posted
I think I asked abt this before, but can't remember folks replies... and search isn't working
My blood pressure is dropping really low again, lower than before 84/60....
Got a message into my LLMD, in the mean time, can others please share their experience with low blood pressure issues. What made it worse or better, how did things get resolved?
posted
anyone?
Posts: 663 | From NH USA | Registered: Sep 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Are you keeping yourself well hydrated? Blood pressure gets lower if you are dehydrated. It's not a "solution" but it may make it somewhat better.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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Jellybelly
Frequent Contributor (1K+ posts)
Member # 7142
posted
Hi Achey
I have had low BP most of my life. If I am herxing to severely it drops to the floor and is difficult to even find with BP cuff. Makes me very weak and light headed/black out. If it isn't bothering you, I don't think it is much of a problem. No doctor ever was very concerned unless they couldn't find it at all.
Besides drinking plenty of fluids, not just water, try increasing your salt intake. Helps to keep the water in and can raise your BP small amounts.
posted
I had a positive tilt table test and was consequently diagnosed with neurally mediated hypotension (low blood pressure). This is common in lymies.
I take florinef and it really helps.
Drink lots of water, use salt liberally.
Avoid standing for long periods of time.
Avoid heat. Eat small meals frequently, hypoglycemia and low blood pressure often go together.
Minimize stress.
Posts: 925 | From California | Registered: Sep 2004
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quote:Originally posted by achey: I think I asked abt this before, but can't remember folks replies... and search isn't working
My blood pressure is dropping really low again, lower than before 84/60....
Got a message into my LLMD, in the mean time, can others please share their experience with low blood pressure issues. What made it worse or better, how did things get resolved?
Thanks!
I've had low blood pressure since I was a teenager. Even when I was very overweight my BP was low. Now my weight has much improved but my BP is still very low. I have a BP cuff at home, and my average pressure is 82/62. Salt does nothing to raise it. I've tried taking salt straight from a spoon and measuring my pressure. No effect on my BP. All I learned is that large doses of salt are hard on the GI system!
The one thing that does raise my blood pressure (to about 105/75) is Provigil. But I don't like to take that very often because it can make me feel jittery. Sometimes I think the low BP of chronic Lyme is sort of like a chronic state of low-grade septic shock, if such a thing is possible. I'm betting nitric oxide is involved somehow, but I don't know how to fix it short of being cured of Lyme.
Posts: 78 | From Northeastern USA | Registered: May 2004
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I, too, have had low blood pressure during my illness...at my lowest it was 84/63 - I was petrified because my BP had always been consistent and in the range of 120/80 - rarely deviating.
It turned out I had/have Lyme, Babesia, and Ehrlichia hme and hge...only thing that has helped for me has been the antibiotics. When I herx it soars up to 145/90 - and it fluctuates all over...
Lately in the last couple months I have seen some big improvements and it is a bit more consistent...
I am still new here so I don't know your story and if you have been treating with abxs for awhile or not...
Take care...
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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posted
Thanks DL, ddulcamara, and lymied... My Bp was up again the other day to 119/70 after going to curves... I hoping the herx is over. it's interesting lymied, that your bp goes up with herxing..mine seems to go down.
DL, the avoid standing thing, is that because of pooling blood? went for a walk tonight, and got kinda wimpy weary and needed to sit for a bit afterwards.
dulcamara, I'm curious abt your theory abt a chronic state of low grade septic shock...that really makes sense to me, as one of my most severe herxes left me in a septic shock state for a period of hours one day this winter.
Lymied, I got dx'ed in Oct, after 30+yrs of chronic health problems. LLMD started me on Iv right away to get through BBB due to neurolyme and encephelitis. I had also had lyme heart/lung and vagus nerve problems, bell's palsy, seizure, etc...the whole shopping cart, but I was still walking..into walls.
I did 12 wks IV zith, then clinda 4wks, 4 more weeks w/ tinidazole, and now 3 weeks into IV clinda 5 day/wk, IV zith 2 day/wk, and oral mino 100mg every other day.
I also do many oral suppliment, and weekly IV suppliments of meyer's cocktail, phosphtidial choline, and glutethione, alternating with lipoic acid... And I get 2 hours of Integrative Manual therapy treatment each week...
So that's the story... I wish it was different, and I miss work and life...I lost all of last week to a wicked herx and encephelitis...
Doing better since late friday...I hope this is a good week. I'm glad for everyone's sharing...Thanks for teaching me!
posted
Blood pooling is part of it. Compression stockings/socks can help.
Also lying down for a while with legs raised higher than your head can help you feel better if you've over done it.
In my case, NMH, I experience orthostatic intolerance, meaning standing for any length of time is hard for me. I don't know if you have this, but something to consider.
Posts: 925 | From California | Registered: Sep 2004
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WildCondor
Unregistered
posted
Have you had a tilt table test? That can be a HUGE part of your diagnosis. Treatment for hypotension can involve several things. It depends on what your tilt table test shows. A tilt table test is done by a cardiologist.
You may need beta blockers, florinef or both. It depends. In the meantime, you should drink lots of water, avoid dairy, avoid prolonged standing, elevate your legs, avoid heat in all forms, sit during the shower on a chair, and add salt more into your diet.
Get that tilt table test! You can read more about it on my lymelinks page! Good luck!!
posted
thanks wildcondor...no haven't had tilt table test..BP seems to be doing a bit better with herx clearing 116/66 yesterday at walmart..
today I felt absolutely fantastic!
no dizziness...completely scrubbed down my bathroom, did some sewing went to curves.. I did exercise really easy, but I had so much fun just being today.
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