posted
I was bitten by a tick 5 1/2 years ago when I lived in Philadelphia (a very high rate of Lyme-infected ticks). I was very sick while the tick was in me, and then started getting better after it was found and removed.
I got sick again and my doctor did a blood test that came back negative. For the last 5 1/2 years I've noticed getting sick more often, and differently than "regular" sick.
This past July I asked my doctor in Texas to test me for Lyme (I had been on antibiotics and steroids for almost a month due to a mystery infection). He looked puzzled, asked my history, and then said I don't have to worry about it. Though he checked me for Lupus and Rheumatoid Arthritis.
In August my new doctor (I changed) did a neurological exam based on symptoms I described and told me to go get checked for Parkinson's.
I did research and found that while i had a few symptoms of Parkinson's, I more closely mirrored Multiple Sclerosis. However, I had a prompting to check out Lyme again, and search specifically for "untreated Lyme" and found that all the symptoms that prompted the tests for Lupus and Rheumatoid Arthritis, as well as the "possibility" of Parkinson's or Multiple Sclerosis fall perfectly under Lyme.
I want to make sure that I see a LLMD this time to either rule it out or actually listen to me.
Thank you!
Posts: 2 | From Allen, Texas | Registered: Oct 2014
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posted
I am also looking for a Lyme Literate Doctor in Texas. I have been sick for a year now. I have been tested for Lupus and MS with those being negative and inconclusive. My symptoms most closely fit with Bartonella which is often a coinfection with Lyme. I have been to many doctors and nobody has any answers and it seems that most of them don't believe me. I have had optic neuritis, swollen tonsils (so bad that they were removed), hair loss, intermittent back and hip pain, fevers, night sweats and burning skin sensations. Thank you for your attention and I look forward to communication.
Posts: 1 | From Houston | Registered: Oct 2014
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Welcome to Lymenet! PM sent to both of you for TX.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
They are far and few between, unfortunately. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
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I'll send info to each of you!
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