posted
I have tested negative several times on the standard Lymen, IgG and IgM test. Tomorrow I get results from the Western. I am wondering what I should know about this test. What if it is negative? What if Positive?
I have a long list and hundreds of exposures: Horrific pain, edema, mental changes, liver cysts, LBBB, neuralgia in shoulder and arm, eye pain, insomnia, fatigue, depression, carpal tunnel, extreme sensitivity to touch, transient dysphonia, muscle spasms, night sweats, RLS, hearing loss, tinnitus, plantar fasciitis, and insanity to name a few.
I finally recalled the rash: it was in 1986.
I am terrified of either answer, pos or neg. My non LLMD has said he has nothing for me, and has referred me to a psychiatrist.
What should I know, ask about the results of this test? What other tests should I have if this one is negative?
Posts: 31 | From Wisconsin | Registered: Aug 2010
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dmc
Frequent Contributor (1K+ posts)
Member # 5102
posted
Was your Western Blot done at Igenex?
Igenex Lab specializes in Tick Borne Diseases & they test all the "bands" not just the CDC surveilence bands.
-------------------- sixgoofykids.blogspot.com Posts: 13449 | From Ohio | Registered: Feb 2007
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
You need a LLMD(lyme literate medical doctor). Lyme Disease is a "clinical" diagnosis and a Lyme doctor will diagnose you based on your symptoms and history. Lyme test are only used to back up the clinical diagnosis.
Non lyme literate docs do not know how to read a WB. It is best to go and get a copy of your Western Blot, so you can see for yourself and to take it with you to your LLMD appt.
Many ppl with LD test negative because the tests are inaccurate. That is why LD is a clinical diagnosis!
Posts: 4035 | From Mississippi | Registered: Jul 2008
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