LymeNet Flash: Eagles Syndrome???

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Eagles Syndrome???

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Author

Topic: Eagles Syndrome???

wiserforit
LymeNet Contributor
Member # 9732

posted

Has anyone heard of Eagles Syndrome?

I went to an ENT because I couldn't tell if my sinus pressure was Lyme or allergies or both.

I have had this hard pointed lump growing behind my left tonsil for about 9 years. No ENT has been able to find it even when I point it out.

So this new ENT reaches in behind my tonsil, feels the spike and says, "Oh...that shouldn't be there." And calls her partner for another check.

They get all excited and tell me I need a neck exray to view my "styloid process."

I look up styloid process and Eagles Syndrome when I get home. The styloid process is a bone that extends from the back of the skull forward. The Syndrome is when the end of that bone calcifies and gets too long.

When this happens it can protrude into the throat....causing glossopharyngeal discomfort, migraines, sore throat, dizziness, caratodinia... to name a few exciting options. I have all of those symptoms along with my regular Lyme menu.

What's more...the bone looks like a tusk. OMG I have an inner walrus trapped inside me!

I go for the xray tomorrow. This is too weird.

Anyone heard of this?

wiserforit

Posts: 508 | From Banks of the Hudson | Registered: Jul 2006 | IP: Logged |

bettyg
Unregistered

posted

tori,

i went to www.medlineplus.org to find it listed there! they have REDONE their layout and deleted SEARCH! [cussing]

it wasn't listed in their a-z illnesses. sorry! good luck! Bettyg [group hug]

IP: Logged |

shazdancer
Frequent Contributor (1K+ posts)
Member # 1436

posted

Betty, the Medline Plus search box is now up at the top of the web page, almost blended into the blue bar.

Also, a pretty neat health search tool is Healia:
http://www.healia.com/

Here's something on Eagle's Syndrome from the NIH:

Office of Rare Diseases, NIH

Also on MedTerms:
Eagle's Syndrome

Here's a case report with pictures:

http://www.dirjournal.org/text.php3?id=48

Hope that helps,
Shaz

Posts: 1558 | From the Berkshires | Registered: Jul 2001 | IP: Logged |

treepatrol
Honored Contributor (10K+ posts)
Member # 4117

posted

Bone overgroth in lyme wouldnt surprize me at all.It throws the whole body into a tizzy.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003 | IP: Logged |

wiserforit
LymeNet Contributor
Member # 9732

posted

shaz!

Thank you so much for the website info on Eagles Syndrome! The case study with pictures is extremely helpful.

Maybe this will put some of my migraines and earpain to rest... should I chose surgery... another big decision, eh?

bettyg and tree --

thank you for your replies, too. Isn't this strange? it seems like since Lyme, I only get odd stuff -- nothing straight forward.

xray today. I can hardly wait to see what the darn thing looks like!

Best to you all,

wiserforit

Posts: 508 | From Banks of the Hudson | Registered: Jul 2006 | IP: Logged |

bettyg
Unregistered

posted

shaz, thx for telling me where to find it as i looked for 20 minutes!! [group hug]

i even sent webmaster a note asking them to bring it back.

they sent me a survey while on there so i completed it as well; they just must have REORGANIZED all of it!

IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Well, I heard of it only recently. When I was in the waiting room for my sinus surgery, the lady next to me had a daughter who was in surgery with the Eagle's Syndrome.

She was a singer and the surgery would help her be able to continue singing!!

I hope if you have surgery it will help SOMETHING!!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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