posted
I've just started this journey and I'm so glad I was referred to this website! What a blessing!
I had a Western Blot test that came back Negative in January. My CD57 came back at 51.
My General Physician ran every possible test for other diseases and everything came back negative.
How long should I wait until I get another test done?
Is there anywhere that has a reliable test other than Igenex? I'm not wanting to spend tons of money until I'm forced to as a last resort.
Thanks!
Posts: 7 | From Coeur d' Alene, Idaho | Registered: Mar 2010
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massman
Unregistered
posted
Lyme is a clinical diagnosis.
You do not need a lab test to confirm it.
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WildCondor
Unregistered
posted
Here are some links for you but Massman is right, Lyme diagnosis is clinical. The testing doesn't rule out Lyme at all. Did you get bit by a tick?
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
The above posters are right.....Lyme Disease is a clinical diagnosis! The test are used to back up a clinical diagnosis. Only a good Lyme doctor can make that diagnosis.
Do you have a Lyme literate doctor(LLMD)? If not go to seeking a doctor section.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Well, were you tested for HHV-6, EBV, and Cpn at Focus Diagnostics lab? How about enteroviruses at ARUP lab? Those are often overlooked, and can cause the same symptoms as lyme.
posted
No, I didn't get bit by a tick (at least that I remember).
My Western Blot came back negative in January.
My doctor also tested for EBV, MCV, Rheumatoid arthritis, thyroid, and vit. D diff. All of which came back normal.
My CD57 test came back at 51.
My symptoms are: Ringing in my ears Sore throat Nasal Congestion Headaches Blurred Vision Stiff Neck Joint popping/pain in my fingers Bad Breath Bleeding Gums Forgetfulness, poor short term memory Speech errors, wrong work Mood swings, irritability, depression anxiety Acne Bumps/sores on skin Extreme Fatigue, itred Insomnia Nightmares- recurring dreams Weight loss, appetite loss Hair loss Loss of libido Constipation and Diarrhea Yeast infections
This list covers all my main symptoms.
Here is my next question.... if my Igenex test does not come back positive, where do I go from there? How many doctors will actually treat you if you do not have a positive test?
Posts: 7 | From Coeur d' Alene, Idaho | Registered: Mar 2010
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massman
Unregistered
posted
Clinical diagnosis = your history, signs + symptoms. No chemical testing. Find an LLMD or LLND with a heart + a brain that will treat you. Must be ILADS trained.
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