richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I sleep well every other night. Many nights I get little sleep and the further I go in treatment, the less sleep I get. I know I need lots of sleep to get better, but I can't sleep, period! ****es me off!
Sleep on my left side and my arm kills, sleep on my right side and my right foot kills, sleep on my back and my upper back kills. I can't win.
What the heck do I do? Doc does not like to hand out sleeping pills.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
I can only sleep a couple hours without drugs. Tried every supplement there is. I do take supplements also, though.
Posts: 847 | From upstateNY | Registered: Dec 2007
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posted
I usually do well with sleep until I herx bad and then I'm up off and on from, what feels like, sleep apnea and hallucinations (not fun!). So far, though, I've not needed any sleeping aids.
Posts: 256 | From Texas | Registered: Jun 2010
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METALLlC BLUE
Frequent Contributor (1K+ posts)
Member # 6628
posted
I wake up feeling so hung over.
-------------------- I am not a physician, so do your own research to confirm any ideas given and then speak with a health care provider you trust.
posted
I can't sleep without pharmaceuticals. NOPE.
Rich.. I hear you on the painful body parts. I spend 95% of the night on my back. Can't last long on either side.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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nefferdun
Frequent Contributor (1K+ posts)
Member # 20157
posted
It does sound like pain is waking you up. I had a similar problem when I got tendonitis from levaquin. I had to try to sleep sitting up for 8 months. It was impossible.
Then I started taking amino acids, which repair tendon damage etc. Specifically I found out DL Methionine works best for me. I also take Lysine and cystein and carnitine. But Methionine is a precursor to SAMe which helps with pain and it repairs damage. I take 500mg a day but you could try much more. Since the first night I took it I have not had the pain. I have read some people use whey products for the same reason - amino acids.
I also take magnesium, B12 for nerve damage and muscles.
A very good herb for sleeping is Corydallis root which also helps with pain. It is supposed to be 40% as powerful as morphine. I have taken two capsules at bedtime for over a year with no side effect, no hang over and no resistance. It is so much better for me than ambien which affected me mentally.
Drugs can cause me to have insomnia. I take tindamax twice a week and can expect a difficult night. Bart is horrible for insomnia and treating it makes it all worse - until it gets better.
Knock on wood I am sleeping now.
-------------------- old joke: idiopathic means the patient is pathological and the the doctor is an idiot Posts: 4676 | From western Montana | Registered: Apr 2009
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kidsgotlyme
Frequent Contributor (1K+ posts)
Member # 23691
posted
I have terrible pain like that when I sleep in ANY bed except my sleep number bed. It's the best.
-------------------- symptoms since 1993 that I can remember. 9/2018 diagnosed with Borellia, Babesia Duncani, and Bartonella Hensalae thru DNA Connections. Posts: 1470 | From Tennessee | Registered: Dec 2009
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
i do the same thing. sleep for a couple of hours then wake up. feel like i've been run over by a truck.
tried the ambien/lunesta. had horrible reactions, talking in my sleep, jerking, etc.
otv sleep meds work a little but again, hung over. have tried flexeril but don't like to take it every night.
it really wears you down.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
"tic-sibs"? Don't see it.
quote:Originally posted by missing: just read in a link here that ambien works well
I take Cymbalta for pain and sleep. I also take zopiclone.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
Can Corydallis root be mixed with OTC drugs like Sominex?
Where to get Corydallis root? I don't want to pay shipping. I'll keep trying health food stores. I checked Whole Foods and they looked at me like I was nuts when I mentioned Corydallis root.
I had another bad night last night. Awake by 4am and unable to get comfortable or fall back to sleep due to pain!
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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linky123
Frequent Contributor (1K+ posts)
Member # 19974
posted
My son has sleep problems. They did a sleep study and his sleep architecture was awful. So they gave him Ambien. It gave him double vision and made him really confused. Had to take him to the ER.
We found a natural supplement called Bio-Nite. which helps him a lot. You have google and get it online. I don't think the health food stores have it. It contains melatonin, valerian root and chamomile. His lyme is in remission now which has obviously helped. But the Bio-Nite helped even before remission. He still takes it because he says it helps keep him from waking in the middle of the night.
Unfortunately, we have to pay the shipping because we can't find it locally, but it has been worth it.
-------------------- 'Come to me, all you who are weary and burdened, and I will give you rest.' Matthew 11:28 Posts: 2607 | From Hooterville | Registered: Apr 2009
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BackinStOlaf
Frequent Contributor (1K+ posts)
Member # 23725
posted
Throughout everything, I haven't had any sleep problems thankfully
-------------------- First Symptom 9/09 Multiple docs, negative Labcorp test LLMD: 1/10 Positive Igenex/CDC test Treatment 2/10 2/10-8/10 Amox, ceftin, zith, flagyl Currently: Bicillin, Minocycline, still dealing with severe breathing issues
Posts: 1121 | From New York, New York | Registered: Dec 2009
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