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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Need a LLMD for Neurologic Lyme in North Carolina

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Author Topic: Need a LLMD for Neurologic Lyme in North Carolina
HammockDweller
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Member # 45033

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I have been miserably sick for two months with fevers, tingling in my hands and feet and sometimes everywhere, exhaustion, achiness, and weird neurological symptoms like a droopy eyelid, sensitivity to noise, and more.

Last week a friend of mine asked if I'd had a tick bite and it flooded over me - I had! I found a tick just a couple of weeks before all this started and I found it after we'd stayed on a farm in an area where Lyme is endemic.

I got in to see my doctor today and when I told him about the tick, his mouth fell open. He said that would explain everything. He's pretty certain that I have neurologic Lyme disease.

This has been horrible. It is causing problems with my business and making me miserable. I'd like to find a doctor experienced in treating neurological Lyme to increase the chance of actually getting well.

Posts: 1 | From Eastern Seaboard | Registered: Dec 2014  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
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Welcome to Lymenet! PM sent for NC & FL.

Lyme disease can definitely cause neurological problems.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

They are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005
When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):
www.lyme-aware.org/north-carolina.html

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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