posted
Hi- I have been on doxy for 4 wks and then amoxicillin for 3 so far. I had a terrible herx at the start of the amoxi but have not really had any positive changes.
There were a few days where I had less fatigue, less pain etc.. but before I was treated I had days that were better than others as well. I hope that when the med works I KNOW it works, instead of thinking well... maybe I am a little less tired or a little less in pain.
I had high hopes, I have been sick for 15 years with many wrong diagnoses and wrong treatments. It is always the same thing: the doc is convinced I have such and such, treats me and it doesnt help at all. I was hoping lyme was going to be different. I tested pos on elisa and western blot.
I need some words of wisdom from those that are farther along. If I havent noticed anything positive yet... does that mean the abx wont work? Or do I just need to be more patient?
The LLMD wants to start me on IV rocephin next week, because I am moving from NY to Florida in July and he wants to ensure I get the IV option while here in NY.. as he believes there aren't any good lyme docs in FL.
Any thoughts? Thanks.
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Thanks.. The doxy was low dose because of all my GI problems. The amoxi is 1000mg 3x a day.
Moving to Florida for 4+ years for school. The NY doc will treat me followups while I am there but he wants to try the IV here first as I can go to his infusion center daily instead of getting a PICC>
Posts: 341 | From NY/FL | Registered: Apr 2010
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posted
Since you tested positive, at least you can be sure you're on the right path. Be patient and hopefully your LLMD will keep trying different approaches.
I was sick for 5 years before treating with abx, and it took about 14 months until I started improving. All the while I was not sure if I was doing the right thing, since my tests were borderline.
Remember to detox and take probiotics. Good luck with the IV.
Posts: 175 | From SW PA | Registered: Mar 2008
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