posted
I am a 36 year old mother of three diagnosed with CNS Lyme in Dec '09. I had my third child in July of '09 and slept in the living room with her - where my dog also sleeps. Had a strange looking bulls-eye like rash on my inner thigh two days after coming home from the hospital which was misdiagnosed as ringworm.
Needless to say, hives appeared shortly thereafter and two courses of steroids later I began to have the symptoms of CNS lyme.
I had a PICC line inserted in Dec '09 - 30 days of Roceferin (sp?)... prior to that 2 x doxy and was bit again in April of '10 - more doxy.
Symptoms are getting worse, being sent to neuro-opth, MRI of brain is clear as of Nov of '09 - might be thinking MS... Looking for some help.
Thank you for this website. I feel better knowing someone gets it! Posts: 1 | From Upstate New York | Registered: Jul 2010
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- As you had the classic bulls eye, a lyme literate MD is in order. MS usually misdiagnosed with lyme or similar infection being the underlying cause. Proper treatment often clears symptoms but 30 days is not long enough.
I don't usually work with lists here but see that there has been an explosion of requests and the person(s) doing this are probably very overwhelmed.
Until someone sends you a PM with a list, you might find your area lyme support group and start there. Good luck.
Find your area Lyme Support Group -
Posts: 48021 | From Tree House | Registered: Jul 2007
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Siciliano
Frequent Contributor (1K+ posts)
Member # 15920
posted
Thank you Keebler!
Hi, troymack and Welcome! We are happy to have you. I sent you a private message (pm), click on the flashing envelope.
Also, check out our great "Medical Questions" forum where you can ask all the questions you might have and our wonderful, knowledgeable members will answer them. Just read some of the threads and you'll see just how informative they are!
-------------------- I'm sorry but I am no longer accepting any private messages due to my own battle with lyme. Posts: 3897 | From New Hampshire | Registered: Jun 2008
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Nancy2
Frequent Contributor (1K+ posts)
Member # 95
posted
PM Sent!
Posts: 1487 | From New England | Registered: Oct 2000
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posted
Hi Troymack, sorry for what youre going through..sending pm with great neurologist whose specialty is ms. but very experienced with cns lyme also. hope youre on meds in the meanwhile., be well
-------------------- The closer you get to G-D The closer He'll get to you.
Be who you are, and say what you feel...the people who matter don't mind...and the people who mind , don't matter. Posts: 98 | From In the woods by a stream in beautiful Catskills NY | Registered: Jun 2010
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