LymeNet Flash: Minnesota Mpls/st paul area looking for llmd

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Minnesota Mpls/st paul area looking for llmd

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Author

Topic: Minnesota Mpls/st paul area looking for llmd

havelyme66
Junior Member
Member # 45253

posted

tested positive for lymes & 3 co-infedtions thru independent lab doing extensive blood test by both elisa & western blot - traditional medical primary clinc/infectious disease dept says my labs are wrong b/c their "traditional" blood tests show negative for lymes & that i don't have lymes - would only prescribe rx for doxycycline for 14 days - i'm in desparate need of llmd willing to treat me properly

Posts: 1 | From st paul mn | Registered: Jan 2015 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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A relative lives right next door to you so I just happen to have found this group for a friend of theirs.

The Minnesota Lyme Disease Association website does not seem to go through right now. Not sure why - it just goes to a GoDaddy page.

They are fantastic. I hope you can find them.

In the meantime, connection:

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/New.shtml

Minn. support

also look to

http://www.lymedisease.org/resources/support.html
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

Keebler
Honored Contributor (25K+ posts)
Member # 12673

posted

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They may have moved to Facebook. I don't "do" Facebook but can see that their public cover page is fairly current.

https://www.facebook.com/MinnesotaLyme

Minnesota Lyme Association is on Facebook.

https://www.facebook.com/BrainerdLakesAreaMinnesotaLymeAssociation

Brainerd Lakes Area Minnesota Lyme Association is on Facebook.

http://www.mprnews.org/story/2013/07/17/health/lyme-disease-treatment-debate

Lyme disease treatment debated as peak season commences - ST. PAUL, Minn. - 2013

Scroll down - past those who have no clue (and to avoid infectious disease doctors) - to see who really knows what they are talking about.
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Posts: 48021 | From Tree House | Registered: Jul 2007 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for MN.

Lyme disease is a clinical diagnosis - you can test negative for Lyme and still have it! The ELISA test is very unreliable.

Testing should be done through IGeneX Labs in Palo Alto, CA.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment! Stay away from Infectious Disease doctors!

They are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/2/15615?#000005

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MinnesotaLyme/info

Maybe they can help.

Some more resources for you (including Support Groups):
www.lyme-aware.org/minnesota.html
http://mnlyme.com

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/

Dr. H, the top LLMD, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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