posted
Hi, How many are bothered by this. It is so weird you just can`t do a thing but aware. Almost as semi-comatose. Aware just unable to even get to bathroom when you have to sooo badly.
Actually on few my surveys it asked. I was quite surprised question was even thought of. Think this in our list of 100 more symptoms...blah-blah-blah. Hard to keep up with them all. sure you know just 1 leaves for awhile you get 2 more. Until 1 returns I even forget when Dr. asks say no until get home & remember. All can do is laugh, really bad few weeks, feeling really alone most fam. even after worked 15+ YRS. for IV rocephin. Only to be dropped after all seemed to do is stir up buggers would not follow up. None believe in continual back up. I have been to all can afford here. Only live on 400.00 mo. heck my maint. fee for condo is that flippen much. haa
Got to just keep going on my many herbals, & about 7 band aid meds for FM, other co-infections. Am in late stage Lyme barely can take shower. Tuff alone for many of us who are.
Got off track as usual, just wanted to know if any suffer this??? Your story..... we all need XTRA. Kerry
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
Kerry,
I'm soooo sorry you are having this! It's been about a decade since I had sleep paralysis (I actually just found out the technical name for it).
It was terrifying for me! The first time it happened, I thought, "Well, this is it. This 'thing' that has happened to me is finally going to kill me."
I've spoken with other Lyme patients who have had this happen too. Of course I was told it was CFS...and of coure sleep paralysis is a symptom of 'CFS'...grrr!
Again...I wish I could tell you how to make it go away, but for me like every other Lyme symptom, it came and went. I am petrified of getting this symptom back though...I really really hope I don't!
posted
Hi, Ocean thanks for reply. I know many fmer`s or Lymies, have experienced. Mine gets worse, when wants to. No, 1 really gets it or if with people so embarrassing just think being unfriendly(so far from me). Or just using as excuse. ha, I wish.
Glad you are not experiencing now. Hope does not return but as we well know. NO Guarantees. I have least 99 of symptoms, except hair loss. Guess something to find to be happy for. Yet, soon as say this could start. When dad died & I pushed myself way past my limits to take care mom & dad both. Went way past my limits. Huggggss, Kerry
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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posted
I felt exactly like Ocean when it happened to me...I was certain that I'd die by the end of the year if I didn't find out what was wrong with me.
Posts: 975 | From California | Registered: Apr 2007
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Starfall1969
Frequent Contributor (1K+ posts)
Member # 17353
posted
I get that off and on, but I've always understood it to just be a natural phenomenon for some people. Nothing to do with Lyme or any other disease.
Unless it's happening frequently.
I know some people go through sleep studies to rule out any problems (I can't afford that, personally), but usually docs just brush it off as normal.
It is scaary, though.
Posts: 1682 | From Dillsburg, PA | Registered: Sep 2008
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posted
Hi, Lasts Grandmother, can last good part day sometimes. Know you have to pee, is problem, feel like with Lyme this also makes life just past me by.. Unable t answer phone +++.
Not sure may not be linked with Lyme, or FM/or CFIDS/ebv/CMV/ All many co-infections or related as cancer has diff. names still under cancer. What is diff. I feel like I am going into sleep paralysis right now. Can happen any time day rarely nighttime??? Any others, wish to here your opinions has to be more?? No real explanation for????
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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