LymeNet Flash: anyone "cured' or in remission from Rocephin?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » anyone "cured' or in remission from Rocephin?

UBBFriend: Email this page to someone!

Author

Topic: anyone "cured' or in remission from Rocephin?

bv
LymeNet Contributor
Member # 9578

posted

I have read that some LD suffers get cured or remission from iv recephin. My doc doesn't do IV.
Anyone have good experience with rocephin? how long did you treat with rocephin.

Most of my symptoms are peripheral nerve symptoms---burning skin, muscle twitches & some floaters. Thanks for your replys.

Posts: 213 | From ohio | Registered: Jul 2006 | IP: Logged |

hcconn22
LymeNet Contributor
Member # 5263

posted

I am doing better, but I also did 5-6 orals at the same time. YOu must treat all three forms of Lyme, plus co-infections at the same time.

7 months on IV.

--------------------
Positive 10 bands WB IGG & IGM
+ Babesia + Bartonolla and NOW RMSF 3/5/09 all at Quest

And still positive ELISA and WB two years after IV treatment
http://www.lymefriends.org/profile/blake

Posts: 607 | From Tick Town, Connecticut | Registered: Feb 2004 | IP: Logged |

steven
LymeNet Contributor
Member # 13101

posted

after nearly a year of roc i have been in remission for about 1,5 years.

but relapsed and couldnt take it again later due to gallbladder-pain.

Posts: 226 | From earth | Registered: Sep 2007 | IP: Logged |

keltyl
LymeNet Contributor
Member # 14050

posted

Did Iv rocephin 9 1/2 months. Felt a little better on it, but really went down when I stopped.

Part of the time couldn't take anything else with it due to c-diff positive tests.

Posts: 847 | From upstateNY | Registered: Dec 2007 | IP: Logged |

lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561

posted

This is my 4th time on rocephin iv. Its great, but relapsed after 8 mos. 1st time was on 10 mos, thought it was done-, next 6 mos, back on orals, 6 mos, back on orals 7 mos, this time started in January and still on, don't know when. It ws my fault, felt so well, I got off everything for 8 mos. Came back with a vengeance, this is the hardest time to lick it. got gall bladder out at first round. Good luck. remember, it hides, its really tricky.

--------------------
He took u to it, He'll you through

Posts: 2837 | From NE. | Registered: Apr 2007 | IP: Logged |

supergirl
LymeNet Contributor
Member # 26936

posted

I know of 2 people who exp full recovery after taking IV Rocephin. One has been completely fine for almost 20 years. Another, it's been 5. One step at a time...each of us will find our way.

--------------------
PHOENIX: mythical bird that rises from the ashes
July '09 got sick very quickly could barely get out of bed - ND diag lymes.. and the journey began
bite: unkown - no rash

Posts: 248 | From private | Registered: Jul 2010 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/