posted
Hi! I would really like to find a LLMD in Southern AZ, preferably Tucson. That is where I live, but I really don't think there are any here. It's a wish though! So, I am open to any in AZ, NM or CA.
I was diagnosed w/ Lyme Disease last April, and I am currently seeing one of the great doctors on the East Coast. Although he is considered to be one of the best, I am struggling to get to appointments because he is so far away. I can't fly because my dysautonomia is so bad, and I also have MCS (Multiple Chemical Sensitivities). So, traveling for me is extremely difficult as my husband and I have to drive. I am just not sure if I will be able to make the trip to the East Coast again. It takes a long time and staying in hotels is a bit of a nightmare with my sensitivities.
My case is pretty strange as Lyme has taken up root in my autonomic nervous system causing horrible random allergic reactions (I am pretty much allergic to the world) and severe dysautonomia. I really need a physician who is attentive and who thinks outside of the box. I am so allergic to things that it's hard to find medicaitons and supplements that I can take that don't make me react. I have a whole slew of other symptoms but those two are the worst. I haven't fully decided if I am going to make the switch, but it would definitely take some pressure off of us if we could find someone closer. Thanks for your help!!
Posts: 6 | From Tucson, AZ | Registered: Aug 2008
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posted
Hi - I'm not sure if this might help in your case, but I'm highly allergic too, and did the detoxigenomic liver bloodtest through Genova Diagnostics lab in NC -
it shows our genetic capacity to detox or not in 8 enzyme pathways in Phase I and 4 out of 10 drains in Phase II of liver detoxing. The results are helping my doctor figure out how to start treating my sensitivities.
Another approach that is working for me as a chemically sensitive person are some anti-inflammatory supplements - so far they are mangosteen juice, grapeseed capsules and noni juice. Symptoms are going down.
We're all different in how we respond to things.
Posts: 13171 | From San Francisco | Registered: May 2006
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posted
Hi Robin123! Thanks for your post. So, I am curious...how did the testing help your doctor start treating some of your symptoms? Are you doing the immune modulator treatment that sometimes people w/ MCS do? Or is your doctor working with you on a detox program? Just curious.
I have thought about trying to find a doctor who treats MCS so they can work on that side, but there is noone in Tucson, AZ so I would have to go to Phoenix. That's not too terrible except for the fact that I am too sick to go by myself and my hubby can't take off work. Nothing is every easy, lol. Thanks again for your post! Posts: 6 | From Tucson, AZ | Registered: Aug 2008
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posted
There are supplements we can take to help the pathways that show up deficient in the test, primarily for the drain pathways of phase II.
No, I'm not doing the immune modulator treatment. I actually don't know exactly what you're talking about. Maybe I'm missing something!
I would like to detox more, but it's difficult for me.
Do you want any CA doctor referrals? You can pm me about it, or ask me here and I can pm you.
For medical discussions, we can continue to have one in Medical Questions, if you like. That way, more people will read the discussion and comment. Decide what you want to call your post topic and start a medical discussion there.
Posts: 13171 | From San Francisco | Registered: May 2006
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Hi, sonshine, you said that you are too sick to go to a Dr. in Phoenix by yourself and that your husband cannot take you.....so are you still interested in names of LLMDs all the way to California?
I think I am missing something here also......
Please let me know what you would like, thank you.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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posted
Good catch, sorry...I am confusing myself, lol. I'll blame it on the Lyme. For the MCS doctor in Phoenix, they would want to see me every week for treatment. That is too much for me to travel by myself and my hubby can't miss that much work.
However, in the case of an LLMD, hopefully we can find one that is willing to work with us long distance so we would only have to see him/her every 2 or 3 months. For those appointments, we would be willing to travel to CA because my family is willing to help us out with appointments if it is spaced that far apart. My family lives in Nebraska so they will have to travel far to help me make it to the appointments, but they are much more willing to do that then help me drive to the East Coast which would take a minimum of 3 days each way.
Anyways, any recommendations would be appreciated! I would prefer AZ and NM, but CA is a possibility for us too. Feel free to PM me! Thanks!
Posts: 6 | From Tucson, AZ | Registered: Aug 2008
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posted
Ok - thx - am pm'ing -
Posts: 13171 | From San Francisco | Registered: May 2006
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Okay, sonshine, I think I understand now.
I'll send you some information now. I truly hope you find a very good Dr. that can help you.
I do have some recommendations for you. Let us know if there is anything else we can do for you.
Hoping you will be on the path to healing very soon. Take care of yourself sonshine.
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Nothing is every easy, lol. Thanks again for your post! ![[Wink]](wink.gif)
For the MCS doctor in Phoenix, they would want to see me every week for treatment. That is too much for me to travel by myself and my hubby can't miss that much work. ![[hi]](graemlins/hi.gif)
Take care of yourself sonshine.
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