posted
Does anyone have Paget's Schoeder's disease with lyme? It is a bone condition that causes similar bone and muscle pain. Can be caused by a virus or bacteria. I am getting tested for this too. Blessings
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
my cat scan showed i might have it. they did th blood tet and it said no. but there is no explanation for why the bone showed like i had it onthe cat scan.
it has to do with calcium metabolism i think an your para thyroid
please post what your results are and anything else. i am very intersted
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
| IP: Logged |
posted
I am getting serum alkaline phosphate heat stabile and heat labrile tomorrow as well as PTH and calcium again. I will let you know. I had a nuclear bone scan done 1 yr ago for frozen houlder for RSD possibly and i had 3 areas of re uptake activity. They never brought it up then tho. But now revisiting it. Lyme is obviously the agent that triggers butr if I have it would lke to try the biophosphinates for pain. Have you tried anything like that? Did yours show areas of activity?
Posts: 871 | From orange county, ca. | Registered: Jan 2006
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic