posted
I'm trying to figure out these last remaining symptoms I have and how to get rid of them.
I have cognitive problems can't balance check book, do any math with multiple numbers, can't carry on a conversation without getting stressed that I will forget.
Severe room to room memory loss, clumsy, difficulty learning anything, how to use remote, turn on gas grill, how to make a sandwich with more than 1 topping. scatter brained and disorganized.
Still sensitive to noise and get over anxious at simple life problems most people would normally be able to deal with.
Poor comprehension, easily distracted. Can only do one thing at a time and it has to be quiet.
Also GI problems pain, slow transit.
Still have TMJ, and entrapped nerves in my neck that is painful when I type, drive. Crunchy sounding neck.
The thing is I had Bart as a child and always had learning issues but not to this degree.
Wanted to see if anyone had the Cat scratch as a child got treated for lyme and co infections as an adult and has either gotten better congnitivly or still dealing with brain stuff and GI stuff.
Tried lots of supps for brain currently taking Gotu Kola with no improvement yet.
[ 07-22-2010, 01:10 PM: Message edited by: TS96 ]
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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posted
Also wanted to add that with lyme treatment for approx. 14 months and a year of herbals I am completely healed of fatigue, insomnia, my 18 tender points of fibro, foot pain, shin pain, depression, back pain, severe mood swings, burning eyes, ringing ears. All gone!
[ 07-21-2010, 09:20 AM: Message edited by: TS96 ]
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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16 amalgams in my lifetime. All taken out almost 5 years ago. Still chelating.....
oral EDTA, Dmsa/algas, lots of sulfur foods, binders EDTA suppositories for 4 months now.
Last urine metals test. Mercury went from 5 down to 3.
Lead went from 17 down to 10.
Aluminum from 19 down to 4 I think or something near there.
Looks good but wonder how much more there is to get out?
Probably lots.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
TS96: about your amalgams- did you chelate DURING the removal process? even when you still had some in your mouth? Also, do you find any problems with your new composite fillings?
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
Check into treating for parasites. They can be a co-infection of Lyme. Check symptom list at Humaworm and symptom list here on lymenet.
They can cause slow transit time as they make their home in the small intestines.
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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I had activated charcoal during to absorb any stray mecury and lots of Vit C after to keep things moving.
I didn't start dmsa until a month or so after cuz I didn't want to force too much out at once. Let my body do and handle what it could.
I had severe constipation at the time and did all I could do to keep bowels moving.
Today still only take 125mg dmsa, Detoxamin supp every other night. Can't touch ALA. It does bad things to my brain.
No problems with new composites. All is good in that area. I had Helimolar it tested good for me. I may also have another kind of composite can't remember the name put in years ago. It tests with EAV as compatable.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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posted
Gael, I would love to treat for parasites. MY LLMD is not too keen on it.
I've done Humaworm 2x First time saw wierd stuff, second time nothing.
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
TS96, who is your LLMD?
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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onbam
Unregistered
posted
Mepron/zith helped mine. I may have been taking double doses of mepron, not sure--I was using dining teaspoons to measure it out.
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canefan17
Frequent Contributor (5K+ posts)
Member # 22149
posted
Treat Lyme.
That doesn't sound like "remaining" symptoms. Just sounds like a bunch of symptoms from unsuccessful treatment of Lyme.
Keep exploring new ways to treat.
Worry less about metals, imo Can make it worse. 99% of people don't know what they are doing(myself included)
Posts: 5394 | From Houston, Tx | Registered: Aug 2009
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glm1111
Frequent Contributor (5K+ posts)
Member # 16556
posted
TS96,
If you tx with Humaworm and saw "weird stuff" you should continue treating for parasites. The fact is that the parasites/worms can cause slow transit time because they are hanging out and laying eggs in the small intestine.
They can lay 200,000 eggs a day. This can also cause your neuro symptoms because there is a definite connection between the brain and the gut.
If your LLMD is not keen on treating parasites then that is a flag for you to take matters in to your own hands. One or two doses of Humaworm is not nearly enough.
I have been using antiparasitic herbs and salt/c for 4 yrs now and am still getting rid of the smaller parasites. I also do salt/c which has been a tremendous help. Doctors are not educated in the field of parasitology.
If you want to get well, then you should continue going after the parasites. I am currently using Parastroy which is very good. I have also used Humaworm, Hanna kroeger and Clarkia. Do some research here.
Gael
-------------------- PARASITES/WORMS ARE NOW RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS* Posts: 6418 | From philadelphia pa | Registered: Jul 2008
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I've done just about every combo treating lyme and co-infections.
Rifampin/Doxy/Plaq did the most good but nothing really got to my brain stuff.
MY LLMd does want to to some IV rocephin to see if it helps but I was trying to avoid it.
Gael, I did two whole rounds of HM but yes my LLMD is reluctant to treat parasites.
Thank you
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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posted
It sounds like you still have Bart. Dr B. says that when nero symptoms are that severe that Bart always comes to play, also GI issues usually mean bart too, not to mention that you've already had it (or still have it). I say keep treating the Lyme and work on Bart too, chelating should continue too!
Posts: 844 | From CA | Registered: Apr 2010
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posted
Wow, this is interesting. I need to print out and take to my Doctor.
No one listens, no one believes, no one helps, therefore feel no one cares.
VERY frustrating.
-------------------- Sick and Tired of Being Sick and Tired!! Posts: 153 | From St. Louis, Missouri | Registered: Jun 2010
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Marnie
Frequent Contributor (5K+ posts)
Member # 773
posted
VERY generally speaking, here are some "clues":
Although the cerebrum produces many neurotransmitters, and they all must be present throughout the entire nervous system, each of the four is of particular importance to one of the cerebral lobes.
The frontal lobe, which controls our movement and response to messages that it receives from the sense organs via the hypothalamus, is associated with the neurotransmitter dopamine and beta brain waves.
Thinking and action are the domain of the parietal lobe. It produces alpha waves and the neurotransmitter acetylcholine.
***Acetylcholine is a building block for the myelin sheath*** and therefore relates to the speed at which our brain functions and so determines our effective brain age.
Memory and language are governed by the temporal lobe, that sits just below the frontal and parietal lobes and balances their operation.
It produces theta brain waves and the neurotransmitter GABA (gamma amino butyric acid).
The occipital lobe is at the back of our head. It controls our visual function, regulates our rest, and synchronizes all the cerebral lobes.
It produces delta brain waves and the neurotransmitter serotonin.
These neurotransmitters must be present in a balanced fashion in order for us to attain a state of well being. If any of the cerebral lobes are deficient or if there is an excess of its associated neurotransmitter our health will suffer. Our brain and its neurotransmitters affects us in four ways:
1. Attention 2. Memory 3. Personality 4. Physical Health
1. Attention Attention is a physiological function that concerns our ability to learn and to remember.
Attention Deficit Disorders (ADD) are not just a problem of the very young for they tend to increase as we age.
They vary from mild conditions all the way to Alzheimer's syndrome. There are four types of attention disorders that relate to the four neurotransmitter.
Inconsistent attention indicates a deficiency of dopamine, whereas
if we are careless and have trouble misplacing things, acetylcholine deficiency is indicated.
A lack of attention and impulsive actions are a product of insufficient GABA. If we are low in serotonin we will lose our ability to grasp concepts quickly.
"Likewise there are four types of memory deficits, each associated with a deficiency of one of the four primary neurotransmitters.
Lapses in memory are not an inevitable result of aging, but they do indicate an imbalance in one or more of these neurotransmitters. These conditions are reversable.
Although acetylcholine is primarily associated with memory, each of the cerebral lobes and their primary neurotransmitter affects a particular memory function.
These four memory categories are called working memory, immediate memory, verbal memory and visual memory.
Working Memory
Working memory is our ability to absorb and retain new information and correlate it with older memories. If we are deficient in dopamine in our frontal lobe, our working memory will be overloaded and we will dump older memories.
Immediate Memory
Immediate memory depends on acetylcholine in the parietal lobe. A deficiency here will affect our learning capacity and our basic alertness.
It must transfer visual and auditory signals to long term memory within 30 seconds of receiving them.
Verbal Memory
Verbal memory is associated with our temporal lobe. If we have insufficient GABA, we will have difficulty in producinig and understanding sounds, words, sentences and stories.
Visual Memory
Visual memory is our ability to remember faces, colors, shapes, designs, surroundings, pictures and symbols. It is a function of our occipital lobe and the neurotransmitter serotonin.
I don't want you all to think I can't function. I really can. I just get all mixed up and confused which just makes life harder and takes a lot longer to do things.
Marnie that is a great link. I think everyone should read that to see how neurotransmittors work in the brain.
I did learn something! after reading it slow and several times.
Does anyone know a good neurotransmitter test or a horomone test that would help identify deficiencies?
-------------------- Bart Henslea 1976 Fibro/CFS/arthritis 2004 Lyme diagnosed 2007 3 1/2 years treatment with oral combos, Cowden, IV roc. BW herbs. Off all abx in 12/10. Feeling good. Posts: 647 | From NY | Registered: Dec 2007
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CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
TS96 I think a key that your most helpful combo was the Rif/doxy/plaq means you should keep treating bart. How long did you do this combo?
Posts: 3528 | From US | Registered: Apr 2007
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Haley
Frequent Contributor (1K+ posts)
Member # 22008
posted
TS - Have you treated Babesia.
I was always told that my brain problems were from Bart but after doing anti-malarials I'm convinced that it is from Babs.
You could try some Artemisinin to see how you react, it may give you a clue if it is Babs.
Posts: 2232 | From USA | Registered: Aug 2009
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posted
From what I understand, the brain fog means that there is still infection in the brain. I don't know what treatments you've had, but more to kill the infectoin that might be in the brain?
It's also my understanding that Rocephin IV is remarkable to help with this. That's what I'm fighting for since the brain fog is what upsets me the most!
sending support your way
-------------------- PHOENIX: mythical bird that rises from the ashes July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began bite: unkown - no rash Posts: 248 | From private | Registered: Jul 2010
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posted
Got bit twice 2 days ago......i have had nuero lyme since 2006... Cognitively you share many of my symptoms...physically im straight at least i was till 2 days ago....i was biking swimming walking...even skiing...but if you hand me directions to put sometiing very simple together ... I cant complete it.... If someone starts a conversation ... I cant understand it so i cant wait for it to end
i cant even follow a baseball game ....i had trouble fliping hotdogs and hamburgers ... It was like a huge project...id burn my fingers trying to hand turn the hotdogs because it was too hard to hold the utensils... I used to be a sous chef.....this disease is so freakin humilating... Its like from the pit of hell...
I could go on and on and on .... But i hear you .peace
Posts: 3 | From watertown ct | Registered: Jul 2010
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