Topic: I can't believe how much my Head Hurts. I give it a 20 on a 0-10 scale
lymetwister
Frequent Contributor (1K+ posts)
Member # 19590
posted
Is this a migraine ?
I have had headaches all along while treating, but never this bad.
I can't even pinpoint where it hurts as it's my entire head, or so it seems.
I've had Ice packs on it, which help a little, but that brings it down to a 15 over 10.
I tried Coq10 200mg, L-Lysine and tons of water, these are the things that usually help when I get a headache.
I didn't even bother with Tylenol or the like as these have never worked with my Lyme headaches.
I'm thinking that submurging in the Hot Tub 2 days ago has something to do with this. I hope this is not swelling of the brain.
It even seems to be messing with the rest of me like the weakness and fatigue I've had the last 2 days. My CNS feels like it is gone.
My forehead feels like it is 110 degress but temp is only 97.0 and I'm chilled.
Looking at the clock and can't wait for the 9 O'clock hour so I can try and sleep this off.
I'm gonna ask my LL Neuro Doc. for a chemical coma until this crap is gone. I'm kidding and serious at the same time.
The worst part for me with this disease is having two kids that need you and you can't be there for them like you want to be and should be. I know it's not my fault, but it kills me not to be able to take them to Disney World and the like.
They are just 6 and 8 and I have time to get well to do all of that stuff, but in the mean time until I see the light, I can't help but think I'll be like this forever. I just hope and pray and try to stay pos. that the light will soon come.
I just had my kids out 5 days ago at the park. I didn't feel great, but was able to shoot some basketball with them. The next day, I took them to a movie and was hanging out with them at my pool.
I can take the pain, as I'm stoic. I would think most people would be jumping off a bridge by now. I know many of you go through similar and in the end, we will be the strongest people alive. I can't think of any other illness, disease, or even a life event that could suck the life out of you like this disease does.
Catch you all later,
LT
Posts: 1227 | From District of Columbia | Registered: Mar 2009
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
Magnesium sometimes helps my headaches, I also take Zomig which the headache specialist prescribed for me years ago, before I was diagnosed with lyme.
It gets me over the rough spots. It's similar to Imitrex I think.
The headaches are the pits, the worst my symptoms by far. I hope you get some relief soon.
Take care.
Linky
Posts: 2607 | From Hooterville | Registered: Apr 2009
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posted
I am so sorry that you have such a terrible headache. I too get those headaches and nothing helps except sleep, if I can actually fall asleep.
I am very new to lyme and just had my PICC put in last Thursday. This was my first real treatment.
I just wanted to say I understand where you are coming from about your kids and wanting to be there for them and do things with them. I feel the same way. I have 2, they are 8 and 18 months. I feel terrible when I can't do the things that they want me to do.
I am the same way as you...I can do many, many things some days. We go to the park, mall, play dates, etc...and some days, I can't do anything. This disease really does such the life out of you sometimes.
We are definitely stronger than most people know. At least we know that we will get better and we won't be like this forever. It's really something that you have to believe in.
Hope you feel better soon!
Posts: 114 | From Atlanta, GA | Registered: May 2009
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
My girlfriend suffers from chronic lyme headache. She suffers a lot and the only thing that help just a little is pure codeine without the tylenol. You can get codeine sulfate or if you are intolerant to sulfates you can have it compounded with phosphate. She hasn't tried the stronger narcotics yet even though she feels like she would need to sometimes. She tries not to take the codeine every day cause she's afraid of the rebound pain and addiction but it does help some when she take sit
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I also suffer from chronic lyme headaches. Daily. What really helps is when I go to PT(weekly) and she works the knots out of head, neck and shoulders.
It doesn't make them go away forever, but it does help.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
posted
Headaches and stiff neck are my main problem. Daily for for 9 years.
Every so often it really flares and I get the headache that is off the charts.
Something I have tried in the past few days is a west nile tea. My doc put this together for me and said its supposed to help with the meninges.
I have had meningitis twice in the past 3 years and he believes my meninges are always a bit inflamed.
He said to drink 10-12 cups per day and I may get some relief in about a week if I stay with it.
If anyone would like to recipe (its very simple) PM me. I am not sure if its ok to post here so to be safe PM me and I will send.
Posts: 9 | From colorado | Registered: Jun 2009
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bettyg
Unregistered
posted
just stopping to give a and to all of you suffering so much!
i had some; but NOT long term. also, when i got them; my AXIS was off in my prescriptions lenses; i have 4 different pairs ... each for their own thing; with my HIGH RX, made a world of difference for any of you who wear glasses! best wishes! hugs
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Ive had a headache for 4 weeks since starting treatment. Everytime I take antibiotics it seems.
Sounds like migraine but hey maybe its time to get your head examined, no really, dont fool around if you have brutal headaches lasting so long. I waited 2 months last time before getting an MRI, the news was startling but like you said nothing sucks the life out of you more than this disease. The lyme still takes the cake.
I love the IV valium idea!
[ 06-24-2009, 12:24 PM: Message edited by: MarsyNY ]
Posts: 465 | From New York, NY | Registered: Aug 2005
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![[Frown]](frown.gif)
I too get those headaches and nothing helps except sleep, if I can actually fall asleep. ![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
and ![[kiss]](graemlins/kissing.gif)
to all of you suffering so much!
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