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» LymeNet Flash » Questions and Discussion » Medical Questions » Who's done d-Ribose supplementation for fatigue?

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Author Topic: Who's done d-Ribose supplementation for fatigue?
MariaA
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My holistic LLMD wants me to try Ribose. I also heard great things about it from an acupuncture doctor with Lyme who's on Lymefriends, who sometimes treats Lyme patients. It did nothing for another friend of mine with a mystery fatiguing illness.

I finally read Teitelbaum's book From Fatigued To Fantastic- the latest edition, and did a search to see what people had to say about it here- it got mixed reviews ,with some people posting really negative reviews of his program.

The book lumps fibromyalgia and chronic fatigue patients into a loose category, emphasizes that they probably have a wide range of underlying causes (such as infections) for their illness, and then focuses on adrnal and thyroid support, SLEEP support, and talks about infections such as Lyme and others. Anyway, his sleep support/energy support protocol includes ribose.

I was curious whether anyone's had good results with ribose supplementation, how much you took, what you were aiming for, and what other supplements you were taking with it.

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

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Keebler
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I loved it. The only reason I stopped was due to the cost.

At first, it made me sort of speedy but I cut the dose way down and then worked up to a normal dose over a couple months' time and did fine.

It really helped with endurance and I felt less like passing out all the time when I was standing for more than a couple minutes. It seemed to be a good nourishing thing - not like a chemical that had a reaction but like a good food. It was not the cure for fatigue that I had hoped but I did get a sense that it was a good support.
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MariaA
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Oh- one more question for everyone:

If you were doing this, how was your sleep? were you sleeping "normal" hours or doing that Lyme-insomnia thing where you're wide awake till late at night but tired in the daytime?

thanks Keebler!

--------------------
Symptom Free!!! Thank you all!!!!

Find me at Lymefriends, I post under the same name.
diet: http://lymefriends.ning.com/group/healthylowcarbrecipes
Homemade Probiotics thread
Herbal Links Thread

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Nutmeg
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Hi Maria,

I don't remember to take it often enough, but it does seem to help with fatigue and muscle weakness, and endurance--by which I mean being able to stand for more than a few minutes, etc.

I've not noticed whether or not it helped with sleep, specifically. I'll try to pay attention to how I sleep when I've taken it that day.

My DC says it needs to be taken in sufficient dose before it has any effect. One scoop 3X a day of the powder stuff I have.

Nutmeg

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karenl
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Did not really work for me, probably sugar is not good for me.I read D-ribose can kill viruses.
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BoxerMom
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If you decide to try it, get the Corvalen brand. Someone who did lots of research on D-ribose found that all the supplement companies purchase the Corvalen brand for the raw material, then add to it (minerals like Mg or just fillers) to create their own products.

I took the Teitelbaum recommended 5 grams 3x/day with amazing results. I've known others who had no results. I don't know what dose they took.

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 - Must...find...BRAIN!!!

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Keebler
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Maria,

I would not take d-Ribose past 3 pm or so as to not interfere with slumber.

BoxerMom, thanks for that note. I remember doing much better with Corvalen but then the cheaper brands didn't do much. Corvalen was just out of my price range so I never went back to that.

Actually, adrenal herbs (Ashwaganda, Eleuthero and a little Rhodiola) worked better for me and I felt I got more for my money and something from closer to the earth.

For the heart, Hawthorn is very nice, indeed. But the thick extract is best and that's pretty pricey, too.
-

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Hoosiers51
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D-Ribose didn't help me at all...in fact, I think it made me more tired after taking it.

I didn't take it very long, since every time I took it, I seemed to feel worse than before taking it.

From what I hear, if it's going to work, you notice it pretty quickly, so I didn't feel bad about stopping it and not giving it a month or more to work.

I thought it was very strange that it seemed to make me worse....I used the Researched Nutritionals brand. I would not recommend that brand because it seemed expensive for Ribose. Mine was a powder.

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karenl
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Hoosiers,

it might be a problem for people with insuline intolerance as it is a sugar.

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BoxerMom
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It's a five-carbon sugar, unlike glucose, which is six-carbon. It is metabolized differently.

I have extreme glucose intolerance, and I did fine on 15 grams/day.

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 - Must...find...BRAIN!!!

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sparkle7
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(PS - this is from a blog I researched...)

FYI - http://forums.ebay.com/db2/topic/Health-Beauty/Anyone-Ever-Used/1000639058

Anyone ever used Corvalen?
Feb 12, 2008 10:45 AM

Just an FYI.. I did some digging. The D-Ribose IS the product, being sold with brand name Corvalen. I made some calls because I found so many others for sale as "D-Ribose" and wanted to know the difference, if any.

The difference is this..The original "Corvalen" is produced and sold by Valen Labs/BioEnergy, which is 100% D-Ribose. Some other companies have purchased the product in bulk, and repackaged it.

Some have added fillers/substitutes/etc so the product is not 100% D-Ribose. One I found that IS 100% D-Ribose is being sold by a company called Nutrabio.Com

I just ordered a 500 gram jar from them after verifying with Valen Labs that they do purchase from them and with Nutrabio that it does not have any additives, it is 100% pure D-Ribose as purchased from Valen Labs, just repackaged.

The 500 gram jar is 100 servings and costs $49.97 but they have a coupon for 10% off that you can use and get it for $44!! You enter the promo code 77MJC at the checkout.

It's worth it since it is the same as the product "Corvalen" and costs a lot less for the bigger jar. The Corvalen jar is 56 servings and costs an average of $43.

Hope this helps! Oh and I figured out why some of the capsules of it are so cheap. You have to take at least 6 of them to equal one dose of the powder!

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I haven't tried it. When I used my medical dowsing - it said I didn't need it...

[ 05-09-2010, 08:44 PM: Message edited by: sparkle7 ]

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Need Lots of Help
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Maria, I tried the Teitlebaum recommended Corvalen because I did the Fibromyalgia and Fatigue Protocal he designed for the Fibro and Fatigue Centers. I paid for this out of pocket.

After 6 months, I quit because it just didn't help. That is when my FFC doctor ran full panels for viral infections and bacterial infections. That is when I found out that I have lyme and several viral issues.

But, I say, try it. I think everyone should honestly try products, because we are all different and what may work for me, may not work for you and vice versa.

Good luck!!

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