posted
Searching for a lyme literate doctor asap in Chester County Pennsylvania or Paoli, or area near by.
Had 3 tests that came out negative, but want to be sure and send to right lab to make sure it's not Lymes. Having lots of symptoms, no answers from Neurologists with lots of tests. Any advice/info would be appreciated.
Posts: 3 | From Malvern, pa | Registered: Dec 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi and welcome to lymenet!
I sent you a private message with info for PA.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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-------------------- Let us not become weary in doing good,for at the proper time we will reap a harvest if we do not give up. -- Posts: 247 | From HOME | Registered: Oct 2011
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richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
I live in southeastern PA and haven't found a good one yet.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
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posted
What types of tests should a llmd do? I had 3 negative lymes tests through cdc and then i had one done by llmd through igenix and he said it was positive. I've started antibiotics oral, but i feel horrible. Im worndering if lymes is what i have and i'm feeling so discouraged with no one giving me any diagnosis. Right now my bladder is very tender and my stomach feels like it's in knots..also exhausted and weak. I want to ask my llmd to do more tests to defintely show that it's lymes...what should i ask him about? It's all so confusing!
Posts: 3 | From Malvern, pa | Registered: Dec 2011
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Hi kitkat01,
Most people do feel worse before they feel better.
You are probably herxing from the die off of bacteria.
I think it would be helpful to you if you posted your questions on the Medical Questions Board so everyone will know how to help you.
People with chronic lyme do not feel better in a matter of weeks or even months.....think it terms of a couple years or more.
Have you been reading ILADS info to learn about chronic Lyme disease?
Have you had some coinfection testing? (Babesia, Bartonella, Ehrlichia, RMSF, etc)
Please be patient....it takes time. I have been treating for 3 years and 2 months.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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