nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
My abx just quit working. I was doing really well and then I plunged again with both bartonella and lyme symptoms coming back. I had not had any lyme symptoms for a long time - maybe a year.
So I upped the abx. Taking the tindamax 7 days this week instead of two and added in augmentin for the blood form of lyme yesterday. I was worried about the augmentin because last time it seemed to make my tongue swell. I have been taking Bactrim DS and zithro.
Today I had really bad diarrhea, like water. I have new symptoms as well. There is a lump behind my ear which hurts when pressed. It is against the skull.
I have had trouble with my voice becoming hoarse and that is getting worse. Cramps are worse as are headaches, burning shins,hot flashes, some muscle twitching and tingling sensations and feeling of being stabbed by needle.
I just don't understand this. Why is it coming back so quickly and why is it getting worse on more abx? Should I quit the augmentin due to the diarrhea?
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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I know someone who always got very bad diarrhea from augmentin. How are you with probiotics and anti-yeast stuff?
Is the lump possibly a gland?
Posts: 758 | From now TX | Registered: Mar 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
I am taking probiotics every day and I also take nystantin to help prevent yeast. While I was on rifampin (which does nothing for me) I got bad yeast.
I don't know what the lump is as it is on the skull and very hard. Before when I relapsed in the fall I was only on herbs but this time full abx so I think it is just impossible to prevent.
Searching the forum, a hoarse voice seems to be related to bart.
I am quitting the augmentin. It was amoxy (also in augmentin) that seemed to make my tongue swell, not augmentin, so I will try it later, when I get the diarrhea under control.
Kind of worried I am at the end of the line for abx.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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posted
I would try olive leaf extract for the diarrhea. Or maybe goldenseal capsules. Both should help rebalance your G.I. bacteria.
The higher dose of tindamax is probably what you are reacting to.
Hubby has actually been having some sweats from Tindamax. Since it is an antiparasitic med I think it may have a slight effect on babs and other bloodborne parasites.
My guess is you are herxing rather than getting worse. I know it is so hard to tell.
Hang in there.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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posted
Probiotics (At least 20 billion/day. 100 billion+ may be better right now) Florastor (can be tricky to take with anti-fungals) Grapefruit seed extract for yeast/diarrhea (may herx from it. Some studies indicate it is more potent than Flagyl) Colloidal silver for yeast and bacteria. (Potentiates all antibioitcs as well)
Forget Nystatin. Diflucan and Silver are better.
Flagyl for diarrhea if it's C. Diff and if the above doesn't do the job.
(These are just ideas, not medical advice)
More importantly, what are you doing for detox and for your terrain? Is there an ND you can see?
Are you under the care of a doctor? It sounds like every time you get better from antibiotics, you relapse quickly. It doesn't sound like your immune system recovers for whatever reason.
While I think one should always take caution when using immune system boosters with Lyme and co-infections, maybe something like Transfer Factor Multi-Immune would help.
Are your WBC counts below the normal range?
Posts: 967 | From A deserted island without internet access | Registered: Sep 2009
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posted
That's a lot of meds and I know MY gut would be distressed too!
kday has some good info there! I hope you feel better soon!!
Nystatin is pretty good... how much are you taking?
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
Thanks, I quit the augmentin and that helped with the diarrhea - not as bad today. I think it is the increase in tindamax that is giving me this horrible headache today. I was completely out of it mentally too.
It would be nice if it was a major herx but i don't know. I will have to get the goldenseal, olive leaf extract but I have a lot of probiotics. I have grapefruit seed extract and can add it in. I do believe diflucan is better than nystantin because it has activity against lyme - but the last LLND would not give it to me for some reason.
I started chlorella. I also have a drink for detoxing. Just have to remember to take all of this stuff - so much.
I will look into Transer Factor Multi Immune.
I don't know where my blood work stands. I had a blood test a month ago and the doctor never called so guess it was ok.
I decided the lump is not serious. I think my sunglasses may have caused it. I guess that was a bit too reactive - but so much is happening all of a sudden.
Thanks again
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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lyme in Putnam
Frequent Contributor (1K+ posts)
Member # 11561
posted
Hope you feel better.
-------------------- He took u to it, He'll you through Posts: 2837 | From NE. | Registered: Apr 2007
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WildCondor
Unregistered
posted
I would call your doc and sto pall antibiotics until your diarrhea is resolved. I would make SURE you are on Florastor and good quality probiotics as well.
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quote:Originally posted by nefferdun:I do believe diflucan is better than nystantin because it has activity against lyme - but the last LLND would not give it to me for some reason.
What do you mean it has activity against Lyme? He probably didn't give it because it is hard on the liver...
And speaking of liver, some lemon water can help get these toxins out of your system faster, and helps with the body's pH. Just one lemon (and maybe a lime if you have it) squeezed in a glass of water, and alittle sweetener
i understand so much abotu fighting bart and lyme and almost having to do it yourself because of complications. my complication is yeast and a (pardon me) screwed up immune system. sometimes you just want to give up... and every onc ein a while, I do, just for one day, then the next day I try again... sometimes you need it just to keep your sanity
Posts: 161 | From Southern United States | Registered: Sep 2009
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