in the first week) and followed by a 12-month maintenance regimen at a reduced dose, seems to be most successful (10).
This meant that almost 90 percent of women remained disease-free after six months and 77 percent after one year.
Some experts recommend that for the stabilization of vaginal flora specific strains of Lactobacillus be taken either orally (probiotics) or vaginal suppositories in the vagina.
The success of these applications has not yet been definitively proven.
The vaccine against Candida albicans may offer a new option in the future.
In the animal model, vaccination against an acid aspartate protease, a pathogenic factor also important in human medicine, was successful.
It induced the formation of antibodies that protected the animals from subsequent targeted infection with Candida.
In humans, the vaccine is expected to be tested in 2012 in a first study.
Posts: 6199 | From Brussels | Registered: Oct 2007
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Calm, advise and ask
Many sufferers mistakenly assume that they are infected again and again with mushrooms, such as public toilets.
Here you can calm the women: this is not the case.
Rather, Candida albicans is a component of the natural vaginal flora in up to 30 percent of all women (11).
The reinfections are therefore probably from the own germ reservoir.
It should also be warned against exaggerated intimate hygiene, since soap additionally strains the skin, but it does not harm the fungus.
Here it is better to recommend a suitable washing lotion - or just for cleaning with water.
Although itching is a typical indication of candidosis, it is not an exclusive feature.
Therefore, the pharmacy team should thoroughly ask before delivering antifungals and send the woman in case of uncertainty to the doctor.
This applies in any case to very young or pregnant women and customers who have never had vaginal mycosis.
According to one study, only one-third of women who bought vaginal antifungals for self-therapy actually had candidiasis (12).
Posts: 6199 | From Brussels | Registered: Oct 2007
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Well, all these posts above were only translated by an online translator... But it gives the idea of the diagnosis and treatment problem.
It does seem that change in pH values may play a role, that microbiota change in the vagina may play a role too, than unknown strains (not commonly known) could be the reason...
Then I'm sure, comes the testing problem: even if you know the strain that is causing you the problem, are lab tests good enough??
Exactly like for lyme and all coinfections: even if we know we react well to lyme treatment, few people get a real positive test.
For lyme disease and parasites - many people simply treat without knowing if they have lyme or something else.
Heavy metals: same problem. First there is testing problem. Then treatment problem - which treatment is the best? No one really knows.
No one really knows if lyme is really gone after treatment, if heavy metals are gone after treatment, etc.
It's very much shooting in the dark, trial and error, unfortunately.
The important thing is to feel good again.
If it's a neuro problem, there is anyway little that is offered by medicine, except for some supportive treatment.
Are you on B12 and B supplements, good magnesium, mineral supplementation, vit D3, vit C etc?
I think the tip of the lactobacillus above could be one way to go.
As for antivirals, I would go only the homeopathic way (as drug anti virals can do damage), or the natural way (plants, teas etc).
And I would certainly do an auto-nosode with vaginal secretions - to be used topically or ingested while I keep searching for help and a diagnosis.
This belongs to the not-very known diseases.
Good practitioners are hard to find - if they even exist. Even the best practitioner won't know what to do with 100% certainty.
Do not blame the Polish doctors only: as you can see, it's not easy for anyone.
Looking around for help is good, but don't put your hopes in finding good help - more like put your hopes in finding some trial and error treatment that will work for you!
This is what I would do in your skin.
I lost faith in doctors a long time ago.
I see them as a sort of cosmetic help: if I find someone that helps, great.
I know that chances to find good help are very minimal.
So I do try to find solutions on my own, not expecting ANY help from doctors.
If help comes: great.
Like a new nice perfume, I use their help with gratitude.
But if helps does not come - like usually - well, I know my health is only dependent on my own hands and brain.
Continue looking for help, but do not place all your hopes in finding good help, if you see what I mean.
Posts: 6199 | From Brussels | Registered: Oct 2007
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I think candida yeast is easy to test for. If you're testing negative, then it isn't candida.
Don't let anyone tell you you're making up symptoms. Just means you haven't found someone knowledgeable yet.
I am not a doctor, and this practically calls for a very educated gynecologist, I guess? As well as seeing a European Lyme doctor who knows the symptoms for Europeans getting Lyme.
You have something visible, the red marks. Surely some medical person ought to be able to recognize something regarding that.
I had burning in all tissues in my pelvic area so I put myself in a swimming pool for 9 months, once a week, and stretched out all muscles, slowly. After 9 months, I had stretched the muscles, which means the lactic acid which can burn got to leave, and oxygen got to get into the tissues.
That's another theory, if your muscles are tight in your pelvic floor, due to Lyme disease using up our magnesium, which relaxes muscles. Which by the way might be a good supplement to be taking.
Posts: 13117 | From San Francisco | Registered: May 2006
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I didn't read through everything so some of what I suggest may be redundant
Were you tested for candida glabrata? I have that wonderful beast.
Join the Trying Low Oxalates group on facebook. A lot of women there have vulvodynia from high oxalates. I have learned a tremendous amount from that group. One thing is to try large amounts of biotin for your yeast. Like 20 mg. Work up very slowly. Join the group though and you can learn a lot about your issues.
Have you tried boric acid suppositories?
And there is also Gentian Violet. Really Really messy but given your pain it might be worth a try. Unlike boric acid you dont need a prescription.
Posts: 834 | From Somewhere | Registered: Nov 2010
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I mean he wanted to know why he has problems with it, and doctors werent much of a help. It was a very short relationship.![[Frown]](frown.gif)
I've got nothing. We don't have many specialis on weird vaginal cases here where I live 
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