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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking OREGON LLMD

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Author Topic: Seeking OREGON LLMD
2lymesnococonuts
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for 3 kids and mom

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momof2Lymes

Posts: 1 | From PhoenixAZ | Registered: Oct 2014  |  IP: Logged | Report this post to a Moderator
Keebler
Honored Contributor (25K+ posts)
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IF this is for a very recent bite and there is a visible bulls eye rash, they may have some kind of a chance for abbreviated treatment. IF a brand new case, there have a been a few to get a very short course of one antibiotic but others who are still being turned away even with a fresh bulls eye.

I'm so very sorry to tell you that there are no LLMDs in Oregon. Oregon doctors (as instructed by the Oregon Medical Board) are fiercely opposed to even the idea of lyme, clueless about coinfections, much less the need for combination treatment or for extended time.

And don't even whisper a request to assess the possibility of "chronic lyme" near an MD in Oregon.

"There is no lyme in Oregon" is the unwritten law of the medical board which governs MDs.

However, there are a couple LL NDs who are ILADS educated and there is an active lyme support group that meets once a month. Contact them for all options in your health care providers, testing, etc.

An ND is a naturopathic doctor. Not all know about lyme (or know enough) so be sure anyone you see is ILADS educated. There are at least 2-3 in Portland and a few others around the state.


http://lyme.kaiserpapers.org/oregon.html

Lyme Disease in Oregon

The Kaiser Papers – not by or from Kaiser Insurance but about how they deal with lyme inquiries

Also gives background regarding lack of lyme assessment / treatment in general, regardless of one’s insurance coverage.

OREGON SUPPORT GROUPS listed at BOTTOM OF PAGE
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[ 10-08-2014, 01:44 PM: Message edited by: Keebler ]

Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
Keebler
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Other than to see one of the few Oregon ILADS educated LL ND, many in Oregon jump north to Washington state or head south to California to see a LL MD - or travel elsewhere.


http://lyme.kaiserpapers.org/washington.html

Lyme Disease in Washington state

Scroll down for WASHINGTON SUPPORT GROUPS at BOTTOM OF PAGE


On-line support (and to see what others suggest) through www.LymeDisease.org

http://www.lymedisease.org/resources/referrals.html

Doctor Referrals - any state

http://www.lymedisease.org/resources/support.html

On-line support for those in CALIFORNIA above, other states below.

http://health.groups.yahoo.com/group/YOURSTATENAMELyme

Just zipper in the state name where you seek a LL doctor. To join for discussion, best to join in your own state.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! None in Oregon, sad to say.

If this is for you and your family or whoever needs this information, then you need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

They are far and few between, unfortunately. You need to go where they are.

Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.

Check the online state Lyme groups at:
http://health.groups.yahoo.com/group/oregonlyme

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/oregon.html

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

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Keebler
Honored Contributor (25K+ posts)
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One more thing - a very important matter for any parent. You say your friend / family member (?) has 3 children but don't say if they may need to be assessed or you just posted that to show she has her hands full, anyway.

If her kids might need to be assessed / treated for lyme or other tick-borne infections, she should be very careful with whom she shares this detail. VERY careful. My hands numb now. must stop. support groups FIRST to talk with. No one else just yet.
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Posts: 48021 | From Tree House | Registered: Jul 2007  |  IP: Logged | Report this post to a Moderator
   

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