i wanted to ask how long did u treat bartonella until u got rid off it?!
i have henseale for sure and i think BLO.. treating with tavanic and bactrim ds.
im now on my 3rd month and im better, but i thought it will improve faster?!
burrascano says 1 month minimum and then something about 4 months or longer.. ?!
thx for answers
greetz
Posts: 371 | From velocity of light | Registered: Sep 2009
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nefferdun
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posted
I am still being treated and I think a lot of people are, so that is why no one has responded about how long it takes to cure it. My LLMD told me Levaquin could wipe it out in three months but Rifampin takes longer. I was on Levaquin 5 weeks then could not tolerate it or any abx and went on herbs for 8 months. I have been on Rifampin for 3 months. As there is not much improvment I think it will be a long time from now before I am completely well.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I treated it for about 9 months initially. Then, I had a symptom flare-up from the seasonal flu vaccine and am re-treating. This time, it took less than 2 weeks for my symptoms to go away, but I'll probably keep treating for another 2 months, or so just to be sure it's gone again.
I think it depends on how high of a load you have.
Lymers
Posts: 287 | From Humboldt County, CA | Registered: Jul 2009
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I treated 2 times so far. First for 8 months with Rif/Zith combo and then again with the same after I took a break and relapsed. I am still in tx after 8 months but switched to pulsed Factive to hopefully finish this time!
Posts: 476 | From Columbus, Ohio | Registered: Aug 2007
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blinkie
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Lymers-what is your treatment?
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
I only treated for 3 months rifampin/ceftin and most of the symptoms went away. Stopped early (mistake) and it came back in two weeks, trying a different combo. Bart is pure evil when it comes back, going to zap it this time I'm sure.
Posts: 501 | From Cleveland Ohio | Registered: Apr 2009
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I am currently taking Moxatage ER, zithromax and rifampin. I may be adding grapefruit seed extract soon, as well.
Lymers
Posts: 287 | From Humboldt County, CA | Registered: Jul 2009
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17hens
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Member # 23747
posted
my symptoms are very much bart too: fatigue like flu, heel pain, sometimes chills and headache. my GP treated for lyme with IV ceftriaxin. I had only 6 days of treatment (as my insurance said they wouldn't cover due to no positive blood test) but I've been feeling great - no more fatigue! can ceftriaxin get rid of bart?
-------------------- "My flesh and my heart may fail, but God is the strength of my heart and my portion forever." Psalms 73:26
bit 4/09, diagnosed 1/10 Posts: 3043 | From PA | Registered: Dec 2009
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posted
rid off not, because barts are intracellular, and ceft isnt working intracellular, but it can supress it, i had the same effect, but only for 1 day
Posts: 371 | From velocity of light | Registered: Sep 2009
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posted
Generally Levaquin will kill off bart within three months. After trying Rifampin and Bactrim, I switched to Levaquin and did the full three months.
About six months later, my bart symptoms returned.
So now I'm doing Cipro for at least three months, maybe more.
Posts: 398 | From By the Salish Sea | Registered: Dec 2008
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CD57
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I think it may have to be treated (I read or heard somewhere) 3-7x??
Posts: 3528 | From US | Registered: Apr 2007
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nefferdun
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CD57, do you mean 3-7 months or 3-7 times after stopping treatment? I agree that is much worse when it comes back - so much harder to get rid of, so it is a very good idea to be absolutely sure it is gone before you quit abx.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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Tracy9
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I've been treating it for 2 1/2 years and my titers just doubled.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
Treated my Bart for 14 months until I reached remission.
Enjoyed almost 8 months of no Bart symptoms and now getting some odd symptoms back that are not necessarily bart (could be lyme), but needless to say back on abx.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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lpkayak
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it doesn't sound like anyone is getting rid of it no matter what they do-it keeps coming back
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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posted
My daughter has been treating Bart w/Rifampin and Zith for close to 7 months now, and her Bart rash is only now possibly starting to fade--it is hard to tell for sure, but I think so.
She had a huge improvement though in her fatigue within 6 weeks of starting the Rifampin.
Posts: 648 | From northeast | Registered: Feb 2009
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blinkie
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Well since everyone is sharing how they "didn't" get rid of it...I'll share.
First, I did 3 months of rifampin and zith and never got totally well.
I did 2 weeks plus 9 days of IM gentamicin with 28 days of doxy and it's not gone. I never got to 100% with this either.
I also did 2.5 months of bactrim and rifampin and got 100% well. Three weeks after stopping the symptoms came back, as did a case of C diff. Now my treatment options are limited.
I wish I could get on rifampin and septra and take them for like two years.
Posts: 1104 | From N.California | Registered: Jan 2008
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posted
Please tell me that SOMEONE out there has gotten rid of this coinfection. What about people like WildCondor or Dr. B. that have recovered? Did they have bart? Maybe those with bart can never get rid of it? I sure hope not!
Lymers
Posts: 287 | From Humboldt County, CA | Registered: Jul 2009
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-------------------- ? date of bite/no rash 10/09 symptoms, 4/10 diagnosed, after 6 mos. ER visits, tons of docs/tests CDC+ 23/39/41/45/58/66/93 currently on oral plaquenil, doryx, rifampin, pyrazinamide, nystatin, numerous supplements Posts: 718 | From Pennsylvania | Registered: Jun 2010
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bcb1200
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posted
TF Has in 3 months I believe
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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Leelee
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Member # 19112
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So far I've been treating for a year and a half and I don't see any end in sight.
But, I am still optimistic. It beats not treating it, that's for sure.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
Seems I have read that once you find a drug or combo that knocks it down and you feel well you should continue it several months to give it the final 1-2 knockout. Of course everyones immune system is different so what works for one may not for another.
Posts: 805 | From Utopia | Registered: Feb 2006
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