posted
The first doc I went to to get a lyme test came back with a positive result and this: "Your Lyme test came back positive, but your chronic fatigue has nothing to do with that. You're just stressed out. Here, take this prescription for xanax."
The second doctor, an infectious disease doc, put me on IV Rocephin, which I had an allergic reaction to after 2 weeks. He did not prescribe another medication saying that the two weeks of Rocephin just needed time to work and it should clear up in a month or so. "Give it time" This came after my complaints of returning symptoms. Obviously, if Im not on a drug, and the symptoms are coming back, then the 2 weeks of the drug wasnt enough!!!!
lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
after suffering a nervous breakdown and not sleeping for a month a General MD pulled out a questionare and asked me all the depression questions.
Have you been sleeping more Have you been more widthdrawn Have you been sad?
I was crying every day and didnt have the energy to move.
After telling him that i was diagnosed with CFIDS and fibro in my teen he said hmmm
then reached for some samples of lexapro and told me that what im suffering is common.
Its SOCIAL ANXIETY DISORDER
i wanted to bash his head in
What the hell did you go to school for.
To be ignorant!!!!!
Posts: 2905 | From New England | Registered: Sep 2004
| IP: Logged |
posted
I was continually fainting and I couldn't walk in a straight line. My doctor told me that I would be fine if I just got eye-glasses.
Posts: 124 | Registered: Sep 2004
| IP: Logged |
posted
My husband was having a really bad day and I printed out Page 1 of this post. It took him 4 or 5 pages of reading before he picked up on what a duck was.
He always called them KNOTHEAD DOCTORS, but likes ducks better.
At least he got some laughs out of the comments and asked me to send copies to several family members who can't seem to relate to why we have been to sooooooo many doctors to get diagnosis and treatment of his Lyme, babesia, bartonella, Borna virus, CMV, HHV-6, and nanobacteria.
We have many classic lines to add to this post and I'll add one now and be back to add more in the future.
One classic line regarding another illnes, "YOU'RE GETTING BETTER, BUT YOU JUST DON'T KNOW IT."
Yeah, right!!!
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
| IP: Logged |
posted
I had positive test results from the lab in California showing that I had lyme disease. An ID doc looked at it and said that I did not have "new" lyme disease, but I had "old" lyme disease. What the heck is that? He concluded by saying that I was just depressed and couldn't deal with everyday life. He also said that he had more of a reason to be depressed because he was discriminated against from society due to being from a foreign country. Needless to say, I never went back to this QUACK!!!!!
[This message has been edited by gonecrazy81 (edited 05 November 2004).]
Posts: 53 | From Georgia | Registered: Oct 2004
| IP: Logged |
posted
I got all of the pat answers from my ducks...
-it's depression
-lupus
-fibermyalgia
- you shouldn't get your information off the internet
-you have polymyalgia rheumatica (I'm only 40)
-menopause
But the best duck story by far for me was:
My youngest son has had health issues since he was born, among them being heart defects, a hearing loss and growth hormone deficiency. He also has a learning disbility and his IQ scores are very skewed. One day I was on the internet and happened to come across a genetic disorder called Noonan's Syndrome. My son is not a Poster Child for the syndrome but he had a lot of the characteristics that pointed to the syndrome. Part of the syndrome includes puberty delay, so on his visit to his endocrinologist, I brought up my suspicions and since my son was at the age of puberty and showing no signs I mentioned that we should consider treating him for a delay. The doctor just brushed me aside and said, he"s not a Noonan's kid. I was really upset and wanted to put the issue to rest so I took him to a genetics doctor. Again, I mentioned that I thought he had Noonan's syndrome,
geneticists(sp) answer..."He's not a Noonan's kid, but to make you feel better I'll test him for it."
Three weeks later when the lab results come in I get a call from the doctor......He says...."Well, Just as I expected (meaning him the doctor) your son has Noonan's Syndrome"
DUHHHH....Thought you said he wasn't a Noonan's kid
Now the endocrinologist is pissed at me, because I proved him wrong (plus I think he noticed I took great pleasure in waving the report under his nose to prove him wrong).
This duck says that my 14 year old can decide when he wants to get treatment for his puberty delay.
Sure...the kid is going to just beg to start intramuscular injections on top of his daily subcue injections.
Needless to say, that endocrine duck is no longer treating my son.
Posts: 23 | From Philadelphia, PA, USA | Registered: Jun 2004
| IP: Logged |
posted
Doctor # 1 (after 8 years spent complaining about an endless list of problems and finally thinking I had cancer)
"I don't think blood work is necessary. Let's put you back on antidepressants"
Doctor 2 before positive Lyme test:
"Are you happy?" "Are you married?" "Do you have a happy marriage?"
Doctor 2 after positive test:
"I knew you had Lyme disease. See, I even wrote it as a possibility on your chart. And you know how I knew? Because you are 30 and you have the health of an 80 year old. Three weeks of antibiotics should take care of it. Come back in a month and we'll put you back on antidepressants" (Me: what's up with the antidepressants?)
Doctor 2 (back to see him because of seizures. I fainted in his office and began getting serious tremors):
"Here...breath in the paper bag and get a hold of yourself. You're too excited!"
A nurse at a neurological facility: "A tilt table? Well, I'm not sure what you're refering to...we have a regular patient exam bed..."
LL neurologist called for a complete neurological evaluation at my treating LLMD's request:
"Complete neurological evaluation is $400, but if you have Lyme, it's $700".
posted
My ex-doctor told some great ones to my mom as well. She called and told them that I would come home from school and take a nap. I was only 8 years old, something must be wrong for me to be that tired. His reply? "Make her go for a walk with you."
My symptoms started to get worse. I started to get a distended abdomen, so again my mom asked my doctor about it. He said, "Do 100 sit-ups twice a day."
Then I developed drop-foot. My mom again took me into the doctor and asked why I walked funny. He told me to walk for him, and he said I looked perfectly fine.
Finally I was really weak and he referred me to a neurologist. That was more than 10 years ago, and I've had many doctors in between
Posts: 26 | From West Bend, WI, USA | Registered: Jan 2005
| IP: Logged |
posted
In the hospital with meningitis in December and hubby was worried the docs would do the wrong thing, so he presented them with my positive WB. The docs continually taunted us with, "you don't have lyme disease."
Had IV Rocephin for 10 days. I whispered to the doc: "I think I have a yeast infection in my mouth. My throat really hurts."
She replied, "Antibiotics do NOT cause yeast infections! Stick out your tongue! Nope, no yeast infection."
She walked out the door and I had to see a psychiatrist the next morning.
Posts: 703 | From Almost Heaven | Registered: Aug 2004
| IP: Logged |
posted
"Got your brain MRI back. You've got Multiple Sclerosis, but don't worry, we're gonna fix you." Full of SH*T, is what he was...
Posts: 103 | From LAS VEGAS | Registered: Oct 2004
| IP: Logged |
lymie tony z
Frequent Contributor (1K+ posts)
Member # 5130
posted
The first Idiot duck I went to not only told me but wrote it down on paper...5 bands positive on western Igg blot(later positive on Igm)
"The patient may have ALS; MS; Fibromyalgia;Chronic fatigue;ankylosing spondilitis;....I don't think he has lyme disease but I will treat him for Lyme Arthritis.........."
What a MORON!!!!!!!..............zman
------------------
Posts: 2527 | From safety harbor florida(origin Cleve., Ohio | Registered: Jan 2004
| IP: Logged |
1) Before I knew what was wrong with me, and had multi system symptoms that waxed & waned...one doctor asked, " were you abused as a child?"
2) Most recently on a search for a new pcp: Frazzled looking doctor offered me a job as we walked into the examining room...her receptionist had just quit. Then she looked at my rather small list of problems...and of course at the top was "chronic lyme disease". She immediately looked frightened and said..."you know I have these get to know you appointments so I can reject patients...I am a mainstream doctor."
So I just tried another pcp today...who told me: "oh, I have treated a few "LymeS patients." The knowledgeable "S". There were only two pcps available in the Tricare network in my county... so he is now it. At least he accepted the brochure I offered...the first one said, "I don't have time to learn about it."
Quest
[This message has been edited by CA quest (edited 15 March 2005).]
JillF
Frequent Contributor (1K+ posts)
Member # 5553
posted
An ID duck told me that if I really have had Lyme for a year, I'd be dead and that the only true test for Lyme was a spinal tap.
He also said ALL of my symptoms (muscle aches, twitches, stabbing pains, butterfly rash, electric shock pains, visual problems, memory problems, sleeping problems, etc) were caused by anxiety, allergies, rosacea and sleep apnea. Those were the only causes of everything (all 40 symptoms).
The other duck (my family physician at the time) told me that I wasn't in enough pain to have Fibromyalgia (this was before I realized I had Lyme). Guess she thought I should be crying, writhing in pain, in the hospital and not able to get out of bed (good luck with that when you have a toddler).
And finally, my old family physician that I saw (I was running out of doctors to see) said I might have MS but whatever it was wasn't killing me yet and not to worry - I really needed to get my weight under control. That was more important....
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
Things Doctors Have Said to Me (and my internal response)
``Maybe you're just tired because you didn't get a good night's sleep or you're a little stressed.'' (Even if I don't sleep well I was able -in the past--to hike 17 miles quickly over a 13,000 ft mountain pass or carry a 45 pound backpack for 10 miles over rough terrain in the Grand Canyon. I'm trying to tell you I was too tired to walk across the room! The only thing stressing me out right now is doctors like you who don't understand their patients!!)
``You need to learn how to deal with the fact that you feel poorly. Here is the name of a counselor that I recommend.'' (If you can't tell a doctor that you feel poorly, who are you going to tell?! I don't need a counselor. I need a doctor who can help me figure out what is wrong with me!)
``If you lived in New York, you would have been tested for lyme right away.'' (Since when is lyme found only in New York??!!)
``You just keep going from doctor to doctor, don't you?'' (You would too, if you felt as poorly as I do.)
``I only treat nerves. If your joints or stomach are bothering you, you need to see a different doctor.'' (Now THAT'S tunnel vision! What if the same ``culprit'' is causing the nerve, joint and stomach pain?)
``If it's not hormones or iron deficiency, I don't know what is wrong with you!'' (Well, how about doing some research to help me?)
``You sure are falling apart. You need a 50,000 mile tune up!'' (I am well aware that I am falling apart, thank you for your assessment.)
``Try deep breathing exercises for the pain.'' (Do I look pregnant?)
``You look perfect on paper and on exam.'' (Then why do I feel so crummy?)
``How about a vacation?'' (Are you going to write a script so my insurance will cover it?)
``If I hadn't known you for the last 10 years I would say that you are a fruitcake!'' (Thanks for those comforting words)
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
| IP: Logged |
I grew up in CT...multiple bull's eye rashes as a kid and tick bit scars that have flared up regularly for years.
10 years ago I mention this to a world famous MD homeopath, and asked to be tested for LD. I get told that if I had been bitten by ticks in the past I was certainly over it by now.
Next, LD was only discovered in 1977...that was when you graduated from high school, and you didn't grow up in Lyme Ct, so stop being a hypochondriac!
posted
My LLMD sent me to a neuro for a work up for MS, to have MRI and such done.. The neuro said I surely did not have lyme and found the prospect of me contracting it from my mother at birth proposterous even though I told him it was not my theory but my docs.. He began to ask me if I knew where I was and the date, year, etc.. Did I know who the president was?
Okay, were they going to come take me to the padded room now? I knew if I let my true feelings show and hit him they would... At the time I was on IV rocephin and flagyl..I didn't prescribe it, yet he thought ME crazy..He told me I should go to and infectious disease doctor and unless I was actually bitten by a tic that i should not suspect lyme disease and that I did not have ANY neuro problems that he could see including MS and that he did not see a reason to even do any further testing or waste any further time or money on my case. To which later I was told my MRI had multiple lesions and my problems if left untreated would have resulted in putting me in a wheelchair within a matter of months and death within 3 years.. Melinda
posted
After taking 6 days of doxycycline prescribed by my Mother's Dog's veterinarian who took one look at me and said, "You have Lyme" (At this point I had seen 15 physicians who all said I was fine after every scope and blood test known to man)
I landed in the ER not knowing what a herxheimer was at that point...I explained how I could see my right arm but it didn't feel like it was there and I was having chest pain - along with the myriad of other symptoms I was having - I was asked by the ER doctor to smile after I let him know this vet thought I might have lyme - No Bells Palsy so I was released and told to see a neurologist and that it might take a long time to figure out what was causing the Parathesis "since those neurological issues can be hard to diagnose".
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
posted
Oh - here is another one - After experiencing rectal bleeding after a CT scan Pre-Colonoscopy - I looked horrible - I was so sick...the ER doctor says, "You need to go home to your new home and plant a garden" - I let her know I had already planted one and that hadn't helped.
She then discharged me with papers on how to handle stress, anxiety and the suggestion to do yoga which I have been practicing for three years prior.
Turns out I have lyme, babesia, ehrlichia and possibly Bartonella. I can't wait to inform this ER doc...
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
| IP: Logged |
posted
My PCP actually said to me "If you were bitten by a deer tick, you would DEFINITELY KNOW IT" ......... I guess she thought a deer tick was actually as big as a deer so I couldn't have 'missed it' ........... DUHHHHHHHHHHHHHH
Posts: 66 | From AL, USA | Registered: Jan 2005
| IP: Logged |
posted
After a week of hospitalization with Menegitis, my wife pleaded with the Doctors (at the world famous Mayo Clinic) to, at least, consider Lyme Disease.
Their response was "It's the wrong time of year for Lyme".
I guess everyone get's better around Christmas. Right?
Posts: 133 | From Rocheser, MN, USA | Registered: Dec 2004
| IP: Logged |
I was referred to an Infectious Disease specialist in NJ, and when thru my whole list of neuro symptoms with her. She told me that if I had 'Active Lyme' my knees would be swollen.
She then told me to take Advil, since it makes me feel better. When I asked, "So, then it's OK for me to take Advil every four hours for the rest of my life?", she said, "Yes".
I was only 28!!
Posts: 4 | From West Milford, NJ | Registered: Oct 2004
| IP: Logged |
Neil
Unregistered
posted
lol..
I've got like 50 of them, but this is my personal favorite...
In a medical center on Cape Cod of all places.. with a huge bulls-eye type rash..
Doc: 'No..No.. it's not lyme. It's Impotigo.. '
Me: 'Doctor, I don't remember the actual tick bite but I am absolutely sure that it is Lyme or something very similar.. this is why....'
Doc: 'It's not Lyme. If there was no tick there is no Lyme'
I stand up turn around & notice a LYME DISEASE AWARENESS POSTER on the wall directly behind where I was sitting! Perfect side-by-side match & even information about how easy it is not to notice a tick bite!
posted
After being positive with lyme for approx. 6 yrs and many hospitalizations for encephalopy(?sp)therapists were trying to teach me how to use a walker since I was unable to get out of bed on my own.
An associate of my neurogist, one who never even saw me comes in takes a quick look at me and picks up a cane, slams it on the trapeze bar on my hospital bed and yells..get up and walk through the halls, there's nothing wrong with you and ran out of my room...duh..I wish I could have gotten up and grabbed that cane and slammed him with it..
posted
"You've already had aggressive treatment and are better. The symptoms that returned after going off meds are not significant. Just try to boost the immune system with alt med stuff. You won't relapse."
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
Some of these are really really funny. Thanks for sharing. I just have to print this posting and save it.
Posts: 547 | From Maryland | Registered: Mar 2005
| IP: Logged |
posted
Dr.of Internal Medicine '98 "You can't have all those symptoms!"
My GP Jan '05 "I don't have time for you today, I'm backed-up and have a bunch of other patients to see, and I'm the only Dr. here."
That's the last time I saw him. I then searched the internet and found my LLMD in three weeks, and he made an appointment for me within 3 days of calling his office.
Posts: 493 | From MidWest NorthWoods | Registered: Jan 2005
| IP: Logged |
posted
At a seminar last week a doc said people are claiming they have lyme disease when the tick that carries lyme isn't even in their state. I guess everyone stays in their own territory.
cigi
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
| IP: Logged |
posted
I recently got copies of some of my son's office visits from our local pediatrician and found a truly outrageous entry by his "former" pediatrician...
We switched peds. because she was more like a cheerleader - always superficial and "perky" - than a real doctor.
He was in for his yearly exam which consists of checking his vitals and not much more..she would never be involved in his Lyme treatment or speak to our LLMD. At the time Max was herxing badly, feeling terrible with a continual headache...at the bottom of the form she wrote...
posted
An infectious disease specialist telling me I didn't have Lyme, when I had the rash plus all the right symptoms. I had been on abx for only 8 weeks, and she said, let's take you off the abx and see how you do. But she was happy to push Lexapro (an anti-depressant) on me, and was almost hostile when I told her I didn't want to or feel the need to take it.
I was first diagnosed with Lymes at age 13 in 1993, I was hospitalized for a week and put on morpheine for my pain. During my 5 day stay my current doc (who against every other doc I had seen was willingly treating me for Lymes though I had not had a positive test) well he commited suicide. That by itself was tragic, but the quack that replaced him actually said this the very first time I ever met him:
quack: (walks in holding my chart, rifles through it) we're discharging you because you do not have Lymes, you're completely fine except for the fact that you have numerous mental problems and that you need to be admitted to a pyschiatric ward to deal with them. I'll talk with your parents about it as soon as they get here.
me: (who is under 16 and by law quack should not be discussing any treatment with me w/o my parents who were not there) (as I was on morpheine I didn't care what was going on or how I behaved soo....) ***k you I want another doctor. I am sick. I have Lymes. I need to have my mom and dad here right now. I want you out of my room now.
nurse: (quack had called her in becuase of my "distress" as he called it) what do you need?
quack: give her a shot to calm her down and then discharge her
Needless to say my parents filed a huge complaint that even today still sits on said quacks record. The nerve!
Episode 2:
Now 15 years later since my first bought with Lymes it is back and has been here the whole time...I was never fully over it. I have yet again been through the rig-a-ma-row of 5,000,000 quacks that all say the same thing; although there was one I was not expecting.
Days after waking up one morning almost blind, (this was the onset of my obvious signs that Lymes was back in my life) I sought the advice of an opthomologist quack....visited her 3 times within 3 weeks, desperate to regain my vision. Each time she did normal tests, etc...all came back normal. So the last time she saw me she looked at me and said:
quack: have you been fighting with your boyfriend? me: no everything is fine quack: (looks at boyfriend whos with me) do you fight a lot? have you noticed her behavior change? do you think she is depressed? boyfriend: (looks at me like "are you kidding?") no changes everything is fine really she just can't see anymore quack: (back to me) you were recently promoted at your job right? me: yes but I love my job and am good at, there's no problems there at all quack: well I can't find anything wrong with you and I have discussed your case with a colleague and I think you have what's called "hysterical blindness". you see a counselor right? me: (starting to cry) yes but that has nothing to do with.. quack: (interrupts) you should focus on more therapy and deal with your mental issues and depression. you have "hysterical blindness" and the only one who can make your vision come back is you. me: (now sobbing) I can't deal with this again. This happened to me as a kid, no one would believe me and now you won't either. I need a doctor who is willing to help me and you are not that doctor by far. (abrubtly left her office, went to receptionist desk and made it very obvious that i was unhappy with quack and needed to talk to her supervisor) Also put an official complaint on her record as well. The nerve...like I want to be partially blind!
Episode 3-
Finally am seeing a neurologist who can interpret my MS looking damage seeen on my MRI's and delayed VEP tests and perhaps shed some light on my situation. On visit number 3 I tell quack that I had been running a temp of 100-101 for the past 4 days. Quack looks at me and asks me accusinly "Why did you take your temp?" I replied "Because I felt hot, like I had a fever." Shouldn't his first question be..."hmmm that's no good, have you felt like the flu...blah blah?"
On visit number 4, 2 1/2 weeks after having a spinal tap done I tell quack that I had been super thirsty and drinking like a gallon or two of water a day for the last 2 weeks. Quack looks at me with disdain, "Why are you doing that?" I'm like what? "Because I was thirsty". Quack replies, "Well don't do that it's not good for you." So I say,"How do I deal with being so thirsty? What is causing it then?" Quack says: "Just don't drink that much water. Be thirsty, it's not going to hurt you."
Last time I saw him I brought in my symptom journal. He looked appalled. I read him off all of the things that had been going on for each day, and there were lots. He looked at me and began the speech I had been dreading, that we have all heard "Well some of that is important to know, but most of that I think is you just being too in tune with your body, (is there such a thing? I don't think so) too conscious of it. I think you are just very wound up about this whole thing and need to relax. I'm going to give you this rx for Impramine to help you be less anxious, and I want to talk to your therapist. Also I think you can go back to work now, things seem to be resolving themselves and the medication will help even more. Just come back and see me in 4 months and we will redo the MRI's and if we see more brain damage then we can diagnosis you as MS."
This was incredible to me as I had just told him that my arms and legs had gone numb and tingly for a whole week, seizures, tremors, episodes of falling down, speech impairments, vision issues had worsened, and the headaches now were unbearable and so much more. That was the last time I saw him, and when I got the positive Western Blots back from my LLMD that were done at Ingenex I sent him copies!
Thanks for sharing all these stories...they are really good to hear so that we all know we weren't alone in the hypochondriac cave!
------------------ "Be joyful in hope, patient in affliction, and faithul in prayer." ~ Romans 12:12
Posts: 1 | From Madison, Wi, USA | Registered: Jun 2005
| IP: Logged |
"I don't have time to keep up with the regular diseases! How do you expect me to have time for something like Lyme!" "Besides, I haven't had a vacation all year because my malpractice insurance is so high!"
Kindof makes you NOT wonder why malpractice insurance is so high!
------------------
Posts: 46 | From Norman, OK, USA | Registered: Jun 2004
| IP: Logged |
Internist, Infectious disease MD at University hospital: "Even though your Western Blot came back still positive for Lyme, you were treated with antibiotics for 9 weeks two years ago -there is no way you can have Lyme now. You will just have to accept that this is a false positive and you have MS or fibromyalgia"
Found an LLMD after that one!
------------------
Posts: 46 | From Norman, OK, USA | Registered: Jun 2004
| IP: Logged |
posted
"You've had 4 negative Lyme results from Quest and look great, go out and enjoy life." Then, a few weeks later when the back pain crippled me, and the night sweats drenched me, "you don't have Lyme and you didn't have strep throat" (positive Quest test result ten days before) "you've got 'anniversary crisis syndrome' (because he knew my mother had died the year before).
Posts: 277 | From NY | Registered: Jun 2005
| IP: Logged |
posted
Several years ago, I went blind in one eye over a 12-day or so period.
Me: I can't see out of my right eye anymore (28/29 years old at the time). It happened over a 12-day period.
Quack: How do you know you can't see out of the eye? That's right. How do I know I cannot see out of the eye??????
Me: Well, what do I say to this? I had to paid $150. to him before he would see me(Ophthalmologist). I was living in Canada at the time. Dealing with the limited amount of doctors and red-tape.
Quack: Well, the only way to know what's going on with the eye is to TAKE THE EYE OUT OF YOUR HEAD AND DISSECT IT. The only problem is we couldn't return the eye back in your head(my only problem). However, this problem isn't your eye your need to see a Neurologist.
I won't even tell you about the neurologist he referred me to. After 8 months, I was finally able to see a good Ophthalmologist and neurologist. I wonder if I could have had a chance (to see out of that eye) if I didn't wait so long.
posted
My doctor said very many things to me but heres 2 things.
I had called her one day because i thought i had a seizure while driving...while i was dealing with the oil heat guy she called and my sister answered.
My sis says "korinne, dr.k is on the phone" i get on the phone and the doctor says to me "well thats pretty bad that your family knows me by my voice on the phone already"
I guess she never heard of caller ID.
Another time is... i was in her office and she was thinking that i could possibly have a tumor in my pituitary.
So i asked her while she was writing up the perscription for an MRI...."what are the symptoms of a pituitary tumor?" and she says "im not going to tell you the symptoms because you'll be back in my office the next day saying you have all of the symptoms of a pituitary tumor."
Belive me there are many times where i just wanted to smash her head against the wall The famous words i would always hear was "korinne, what am i going to do with you?"....
well i dont f-ing know, im not the doctor here...shouldnt you know? lol
those are my doctors stupid phrases.
~korinne~
Posts: 102 | From henryville. PA, USA | Registered: Jun 2005
| IP: Logged |
Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
I kept coming in and complaining of fatigue. Everytime he would check my thyroid "numbers" and tell me I was fine.
I finally told him, "If you don't do something I'm going to slip into a coma! All I do is sleep!!!"
He said, "If you don't quit complaining I'm going to write down chronic fatigue." Like that was a threat?
I said, "Well, write down something!"
Thank GOD I found my doctor.
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
| IP: Logged |
quote:Originally posted by Korinne21: My doctor said very many things to me but heres 2 things.
I had called her one day because i thought i had a seizure while driving...while i was dealing with the oil heat guy she called and my sister answered.
My sis says "korinne, dr.k is on the phone" i get on the phone and the doctor says to me "well thats pretty bad that your family knows me by my voice on the phone already"
I guess she never heard of caller ID.
Another time is... i was in her office and she was thinking that i could possibly have a tumor in my pituitary.
So i asked her while she was writing up the perscription for an MRI...."what are the symptoms of a pituitary tumor?" and she says "im not going to tell you the symptoms because you'll be back in my office the next day saying you have all of the symptoms of a pituitary tumor."
Belive me there are many times where i just wanted to smash her head against the wall The famous words i would always hear was "korinne, what am i going to do with you?"....
well i dont f-ing know, im not the doctor here...shouldnt you know? lol
those are my doctors stupid phrases.
Wait, want to write one more thing. When i had come up positive for lyme disease in august of 04' the neurologist had actually tested me and never told me i was positive until i found out on my own.
When i had faxed the results to my doctor she supposidly called an infectious disease doctor and she said to me "Well i cannot treat you because you only have 2 reactive bands on your western blot and you need 3 or more to be positive."
While my ELISA was positive and i had the 30 kda band and the 41 kda band....I demanded to be tested in 2 months and she said i was negitive....i later found out i was actually positive and the PA department of health had contacted her with a letter asking if she was going to treat me for lyme's disease.
I actually found that one out today, i got all my medical records in hand. My dad says to me "why would someone do that to you?" ...i dont know dad i really dont...she obviously did not care.
~korinne~
Posts: 102 | From henryville. PA, USA | Registered: Jun 2005
| IP: Logged |
posted
After having menigitis that didn't seem to go away last January, I was sent to a very nice neurologist, who talked to me a long time and told me he couldn't believe no one had ordered a Lyme test. He called me when the results were positive for late stage and had already made an appointment with my regular dr. office for an appointment the next day!
I took this to mean it was serious. And it explained why I have felt the way I have for, oh, 15-20 years.
When I met the dr. (he was a new one, I hadn't had before) He greeted me with - Hi, I understand you have Lyme. Do you have a tick bite for me to look at?
Posts: 35 | From SE, MA | Registered: Mar 2005
| IP: Logged |
posted
My "lyme duck" told me I just needed to loose 25lbs. So I did and then I was skinny and sick.
Posts: 293 | From healdsburg, ca , sonoma | Registered: Feb 2005
| IP: Logged |
posted
Mine said "Yes there seems to be something wrong with you but do you want to waste $10,000 of the medical systems money to figure it out" I looked at him and said YAH!!
Posts: 31 | From Canada | Registered: Mar 2005
| IP: Logged |
posted
I once told an emergency dr. I had Lyme and that I'd had it for 5 years (at that time). His eyes grew big and he said:
"if I'd get bitten that often I would really dislike ticks."
He thought Lyme made you ill for like 2 weeks or a month, so he thought I'd been bitten by at least 60 ticks over the years. Truth is I've only discovered a tick on me twice in my life, and the one that caused Lyme I never even saw. My EM was in my neck so I guess I must've overlooked that one.
Posts: 185 | From the Netherlands | Registered: Mar 2005
| IP: Logged |
posted
Best quotes from Scottish GP to date - "Have you any idea how much a Lyme test costs?". Or how about my favourite - "There is absolutely nothing that says a neurological problem can't start while you are being treated for Lyme Disease - but that does not mean you still have the disease" - anyone explain that one??.
The neurologist was the best -
Husband says "I was being treated for Lyme Disease just when this started - could it still be that?"
Neurologist says "Oh come now, I really don't think so - what do you think?"
Husband should have said "You're the b---- doctor being paid to do the thinking!" but he is far too polite.
posted
Yeah I love it when they ask you what it is. My GP said my Lyme was "just puberty". I said "that's funny, I don't see too many kids in my class with red rash all over their shaking, hurting limbs and they don't run a fever every single day EITHER." GP looks at me very annoyed and says: "Well little missy if you think you're so smart then tell me what you have and we'll just say you have that. Don't expect any treatment though."
Posts: 185 | From the Netherlands | Registered: Mar 2005
| IP: Logged |
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
I can't remember when and where this was... sometime in the mid 90s.
I went to walk in clinic because I had a sore throat and cough and wanted a strep test. During the history part I told the doctor I had lyme disease.
He knew very little about it and I felt it my duty to educate him (at least a little). I just started spouting all kinds of useful information.
After a few minutes of this he said to me, "You know an awful lot about lyme disease. WHY do you know so much about lyme disease?"
I went on to explain that I knew I had it for a year or 2 and had been through some treatment and thought it was a good idea to learn as much as I could about it.
Then he said, "You shouldn't read so much!"
(I didn't tell him I was running a support group and active in another. Who knows what he would have done if he thought I was encouraging others to read!)
Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
"Don't try to argue with idiots. They will bring you down to their level and beat you with experience."
Posts: 185 | From the Netherlands | Registered: Mar 2005
| IP: Logged |
trueblue
Frequent Contributor (1K+ posts)
Member # 7348
posted
You're right dafje.
Which reminded me of another one.
When I moved to florida, I was very concerned with finding a LLMD. I came from an area that was endemic and had quite a few.
So, I sat down with the phone book and called a bunch of doctors' offices (rhuematolgists, neurologists and even IDs) to see if any treated lyme and how they would treat.
After a few days of this I hit on a rhuemy that sounded promising. I promptly made an appoinment and had them request my records.
I was on tetracycline at the time and she said to continue with what I was on. (It wasn't helping and I was feeling worse but I did for a few months.)
When I felt so bad and knew I had to do something I asked what else we could try; she seemed flustered. (She sounded willing to treat but had no clue how.)
Then she comes out with, "You know I have patients that are in much worse shape than you in wheelchairs, etc. that are working full time."
I ran from her office so fast. She didn't understand the first thing about lyme disease nor did she hear a word I said in those months. (Like I would have chosen to live on pennies a month and be sick and in pain because it was a great deal.)
I called all over the country until I got a referral to my present LLMD. Heh, my disability review papers came a few days later. I can't say enough about good timing.
Please note: Stay away from the rhuemy-duck S. in Boynton Beach Florida.
Posts: 3783 | From somewhere other than here | Registered: May 2005
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
double post
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
upy
Would like to see this in general very good one.
-------------------- Do unto others as you would have them do unto you. Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.
posted
I have more than one. They go something like this:
1. The ID dr I first went to said "and stay off the Internet, learning about Lyme things. I know."
2. Went to emergency around 3am with a high fever, palpitations etc. I didn't know it was a herx and my parents were frightened by my increasing temperature.
The emergency dr told me: "you just need a good night's sleep. That's all. Plus remember, you have MS."
Oh well . . .
-------------------- Be well, SAK Posts: 371 | From Up North | Registered: May 2005
| IP: Logged |
posted
I was also told not to read so much, told about a medical student that read the merck manual and then thought she had every disease. Told I should just get on with my life, got the brush off when I showed the beginning stages of muscle wasting, just a multitude of hints that I was a hypochondriac. Guess if it isn't severe enuf to be noticed by the clerk at the grocery store, or you walk in on your own two feet, instead of being wheeled in, it isn't serious. Offered a whole raft of expensive supplements.
This was not a duck and I was paying big bucks to see him. So, it isn't just ducks that say outrageous things.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
Carol B
Unregistered
posted
I have laughed till I cried reading this thread. Whew-almost fell off my chair-it is all soooo painfully funny.
Referred to gastroenterologist for chronic diarrhea-asked if it could be related to lyme-he told me to lay off the laxatives! but I never take laxatives-then go see a shrink. Yeah like I set myself up to poop my pants in the elevator.
Referred to neurologist who diagnosed seizures and ataxia-asked if it could be related to lyme-told me to lay off the booze- I have been sober for 30 years-not a drop.
Showed GP a rash-Eureka! a fading EM he declares, on my stomach-has me show it to his co workers as if he has just won a prize for the day. Then he examines me and combs through my down under hair for the TICK! Notice I said FADING EM rashl How long do those little buggers hold on anyway. ?
Treated me for two weeks with normal dose Ceftin-after looking it up in a treatment book. How naive I was back then.
God Bless the LLMD's willing to risk all to help us heal.
I am the doc and you cannot think for yourself and tell me what you think you have as you dont have a medical training...
and the list goes on..... eric
Posts: 593 | From long island ny | Registered: Apr 2006
| IP: Logged |
cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
this one is getting a lil worn out with me but
yesterday morning they sent a resident duck to my room....the kid had to be 25..atleast he looked that young.
He says that the hospital is not the place i want to be, sick people are in the hospital , i am young and healthy and believe it or not the hospital has a great affect on people
once i get on with my normal life i will see that things will fall into place. Im young like him and even going to work at a hospital gets to him.
what a hoot...this after my bladder bled for 24 hrs and had to be irigated and i couldnt walk once out of the bed. I cried while he visited me. Then later realized he was just a duck. ugh.
Lucky for me the good duck came to visit...great bedside manner...more of a real human then a duck...and lifted my spirits. said lyme was why my bladder bled. Hoorah for the humans.
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
| IP: Logged |
posted
Long before I knew I had Lyme . . . I had a host of chronic problems, beginning at age 4 with daily headaches, extremely tight, painful muscles my parents said were "growing pains," extremely frequent urination, and as I moved through grade school depression, major bowel problems, etc.
My mom was sick from the time she had me with all of the above and much more, so by 8th grade my dad took me in to my pediatrician to figure out what was going on. I described my bowel problems, headaches, and muscle aches and mentioned that my mom had all these things. Maybe I had IBS or something that she had . . .
Before I could go any further he cut me off and said, "Kids your age don't have these problems." I started to protest - I mean, c'mon, I don't make this stuff up - I want to be normal and healthy! - and he cut me off and smiled patronizingly and winked and said, "You're fine."
Needless to say, after being kicked out of his office, my dad and I were pretty upset. Now we know that I have had Lyme at least since I was four (suspect I may have gotten it from my mother in the womb). I have babesia from who knows where, extremely elevated levels of mercury and lead, and chronic exposure to Stachybotrus black mold.
I'm just fine. Thanks for listening, Doctor Duck.
Posts: 45 | From Pittsburgh, PA | Registered: Nov 2005
| IP: Logged |
groovy2
Frequent Contributor (1K+ posts)
Member # 6304
posted
Hi all
I swear this is 93 percent-- True--
About 5 years after I got sick- I went to see a Stomic doctor--
I had no idea what was wrong with me but I was perty sure I had - Candida for starters--
I was laying on exam table 30 min. naked except for one of those paper exam robes--Very cold- (Meat Locker)
The doctor was a Germen Dude- about 50 or 60 --tall and skinny with thin white hair-- He walked very fast-
He was wearing a White Lab Coat and looked like the- - Fearless Leader- on the Bull Winkle cartoon--
When the doc came into the exam room he walked quickly to his desk - sat down and started looking at my forms
He said Nothing to me--
After a minute or so I asked if he was the doctor? He answered with Supreme Athority that-- He Was--
From his top pocket he pulled a Monical and put it in his right eye glanced at me- Once
Then continued to look at the forms and Mumble to Himself-
I had brought a Very Complete list of my symptoms with me-
(full page-turns out it was a very complete list of Lyme- babs symptoms)--
I got up off the exam table and walked over to the doc and handed him My Symptoms List --
He looked somewhat Supprised that- I had approched him and had handed him this list--
He examined the list for a few seconds and started putting big check marks beside each symptom and said nuro doctor for this--Bone doctor for that ect.
Well- I then told the doc that I thought I had Candida--
He looked up from the papers-- Blood Vains in his bald head started to Pulse and Grow-- His face turned Really Red -Quickly--
He then Shot out of his chair to his feet-- Kind of startled me so I stepped back--
Then All of a Sudden he started Jumping Up and Down - Yelling-
There is No Such Thing as Candida--- Over and Over and Over---
It took me a few seconds to figure out what I was witnessing-
Thought Maybe I was on -Candid Camera- or something
You Know Me- I am not one to pass up a Good Jumping Up and Down Session --so I Joined In--
We were Both Jumping Up and Down
We were both getting some pert good air-and was kind of fun-
He just keep Jumping and Yelling-
There is no such thing as Candida- with a Crazed Look on his face-
All of a Sudden he stopped Jumping and his face turned Bright Red--
Then with a POP- the Monical he had in his right eye- shot out and bounced off the wall 3 feet away and landed on the floor --
I was in Mid Air and the Monical landed right under me --
My foot landed right on his Monical and shattered it with a Crunch --
I could see this was going -No Where- so I grabbed my forms and threw them in the trash--
Then I grabed my cloths and Hopped Out of the exam room-
Leaving the ducktor still- Hopping and Yelling--
I thought the Big Veins in his head were going to Explode - and I did not want to get Any On Me --so I hurried-
I was Butt Naked except for the paper robe --
Im sure Patients and Nurses could hear all this going on-- Was Perty Loud-
I asked his receptionest if the ductor was like this All The Time --
She did not say a word but the look she gave me I feel this was common--
I hopped out to parking lot of the hosipital and put on my cloths--
Total time seeing ducktor- Maybe 4 minutes--Cost-$175
Ok-Ok I did not hop to parking lot -I walked--Jay--
Posts: 2999 | From Austin tx USA | Registered: Oct 2004
| IP: Logged |
posted
One of the ducks who saw me said: "I want you to know that I don't believe in chronic Lyme disease. I believe in it as an acute illness, but I don't believe it becomes a chronic condition."
Just what does he think happens if the acute illness doesn't get treated?
Posts: 449 | From Pasadena, CA, usa | Registered: Aug 2005
| IP: Logged |
posted
"There is absolutely no way you still have Lyme Disease. You were treated with six weeks of Rocephin. That is all the guidlines call for. It's all in your head. You have Fibromyalgia and CFS. We're testing you for MS as well. But, no, we will not explore your previous bout of Lyme Disease. that part of your life is over."
-------------------- Sometimes when I say �Oh, I�m fine� I want someone to look me in the eyes & say �tell the truth�
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic