posted
So in January I got what I thought was the flu. Doctor gave me antibiotic and after several days i started to feel better, so i thought. About 2 or 3 weeks later i started having bad stomach issues, weird nerve pain, and severe shi pain. All were very odd. Doctor ordered blood work cbc was good but liver enzymes were off, test levels were very low, and vitamin D was off. Dr. Oredersd ct scan of abdomen which came back fine. Dr. Wrote it off ass virus and just let it pass. Since then I have had extreme dizziness, ear pain, bone pain, severe fatigue, anxiety and depression. I have been to a hematologist, a neurologist, rheumatologist, and all say I'm fine. I've been tested for leukemia, bone cancer, mri of brain, nothing. Went to infectious disease and told him about all my odd symptoms and asked about lyme. He tested and all that came back was reactive band 41 and igg. He said that means nothing. Now I have swollen lymph nodes and he wants a ct scan of neck and possible biopsy. I also get random rashes that come and go, motor skill issues, metal taste in mouth, excessive eye floaters out of the blue. Just before January we were finding tics on our dogs and about a week after flu I had a odd blue gray circle on back that just went away. Can anyone give me advice.
Posts: 4 | From Florida | Registered: Jul 2018
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Brussels
Frequent Contributor (5K+ posts)
Member # 13480
posted
did the odd blue gray circle disappeared on its own or after antibiotics? how big was it?
Sorry about what's going on with you... I know it's hard to tell for sure, but it does sound like lyme (of course it could be other things too).
my best lyme 'test' is LYME TREATMENT !!: if I react with herxes (ups and downs), it probably means the infection is active.
You can buy Buhner's herbs or Jernigan formulas, or whatever you find and test (as these are herbals, not too dangerous) and still efficient.
What we care is to feel better. Waiting does no good. Looking for useless help is no good either.
Erase your name, please, it's not good to let it appear (just be anonymous!). Just in case you're looking for a job or so, I mean.
Drs are as clueless as most of us.
I think band 41 is one of the lyme bands (but it^s been so long I did the exams, that I don't know anymore).
I hope some other people chime in here.
Posts: 6199 | From Brussels | Registered: Oct 2007
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posted
Odd mark was size of a fifty cent piece, not sure how long it was there before I noticed it.
Posts: 4 | From Florida | Registered: Jul 2018
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Matt, did you get a complete copy of that Lyme test? Or did the good doc just tell you band 41 was positive?
Some of the other bands might have been -/+, which means it not enough to be positive, but it also isn't a negative. There could be more info on that test page than that doctor gave you. It's happened to others.
Anyway, never leave a doc office without your own copy of all test results.
I believe you've been on the doctor-go-round long enough. If I were you, I'd quit seeing those docs and doing their testing.
Go to that doctors office and tell them you want a copy of that Lyme test and you want want the complete report.
Your symptoms very well could be Lyme and co-infections like Bartonella, Babesia, mycoplasma etc. I bet he didn't test you for any of those co-infections.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Matt, please ready this thread. You need to remove your name from any site on the web.
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
I got a copy of test. It is just a lyme antibody imunoblot. Just list reactive and non reactive bands. No he didn't test for co-infections
Posts: 4 | From Florida | Registered: Jul 2018
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