I would appreciate any feedback re.treating Chronic Lyme while dealing with Ulcerative Colitis.
I have a 20 year history of Auto-immune Ulcerative colitis. Anti-biotics usually set off the UC, which can only be controlled after a certain point by steroids, which of course ramp up Lyme growth.
I'm trying to find my way to doctor/treatment that can work within this catch 22.
Does anyone have any experience with this, or know of a gastro-enterologist anywhere who is Lyme literate?
Thanks!
Posts: 8 | From Tucson, AZ | Registered: Jun 2010
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TF
Frequent Contributor (5K+ posts)
Member # 14183
posted
I know that one person with lyme who also had crohn's disease wanted to see a certain lyme doctor and he recommended that she see Dr. J. in D.C. instead.
So, maybe he has had success with these kinds of cases. You could call his office and ask.
I will be surprised if you find a gastro who is lyme literate. I think you have a better chance of finding a lyme doc who knows how to handle the lyme patient who also has gastro diseases.
Posts: 9931 | From Maryland | Registered: Dec 2007
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D Bergy
Frequent Contributor (1K+ posts)
Member # 9984
I control my Crohn's with Miracle Mineral Supplement and Low Dose Naltrexone. MMS is tough to take if you have Lyme, as it will kill quite a lot of it quickly, and it is hard on the Stomach.
MMS is not approved to treat anything, and the FDA has actually banned its sale and discourages its use.
I only have Crohn's so it works well for me.
Dan
Posts: 2919 | From Minnesota | Registered: Aug 2006
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posted
Tf- that happened to me. I did see dr.j and my crohns seems better.
-------------------- gatorade girl
"I still have Mt.Everest to climb, but I have traveled across the world and arrived at the mountain". Posts: 633 | From baltimore | Registered: Mar 2010
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posted
I take Gastro Complete and Sea Buckthorn FSE made by NewMark. I beleive it's available at Health Food stores or google it.
I had C diff and gut issues for close to 3 years.
Tried many multiple things and went to numerous Dcotrs. This is the only thing that has worked. Even my ART Dr. couldn't fix my gut. I take 2, 2 x per day of the Gastro Complete which is a Probiotic and 1 2x per day of the Sea Buckthorn.
A Dr. that I'm currently treating with for gut issues prescribed this. This is the only thing that has made a difference. This Dr. treats colitis and many other gut issues.
Posts: 911 | Registered: Mar 2005
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-------------------- Son, 26, Dx Lyme 4/10, Babs 8/10 Had serious arthritis, all gone. Currently on Valtrex Daughter, 26,bullseye 7/11 arthritis in knees, cured and off all meds. . Self:Lyme, bart, sxs gone, no longer treating. Posts: 496 | From Washington, DC | Registered: Jul 2010
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posted
I too would really appreciated the contact information for Dr. J in D.C. I hope that you get some relief Burgess and are able to find a specialist that knows and believes in the mess lyme can do to the gastro tract.
-------------------- I found my original identity! It has been a bit over 12 years...can't blame me for forgetting my password, right?!!
Member red (Member # 1886) Registered: 26 November, 2001 70 posts Posts: 164 | From NJ | Registered: Jan 2009
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