The last 2 nights have been horrible. Another member mentioned this possible could be "central sleep apnea" and now I am very scared.
My 1st LLMD appt. is not until next week.
Help!
-sleepless "LAXlover"
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Yeah i had that on & off get checked for babesia also. Feels like your lungs get half full water can only get half breaths it stucnk and little scary I use to eliviate it by putting a fan on low and set in front of it and try to stay calm as i could.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Elevating your head with several pillows at night could help.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
| IP: Logged |
posted
Yes, I had this problem. I had nightmares where I die in my sleep, and I wake up and I'm not breathing and gasp for air.
I'm pretty sure it's Babesia related.
Since being in treatment, this has improved.
And Loonies, right. It happened many times to me, but I wouldn't scare myself because of it. I learned to accept it as happening, and not stress myself fighting it.
It got better.
Good luck.
Posts: 829 | From MD | Registered: Dec 2009
| IP: Logged |
merrygirl
Frequent Contributor (1K+ posts)
Member # 12041
posted
I do this and i have obstructive sleep apnea. Get a sleep study, CPAP helps me alot.
Posts: 3905 | From USA | Registered: May 2007
| IP: Logged |
posted
Happened to me during the worst of my disease....not before or since. I have no idea what it was....but definitely related to the Lyme somehow
Posts: 283 | From where the ticks are! | Registered: Oct 2009
| IP: Logged |
posted
Thank you all. LD is crazy with every day being so different. This symptom has gotten much better for me the last few nights so I could get some much needed rest!! I was definitely stressing and scarey to fall asleep. I will get the Babesia test.
Thanks again,
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
| IP: Logged |
posted
I've had that miserable symptom. I agree with Sick Tick, it accompanied the worst part of my disease. It is SCARE-Y! It has a panic aspect associated with it that is really creepy.
Posts: 152 | From West Palm Bech, FL | Registered: May 2008
| IP: Logged |
randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
you might want to get that heart checked out too.
i sleep with three pillows. it helps a lot.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
| IP: Logged |
Doxy apparently excerbates any acid reflux problem which mine was minor before and not on meds. She switched out the doxy and said to not lie down for at least 3 hours after eating. IT WORKED (knock wood). It has not happened since.
That was truly horrible and I hope it never returns.
Just wanted to share my experience for any of those suffering with the same thing. Might be worth a try.
-LAXlover
-------------------- LAXlover Posts: 371 | From Northern Baltimore Area | Registered: Apr 2010
| IP: Logged |
TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Loonie wrote: Don't be afraid, you won't stop breathing in your sleep. Our bodies are programmed to wake us up when this happens.
True that our bodies are programmed to wake us up but people do die in their sleep from untreated sleep apnea all the time. Your chance of having a stroke is 400% higher if you have untreated sleep apnea according to my sleep doctor.
We had a man in his 30's with lyme die a few years ago in his sleep. He had been diagnosed with sleep apnea the day before he died. He didn't have his machine yet. We can only guess that it was sleep apnea that caused his death but we never heard what they determined as the cause of death. My son-in-law worked with a man who fell asleep in his chair at work and died because he did not have his machine on. It happens.
If you have untreated sleep apnea you can fall asleep at the wheel of your car and kill yourself and other people too!
Please have this checked out if you are waking up gasping for air. That is the only sign I had of sleep apnea and it only happened a few times and yet I had very bad sleep apnea.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
| IP: Logged |
posted
I've had this off and on for years. It happens when I lie down to nap sometimes, not just at night. I don't know why it's off and on ... or if it might be happening more than I'm aware (perhaps it causes some of the nighttime awakenings?) Does anyone know if you need to have an in-house sleep study done for this, or can you wear something to detect it at home? A sleep study is thousands of dollars I'm told, and some people never sleep in a strange place, so it's not even an accurate test.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
| IP: Logged |
posted
If Babesia is causing this symptom you may notice it coming and going in weekly cycles at some point. For me it came after treating for Bb and Bartonella so after 9 months of treatment (doxy 5.5 mos. zithro 3 months with bactrim, clarithro 1 month. etc) anyway about 6 wks into the zithro the Babesia symptoms were very classic and cyclical. Have now taken Art and Bactrim for 10 wks and these symptoms are better but not yet zero.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
| IP: Logged |
posted
I was dx with sleep apnea about 10 years ago. Had all of the fatigue. Was put on CPAP but the fatigue persists.
My LLMD dx as CFS and possibility of Lyme. Said if you take care of the apnea and still so tired then it's the other stuff.
My mom's cousin had strokes due to undiagnosed sleep apnea. Now he's on CPAP and he's fine.
It can feel very claustrophobic at first when you wear the CPAP gear, but stick with it. You'll get used to it and it can save your life!
-------------------- Dx with Lyme & homozygous for MTHFR. Antibiotics & nutritional IV's didn't help. Posts: 57 | From Kansas | Registered: Jun 2010
| IP: Logged |
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Electrolyte replacement helped me.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
| IP: Logged |
IckyTicky
Frequent Contributor (1K+ posts)
Member # 21466
posted
Sleep apnea. I've had this a lot. It's not as harmless as some will have you think. Although mine seems to have gone away on it's own after years of suffering from it.
-------------------- IGM: 18+, 23+, 30+, 31+++, 34+, 39IND, 41++, 58+++, 66+, 83-93IND IGG: 31+, 39IND, 41+ Also positive for Mycoplasma Pneumoniae and RMSF. Whole family of 5 dx with Lyme. Posts: 1014 | From Texas | Registered: Jul 2009
| IP: Logged |
canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Similar problems. Very mild...
But mine seem to be everytime I run out of magnesium I start havin some heart/breathing issues.
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic