posted
I was a confirmed case of Lymes last summer 2008.
I did doxy treatment for 2 months.
Now I'm worried I might have Lyme again/it never went away. I have more of the muscle, Neurological System, Respiratory and Circulatory System, Ringing in ears...etc.
What is mostly bothering me is a high heart rate/anxiety.
Is it possible my Lyme did not go away the first time?
I just moved from MN to ohio as well.
Should I get retested?
Posts: 14 | From OH/MN | Registered: Sep 2009
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posted
It is very possible you were under-treated. If you are still having symptoms, it's likely you need longer treatment. No need to retest, you already know you had Lyme, that you were exposed, the symptoms are still there.
You should find an LLMD near you. Post in seeking doctors and someone will send you a list of docs.
Check out the Dr. B treatment guidelines at www.ilads.org
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
Yeah when I stop testing with Igenex. Works every time.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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WildCondor
Unregistered
posted
Testing doesn't mean anything, you have to go by your symptoms. Most likely it never was treated properly, your doses were too low and it was not long enough!
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posted
Kate.. did you post over in Seeking a Doctor?? Someone will help you find a dr in your area. Ohio is not known for its LLMD's though.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
How long had you been sick before you started taking Doxi ??
How much Doxi were you taking per day ? --Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Kate with heart symptoms you should be seen right
away. There is usually a wait to see LLMD's right
now. It may be possible to get in to someone who
will treat long enough to get to LLMD. Most doc's
do not know the borrelia have the ability to act
like syphilis and not be cured because it can
protect itself. LLMD's do. While waiting you can
get copies of all your tests and any pics if you
had the rash to take to your LLMD.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Test no matter where they are given are very faulty on the side if neg. You need to get on abxs then after a 5 days get tested that will free up antigens and kill some spirochetes which will let the pieces dna show up in blood and urine if infected enough and it sounds like you are. Recommend good LLMD and Igenex testing.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by WildCondor: Testing doesn't mean anything, you have to go by your symptoms. Most likely it never was treated properly, your doses were too low and it was not long enough!
That Too!
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
I had a western blot and tested posititve for borrelia bands 23 & 41 which was interperted by Lyme IgM WB as positive but IgG as negative (only 2 out of 5) but they considered this a positive test overall.
That plus my 2 pictures of my leg definitely made it positive.
What do you guys think? I think I have a good LLMD list to try to start from...
Posts: 14 | From OH/MN | Registered: Sep 2009
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Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Good Job on the pics. Get to someone right away for more meds with heart symptoms and then to LLMD.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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