I am desperately trying to find out if I have Lyme Disease or some other auto-immune diseaseThe week of September 11th, I started experiencing vertigo. I went to an ENT Specialist who gave me an audiology test which said I had slight hearing loss in my left ear. I also am experiencing tinnitus in my left ear as well.
He prescribed Prednisone which I took for a week, but suddenly stopped it because of the way it was making me feel. I now know that I was supposed to taper off of it slowly which I did not do. I told the ENT Specialist this and suggested I get a steroid ear injection in my left ear which I did with no relief.
I also did an MRI and CT Scan which I was told came back normal. I am now scheduled for an ECOG(Electrocochleography), VNG, and ENG(Electronystagmography). I have also seen a Chiropractic Neurologist/Functional Neurologist who has said I have Dysautonomia/Autonomic Disregulation and Functional Disconnect Syndrome.He has a Treatment Plan for me which I am in the process of working with him on.
He has also mentioned that I have early signs of hypoglycemia, liver dysfunction, and thyroid dysfunction. I believe it because I am having pain on the right side of my stomach and it is getting hard to swallow and I feel structural changes and lumps in my throat/jaw area. I also feel tingling in my feet at times and believe I have Peripheral Neuropathy.
I have also lost a ton of weight.
I believe my body is completely breaking down on me and I may have an autoimmune disease.
So sorry you are going through this. You need to be evaluated and treated by a Lyme-literate doctor (LLMD).
Unfortunately, LLMDs are far and few between. You need to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
In order to do this, click on the pencil/paper icon, make your changes, then click "Edit Post".
Posts: 8982 | From Illinois | Registered: May 2006
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