posted
which co infection mocks this disorder usually with frequent mood swing episodes, racing thoughts, pressured speech, interrupting others, switching topics fast etc?
I also have severe derealization with the bipolar 2 issues along with crippling depression, severe brain fog and anhedonia (complete lack desire to do previously enjoyed interests)...
has anybody else experienced only neurological defects from their infection and has treatment removed those labels they were told they have or does the bipolar label remain permanent.
also off topic but curious...ive been getting up a lot of tonsil stones that ive never noticed in awhile and theyre pretty big chunks too and was wondering if lyme can cause this, my diet isnt that great as i crave sugar and processed foods. this is probably the reason just not sure, any help?
thanks, kevin
(breaking up the post for easier reading for many here)
posted
I don't think any of this is permanent - it's a matter of finding out what treatments help us.
Re the brain fog/ depersonalization part of it, I tested low thyroid, went on Armour thyroid and became present again. My doc explained it was like my body went into hibernation and I was waking it up again. So have you had your blood thyroid levels checked yet?
Also, since you crave sugar, I suggest you look up the symptoms of candida to see whether you match them. If so, it means making a plan not to feed the candida yeast in our system that wants all that sugar!
Sugar suppresses the immune system white blood cells for hours. That's why this is important.
I think if anyone's going to make a change in diet, getting informed about what to eat and not eat is needed, then to prep for it, like have only food on hand that we're supposed to eat.
It takes around 1-2 weeks to get over the sugar cravings, I think, and then it gets easier. But we have to have the right food around, otherwise we fall off the wagon again, so to speak.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
I think you'll do better when you find the treatment that works for you.
Like I went 25 years in pain, then found out I had Lyme, put myself on the rest of the only antibiotic I knew I could handle, clindamycin, and my pain went to zero in a week's time. And I was pinching myself, like wake up, this must be a dream!
So you have to keep going with trying treatments. Are you seeing an LLMD?
Some are making it with Buhner herbs. I met one guy recently who I diagnosed with Lyme and co's (! - yes, I caught him), he then self-treated with the herbs and some other supplements, he said, and he was doing great when I last saw him.
So, you gotta make a plan to start moving on this...
QUESTION TO THE BOARD: I never had the racing thoughts type of Lyme. Can any of you reply here for what helped you with the symptoms being described above here?
Posts: 13116 | From San Francisco | Registered: May 2006
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map1131
Frequent Contributor (5K+ posts)
Member # 2022
posted
Kevin's current major issue he has Medicaid and is fighting the system for SSI & disability. He has no money to see a LLMD at this time.
Kevin, In another post someone gave you some contacts to apply for some monies in charities that help folks just like yourself. You have to make the contacts and fill out the forms.
You very well could have Bartonella causing your brain symptoms. Have you had you regular doctor do a standard test from Lab Corp or Quest for Bart? Ehrlichia? Mycoplasma?
It's possible you could get some other co-infections tests to come up positive and you can force your doctor to give you antibiotic treatments.
I'm sorry you are so frightened by everything that is going on in your brain and body. It's scary and when you don't have a knowledgeable doctor to help you...it's a nightmare.
Have you made contact with any Ohio Lyme support groups? Local/city/state support groups know the area and where there's help. Someone in Ohio might know of a doctor who can help you short term who is taking Medicaid.
Please go back and look at that post in another thread on Lyme financial help. We have to be our own advocate.
Pam
-------------------- "Never, never, never, never, never give up" Winston Churchill Posts: 6478 | From Louisville, Ky | Registered: Jan 2002
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posted
Do you ever travel to New York? I know an amazing LLMD who takes insurance.
If the psychiatric symptoms are caused by Lyme Disease, then treating the Lyme will help. In the meantime, you can go to a therapist for support and I've also previously recommended to you the Bach Flower Remedies.
Posts: 241 | From New Jersey | Registered: Jan 2015
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posted
Go to an Ear Nose Throat Specialist for the throat issue. That doesn't sound like a Lyme symptom.
Don't eat any sugar at all. You will feel much better. Sugar feeds the Lyme bacteria, yeast, etc.
Posts: 241 | From New Jersey | Registered: Jan 2015
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