Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Posting for the new members...
Abbreviations for Lyme-speak:
AB= antibody ABX= antibiotics AC= before meals AMA= Against Medical Advice ART= Autonomic Response Testing Babs= babesiosis
Bart= bartonella Bb= Borrelia burgdorferi BBB= blood brain barrier bid= twice a day biw= twice a week bpm= beats per minute
BPP= blood pressure and pulse BTW= by the way CAT= computerized axial tomography CBC= complete blood count CNS= central nervous system CSF= cerebrospinal fluid
CSW= Clinical Social Worker DC= Doctor of Chiropractic DO= Doctor of Osteopathy duck= quack doctor dx= diagnosis EEG= electroencephalogram
ELISA= enzyme-linked immunosorbent assay EM= erythema migrans EMG= electromyography FM= fibromyalgia FNP= Family Nurse Practitioner FWIW= for what it's worth
Herx= Jarish-Herxheimer reaction HBO= Hyperbaric Oxygen HBOT= Hyperbaric Oxygen therapy HLA= Human leukocyte antigens hx= history of IC= between meals or interstitial cystitis
ICHT= Intra cellular Hyperthermia treatment ID= infectious disease IFA= immunofluorescent assay IgE= Immunoglobulin E IgG= Immunoglobulin G IgM= Immunoglobulin M
IM= intramuscular IMHO= in my honest opinion IMO= in my opinion IV= intravenous keets= spirochetes KWIM= Know what I mean?
LAc= Licensed Acupuncturist LD= Lyme disease LFT= Liver Function Test LL= lyme literate LLMD= Lyme Literate Medical Doctor LMT= Licensed Massage Therapist
LOL= laugh out loud LP= lumbar puncture LUAT= Lyme Urine Antigen test MAC= maximum allowable concentration MIC= minimum inhibitory concentration of an antibacterial drug
MgD= magnesium-deficient MPH= Masters of Public Health MRI= magnetic resonance imaging ND= Naturopathic Doctor NE= neurological examination Neuro= neurology, neurological
N/V= nausea vomiting OCD= obsessive compulsive disorder OD= once daily OTC= over the counter OV= office visit PA= physician assistant
PCR= polymerase chain reaction PICC= peripherally inserted central catheter po= by mouth Port= buried IV device accessed through the skin POTS= postural orthostatic tachycardia syndrome prn= as needed pt= patient
QAM= every morning qd= once a day qid= four times a day QM= every morning QOD= every other day RIFE= electro-conducted frequency machine therapy
RMSF= Rocky Mountain Spotted Fever ROTFLOL= rolling on the floor laughing out loud RPA= Registered Physician Assistant Rx= prescription sc= subcutaneous (under skin) SOB= shortness of breath OR scroll on by SPECT Scan= Single Photon Emission Computed Tomography
sx= symptom syx= symptoms TBD= Tick Borne Disease TBI= Tick borne Illness tid= three times a day TMI= too much information
TTT= tilt table test tx= treatment UTI= urinary tract infection VCS= visual contrast survey WB= western blot
If anyone would like to add to this list, please feel free to do so!
rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
dx = diagnosis LD = Lyme Disease, I know that is obviously, but someone asked before. BBB or bbb = blood brain barrier HLA = Human leukocyte antigens IgE = Immunogobulin E IgG = Immunogobulin G IgM = Immunogobulin M
posted
I dare someone on this board to come up with a whole paragragh using almost only the above abbreviations. That will show who has the most brain power left. Not me Not me, thats for sure. Course how will the rest of us know that its legit, we'd have to spend at least a couple of hours trying to figure it all out. The gauntlet has been thrown down. Who will take the challenge?
[This message has been edited by gwen37 (edited 26 October 2003).]
Posts: 290 | From Timonium, MD | Registered: Feb 2002
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posted
Dear Melanie, Thank you for the list of abbreviations. I only knew some of them. This is a keeper! Posts: 267 | From Abbotsford BC | Registered: Jul 2003
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posted
Bryan, No, I disagreed. Sorry that wasn't clear. However, your clarifying explanation
"So, to make a long story short, if you just got Lyme Disease, by all means knock the crap out of it early with as much antibiotics as you can take."
is more what you should have said. I don't think it's a good idea to be telling newbies that antibiotics are bad. To do that would cause even MORE long-term chronic Lyme patients than there already are.
Antibiotics are the first line of attack and VERY NECESSARY!
IF after long-term usage, the patient is not MUCH better, then alternative methods should be explored. [Of course, there's the question of "how long" etc.] I think the individual will have to decide along with their LLMD.
But Bryan, please be careful about your blanket statements, and especially WHERE you place these statements!
rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
Yes, Bryan, I care...as I believe so many others do too...I can see that this is a touchy subject.
I am off all abx and doing my B3 now and can honestly say that I have slid backwards...much more pain and fatigue the #1 and #2 complaints of LD patients to my LLMD...
but, after 20 months of abx, I have said enough is enough and I will continue to do whatever my pocketbook allows me to do.
quote:Originally posted by theskyking: Antibiotics are perfect cash cows. They can be patented, so "owned. They are one-time-one-use, so each time you run out, you have to *buy* more.
Yes, it's too bad that western medicine is profit-driven instead of altruistic. But that's the price you pay for living in a corporatacracy.
Despite that, about half of the antibiotics that are used in Lyme treatment have generic versions, and can be obtained fairly easily at low cost. These include the -cyclines, -cillins, and -azoles. Treatment using one or more of these medications will cost you less than $100/month.
Based on available knowledge, Antibiotics DO work best of all the options. Until sufficient data is presented to shift that paradigm, you are only doing others harm by downplaying the importance of antibiotics in Lyme treatment.
We appreciate your comments on adjunctive therapies, Bryan, but please do not downplay a treatment modality that has proven to work for Lyme and other spirochetal illnesses.
By the way, if anyone's open-minded about treatment, it's us.
posted
Thank Melanie im all new to this it will help alot. just hope i can remember it all.
Posts: 6 | From torrington ct usa | Registered: Feb 2004
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
Here are some of my own...
NBD....No Big Deal
KMA.....Kiss My A** (Said to Duck...of course)
lol
Trout
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
This one is far better than the one brought to the top and is now above this one (well, until now).
Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
included a few new additions...
Posts: 7052 | From Colorado | Registered: Mar 2003
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luvs2ride
Frequent Contributor (1K+ posts)
Member # 8090
posted
Since the subject of rife machines somehow got on this thread, I just want to add my recent experience with microcurrent.
This frequency specific microcurrent machine is not Rife and it is not KMT although I am not qualified to tell you how it differs.
My chiropractor is using it on me for rheumatoid arthritis pain throughout my body and for a bone spur in my neck. I have had 4 treatments so far and all I can say is WOW!!!!!!!!
The first treatment I was in really severe pain that has been growing since a 2nd tickbite. 30 mins of microcurrent and I left his office painfree.
The 2nd treatment, I left painfree and full of energy. Before that I was flat out fatigued since the tickbite (see some previous posts of mine). The energy level has remained up and running and it has been 6 days since 2nd treatment. The joint pain returned within 24 hrs after both 1st, 2nd & 3rd treatment. I had 4 treatment yesterday morning and awoke this morning still painfree. As of right now, I am still painfree.
Microcurrent
I don't care if I get this current every day for the rest of my life. Worth it and safe to boot.
Actually though, that may not be necessary. According to the chiropractor it heals on a cellular level.
-------------------- When the Power of Love overcomes the Love of Power, there will be Peace. Posts: 3038 | From america | Registered: Oct 2005
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bejoy
Frequent Contributor (1K+ posts)
Member # 11129
posted
BTW, IC also = interstitial cystitis,
or the feeling of having a longterm urinary tract infection without one coming up on a regular
test, and that doesn't respond to short term antibiotics. Also known as lyme cystitis, or keets on a seaside vacation.
-------------------- bejoy!
"Do not go where the path may lead; go instead where there is no path and leave a trail." -Ralph Waldo Emerson Posts: 1918 | From Alive and Well! | Registered: Feb 2007
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Thank you thank you.
Posts: 111 | From Pa | Registered: Oct 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
up for newbies
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Thanks Melanie here is another one people may want:
PICC- periphally inserted central catheter
-------------------- RV Posts: 249 | From Healing in USA | Registered: Mar 2005
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
I can't believe I didn't have that one...thanks!
Posts: 7052 | From Colorado | Registered: Mar 2003
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Here's one I missed on the list:
TOA.. what does that mean?
Posts: 1127 | From atlantic city, nj | Registered: May 2008
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Up for our new members
Posts: 7052 | From Colorado | Registered: Mar 2003
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
This list is very fun! One abbreviation that I use is IDK (I don't know).
Thank you for reviving the list.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
TOS = Terms of Service
LLD = Lyme Literate Doctor (shorter and more efficient than LLMD!)
TTFN = Ta Ta For Now
TTYL = Talk to you Later
BBL = Be Back Later
BRB = Be Right Back
WTH = What the hell
STFU....you will have to figure that one out on your own.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
quote:Originally posted by Tracy9:
STFU....you will have to figure that one out on your own.
I think I figured that one out and I never, ever swear. Now I can cuss in a "secret" code. LOL!
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
ON = Optic Neuritis
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
By the way, baby guinea hens are keets too, and they eat ticks!!!
Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I'd also like to state for the record that I've used the term "duck" to refer to physicians who were uninformed about tick-borne disease and certain that they knew all they needed to know.
They may not have been "quacks" per se, but they DID inflict emotional harm through their ignorance.
Some were guilty of mistreating or misdiagnosing tick-borne diseases as other ailments but I realize now that their grossly negligent educators may have played a role in that.
Of course that doesn't excuse the ones that dismissed my attempts to rationally discuss the possibility that I had been inadequately tested or improperly treated.
Anyway, IMO - "duck" would refer to a "quack" SPECIFICALLY pertaining to TBDs. They could be a good physician otherwise, but that's not really important when you have multiple co-infections & you're told it's now "Fibromyalgia" because you had 2 weeks of Amoxicillin, now is it?
It's really just used as a means to vent frustration & hostility caused by futile physician interaction.
I just felt the need to clarify my usage of that term, since I bumped this up.
Thx (Thanks) for listening.
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
Hey Miss Ali,
How very PC of you! I don't think I have actually used that term once here, but I do understand why others would chose to.
At the beginning of my wild adventure, and before I educated myself... I had an encounter, as I am sure most of us have, with a treating physician that not only refused to acknowledge the possibility of TBDs in Colorado...
refused to look at my positive test results in hand...
decided to misdiagnose me...
wrote in my charts that I was experiencing 'Anxiety Disorders' (which of course explained why I couldn't breathe)...
lied blatantly to me about ordering new testing...
AND then made up the results! (I have the proof)
Now, to me... that pretty much meets the criteria of a Quack!
Fortunately, I had this Network to turn to and all the wonderfully helpful members to mentor me along. Unlike others who suffered personally, or watched helplessly while their loved ones suffered, for years on end needlessly while their 'treating physicians' refused life saving interventions.
So, the way I see it... if they want to call that physician a 'duck', well... who am I to say it isn't well deserved for what they experienced?
It is one thing to be misinformed, that is understandable and fixable. It is something entirely different to be intentionally negligent.
Posts: 7052 | From Colorado | Registered: Mar 2003
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