posted
I have taken flagyl in the past but never consistently.
I can tell you that without reservation flagyl is probably one of the best drugs in the fight against Lyme disease.
Most recently I was experiencing a huge downturn- crazy high blood pressure, unrelenting pain in neck and joints, neurological activity I hadn't had in sometime, and much more.
I was at the point of believing I need iv antibiotics or I'm done.
Went on flagyl in conjunction with standard abx and have done a complete turn-around - I'm still picking up the pieces as they say but doing much, much better.
It brings out the symptoms and one might think it is only making things worse but it's really getting rid of borrelia.
I know someone that has taken it for about a year and has hasn't felt better in years.
it needs to be taken with something else like ceftin, doxy , or zithromax etc but it can make a big difference.
Posts: 107 | From new jersey | Registered: Dec 2009
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
I completely agree; adding a cyst buster helped me out a lot, too. Makes me herx like a banchi, but worth it. I was PO'd that a supposed LLLMD did not have me on it as part of combo therapy right when I was Dx'd, as I think it would have made a big difference.
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
Josh - Do you mind if I ask your dosage and how long you have been on it or plan to be on it?
Posts: 2232 | From USA | Registered: Aug 2009
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lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Flagyl is a good drug. But what works for one Ld patient will not work for another. Flagyl can cause damage to nerves, so if nerve pain increases as it did for me, stop and talk to your LLMd.
bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
I pulse flagyl for this very reason (nerve damage, etc.) I am told by two LLMD's that the latest research shows that a 72 hour pulse is effective in getting the cysts. Any more an you can risk peripheral neuropathy.
One LLMD does 500 mg / day, 3 days weekly.
The other LLMD does 1000 mg/day, 3 days every 2 weeks.
Do you guys pulse or not?
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
TF said it's absolutely necessary too.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
My LLMD wouldn't put me on it because of the previously posted reason/side effects. BUT he knew did need a "Cystbuster" he prescribed Tindamax. I saw a great response to this "Cystbuster" with no side effects. Of course you all know the name of the game: "Everyone reacts differently". Buzz
-------------------- 5 yr. Vet. of the Lyme war. Helping and sharing are now my only objectives.I have nothing to sell & I no longer interfear with things I cannot control. But, I have learned many good things from my affliction & am a better person for it. Posts: 51 | From Northeastern PA | Registered: Jul 2010
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posted
I am pulsing flagyl 250 3x/day on 4/7 days and Artemisinin the other 3/7 days, Also every day I am taking amox/probenicid 2500mg/500 2x/day, clarith 500 2x/day, bactrim ds 1 tab 2x/day. Getting ready to start levaquin soon, have medication on hand but need to get up the courage to go there--have had psych problems on this class of medication in the past.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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RZR
Frequent Contributor (1K+ posts)
Member # 20953
posted
quote:Originally posted by bcb1200: I pulse flagyl for this very reason (nerve damage, etc.) I am told by two LLMD's that the latest research shows that a 72 hour pulse is effective in getting the cysts. Any more an you can risk peripheral neuropathy.
One LLMD does 500 mg / day, 3 days weekly.
The other LLMD does 1000 mg/day, 3 days every 2 weeks.
Do you guys pulse or not?
You say 3 days weekly...is that 3 consecutive days, every other day? Just trying to get some ideas here. I hate taking daily meds if it is not necessary.
-------------------- Tick bite May 2009 Diagnosed June 2009 Posts: 2329 | From SouthEast | Registered: Jun 2009
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WildCondor
Unregistered
posted
I believe Flagyl is absolutely essential to getting better.
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posted
4 consecutive days for me, would be suprised if others are not also taking on consecutive days be it 3 or 4 days.
-------------------- Ideas not advice. Posts: 448 | From Downeast Maine | Registered: Jul 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
I am on doxy 200 mg and now my LLMD wants me to add 1,500 mg flagyl a day every day. This sounds quite high in comparison to the other posts.
Posts: 1834 | From US | Registered: Oct 2008
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
I'm pulsing flagyl one week a month, 500mg 3 times a day.
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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Cass A
Frequent Contributor (1K+ posts)
Member # 11134
posted
Flagyl caused me global transient amnesia--meaning I had no idea what I was doing or who I was or where I was for several hours.
Best,
Cass A
Posts: 1245 | From Thousand Oaks, CA | Registered: Feb 2007
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posted
since taking flagyl i have brainfog as a symptom (or side effect). cant say it helped me.
Posts: 226 | From earth | Registered: Sep 2007
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posted
Pam Weintraub does not mention taking Flagyl in her last desperate attempt to get well. She took Ceftin (following what Dr B did to get himself well) until all symptoms abated for a few months, then went off until she crashed all the way to the bottom again, then went on until symptoms abated, went off and crashed, then on again. The third time all symptoms resolved completely and permanently. This is allegedly what Dr B did for himself as well. Maybe it takes longer without Flagyl? But, if it gets the job done, it seems a better plan as Flagyl is so toxic to the nervous system.
Posts: 277 | From Pennsylvania | Registered: Apr 2010
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posted
brain fog on flagyl got much worse initially then much more improved than ever before.
Posts: 107 | From new jersey | Registered: Dec 2009
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mojo
Frequent Contributor (1K+ posts)
Member # 9309
posted
can you take Flagyl on the same days as other ABX (like doxy, or whatever?)
I haven't done Flagyl since early 2007 and i pulsed it for a week every four weeks but only took Flagyl during that week.
Another question - does Flagyl kill other forms besided cyst? Does it cause the cyst to go back to spirochette form or does it "kill" the germ?
Posts: 1761 | From USA | Registered: May 2006
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posted
Great info! I just came back from a consult with the best pedicatric LLMD...the great DR J in CT. I love that man. I asked him everything.
Here is what he said in regards to flagyl/tindamax. He pulses it 2 consecutive days every week for the kids. It only kills cyst and the released spirochette from the cyst can convert back into cyst form again. He uses either flagyl or tindamax but currently is preferring tindamax over flagyl. He believes it not only kills cyst but cell wall deficient forms as well.
My daughter is 48lbs and she takes 250mg tindamax 2Xday 2 days week every week. Ominicef and zith daily.
The GOOD news...when asked if chronic lyme is curable...he said yes he believes it is! In his pediatric practice the average patient receives 1-3 years ABX, has done as much as 12 years. 98% are able to remain off ABX. He says about 1-2% relapse repeatedly when coming off ABX. That is better than what I thought.
Posts: 747 | From Utah | Registered: Apr 2010
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Originally posted by mojo: can you take Flagyl on the same days as other ABX (like doxy, or whatever?)
Can someone answer this? when you pulse flagyl, do you stop your other meds on those days, or take them all together?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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posted
Thanks for the inspiring information from Dr. J
My LLMD has me on flagyl 750 mg/day every day since April. I haven't felt much of anything! I have involuntary movements/contractions and these are about the same since I started; I have no symptoms of peripheral neuropathy, yet I wonder if every day for several months is advisable? I have had lyme for over 20 years, had treatment in 2005, relapsed 2009, in treatment again. I don't seem to herx much (never did) but certainly have this bug running around my body.
I want to get rid of this thing. Is pulsing with a chronic, late stage case like mine enough? Anybody else? Overall it seems like it works....but how much does the trick?
Thank you
Posts: 172 | From ohio | Registered: Feb 2010
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Tricky Tickey
Frequent Contributor (1K+ posts)
Member # 26546
posted
About Flagyl, and to answer the question about taking it on the same day as other Antibiotics.
Just an FYI about how I'm doing it. On the days I begin to take Flagyl, I don't take Doxy. I'm slowly building to 3 Flagyls per day for 3 days per week, but ever so slowly. 1/1/1 2/1/1, 2/2/1, 2/2/2, 3/2/2, 3/3/2, then to 3/3/3.
That's just how I've been directed to do it. I hope it works as my arm pain is really bothering me.
-------------------- Early Disseminated LD- 2010. Currently doing acupuncture and yoga. Negative Igenex (IND & Pos Bands) ISSUES AFTER: Tendonitis, letter reversal, Low immune system. PREVENTION:SaltC,Iodine,Humaworm, Chiropractic. Posts: 1013 | From In a van down by the river. | Registered: Jun 2010
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bcb1200
Frequent Contributor (1K+ posts)
Member # 25745
posted
quote:Originally posted by BackinStOlaf: Originally posted by mojo: can you take Flagyl on the same days as other ABX (like doxy, or whatever?)
Can someone answer this? when you pulse flagyl, do you stop your other meds on those days, or take them all together?
I pulse my flagyl with my daily meds. SO for me it is Baxin / Amatadine EVERY DAY and then I add 1000mg of Flagyl on top of that on the days I pulse.
-------------------- Bite date ? 2/10 symptoms began 5/10 dx'd, after 3 months numerous test and doctors
IgM Igenex +/CDC + + 23/25, 30, 31, 34, 41, 83/93
Currently on:
Currently at around 95% +/- most days. Posts: 3134 | From Massachusetts | Registered: May 2010
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posted
I didn't read all of the posts (a little lazy today)....but, I'll throw my two cents in the ring.
I agree that Flagyl is extremely important. Or perhaps a cyst buster like Tindamax, which I have not been prescribed.
Flaygyl does cause a bix HX and makes me feel bad. But it has started eliminating some new pains I have gotten, such as in the ankle.
By the way, I am on bicillin shots, up to 5 per week.
I have had lyme for many years now. I think flagyl, or a cyst buster is crucial because the longer we are on antibxs -WHICH ARE ESSENTIAL- I do believe some resistance can occur.
Hope everyone is doing well, and trying to smile.
We'll Win.....eventually
Posts: 107 | From maryland | Registered: Feb 2007
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posted
If the patient can afford it, I suggest Tindamax over Flagyl - it does much the same thing with many, many fewer side effects for many people.
Quite a few people that I've spoken with have made great progress on one of my most popular protocols of Tindamax (500mg, BID), Minocycline (50mg, BID), Omnicef (300mg, BID). Its a fairly heavy load for many, but it "hits" Lyme itself in its various forms and has the benefit of a little overlap against some other "less known" coinfections, though I still suggest direct protocols against them if they can be confirmed (mycoplasma, CPN etc..), and separate protocols for Babesia and Bartonella, and other pathogens (viral, fungal etc.)
Posts: 690 | From East coast, USA | Registered: Jun 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I took Flagyl with Zith "everyday". Did not pulse them.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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posted
I take my flagyl on the same days as my other ABX...Mondays are my hardest....oral flagyl 1500mg, zith IV 500mg, Rocephin iv. I hope my liver makes it
Posts: 747 | From Utah | Registered: Apr 2010
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