Topic: can anyone reassure about stem cell therapy for hip
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
My hip arthritis isn't lyme related since I had it before lyme. But I'm concerned whether it's okay to do with lyme;
I have the procedure scheduled for next week and so was searching here for people who had success. I can't find the post now where it didn't help someone at all and was in fact made it worse.
Everyone tells me who had the surgery instead say it was "easy" But I've heard of some that didn't have success with that either. I'm a big baby about surgery.
They will take marrow from my hip to use to put in joint.
I'm so anxious about this I'm thinking of asking LLMD for 5 xanax to get me through til then!!!
I'm not very good at decisions anyway lately.
Posts: 1297 | From USA | Registered: Dec 2002
| IP: Logged |
posted
People with Lyme went to India for stem cell therapy, so in answer to your question about having Lyme and having stem cell therapy, the answer is yes, Lyme patients have been doing this for over 10 years.
I guess it's your decision. Surgery is never easy. When we have surgery, we just have to go through the process. I put my mental focus on the goal, which is to feel better afterwards. So I try to stay calm throughout, reminding myself why I'm doing it.
Posts: 13116 | From San Francisco | Registered: May 2006
| IP: Logged |
posted
I know those with mastocytosis often do the bone biopsy without any anesthesia. I would be too chicken, but if that is the worst of it, you should do OK.
?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
They're using versed for me. I won't refuse it! My LLMD thinks I have mast cell activation but never been tested. I think versed is a benzo.
I did tell them that benadryl gives me anxiety and felt every poke during a colonoscopy. So they won't use that.i don't do well with antihistamines.
Posts: 1297 | From USA | Registered: Dec 2002
| IP: Logged |
Marz
Frequent Contributor (1K+ posts)
Member # 3446
posted
Ive been told that it takes 4 weeks to know whether it's worked or not. And the changes are very slow and don't always last
I'd appreciate prayers that this will be a healing procedure for me! Many thanks.
Posts: 1297 | From USA | Registered: Dec 2002
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic