posted
I was just looking at different Lyme disease websites and found this. I remember hearing on here or somewhere else that a rash only appears in 50% of cases? Reading things like this make me sometimes question my diagnoses.
Pinelady
Frequent Contributor (5K+ posts)
Member # 18524
posted
Yes but for those just looking==they may hit the American Way first....
Then they will continue to be lost.
I wish someone would make them change this---as it is a downright lie. Among others.
-------------------- Suspected Lyme 07 Test neg One band migrating in IgG region unable to identify.Igenex Jan.09IFA titer 1:40 IND IgM neg pos 31 +++ 34 IND 39 IND 41 IND 83-93 + DX:Neuroborreliosis Posts: 5850 | From Kentucky | Registered: Dec 2008
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posted
I had no rash ever, but did test positive on western blot through Quest (which I've been told is pretty rare due to their poor testing protocols).
-------------------- June 2009: Lyme IGM 23 and 39 positive, Titer 1.12. September 2010: Rediagnosed with Lyme as well as Babesia coinfection. Posts: 27 | From Pennsylvania | Registered: Aug 2010
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posted
had no rash either, there a fraud just like IDSA.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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posted
also do you see their treatment guideline, the most they say is 28 days of abx. haha, yeah right.
-------------------- 3 months Doxy 8 months of Tetra 7 months of Biaxin/Plaq. 4 months Doxy/Biaxin/Plaq. 5 months Biaxin/Plaq. Back on Doxy/Biax/Plaq On the road to recovery. Trying to make people Lyme Aware....... Posts: 289 | From R.I. | Registered: Jun 2009
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
I had no rash that I know of... was also bitten when I was a child... way before Lyme was discovered. So if there was a rash, no one would have thought that much about it.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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WildCondor
Unregistered
posted
In case you have not learned...the American Lyme Disease Foundation is unreliable. Go to ILADS.org
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American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.
-------------------- You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You are able to say to yourself, 'I lived through this horror. I can take the next thing that comes along.'
---Eleanor Roosevelt Posts: 748 | From somewhere | Registered: May 2010
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American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.
No way they would do that. They are an arm of the IDSA... or maybe it's a leg!!
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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cactus
Frequent Contributor (1K+ posts)
Member # 7347
posted
quote:Originally posted by Lymetoo: They are an arm of the IDSA... or maybe it's a leg!! [/QB]
Or maybe an armpit?!
-------------------- �Did you ever stop to think, and forget to start again?� - A.A. Milne Posts: 1987 | From No. VA | Registered: May 2005
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posted
I'm not sure they should even put a percentage
on how many May get the rash. In my
experience I knew something was wrong with me
because of all the symptoms I had but I
accidently found the rash.
I was dragging myself around the house, the
fatigue was like nothing I ever had and I went
to take a shower and when the spray hit my back
it stung and I thought " now what", I had
terrible pain from my neck to my lower back and
everywhere in between, fever and as I said
fatigue and so when the water hit my back I got
out of the shower to look at my back and that's
when I saw the bulls eye rash. If I would have
taken a bath instead I would have never known
the rash was there. So how many times does that
happen? Percentages mean nothing.
Posts: 158 | From PA. | Registered: Jul 2006
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
"American Lyme Disease Foundation---maybe these folks need to attend an ilads conference or 2 or 18.
No way they would do that. They are an arm of the IDSA... or maybe it's a leg!!"
My bet is many still haven't had their lips surgically removed from Bumsteere's butt yet... which could explain the reason their thoughts are so scrambled.
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