posted
I am 29 mother of 7 young children and I looking for a LLMD in the north coast of or/Sw wa area. Portland- Seattle. We have spent Thousands of dollars on tests & MrI only to get no answers. My dad and 2 of my brothers have been diagnosed with lymes. So I am thinking I could have chronic lymes myself.
I can barely get out of bed most days because of joint pain/stiffness, chronic fatigue, major vision problems, liver disease (although I've never drank a glass of alcohol in my life), muscle spasm, facial twitches, migraine headaches, almost continual vertigo, sweats and chills.... I need to take my life back!!
I tried making an appt with dr N in wa but he isn't taking new patients.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome. I hope you find what you need here.
I'm so very sorry to tell you that there are no lyme literate MDs in Oregon. There is another kind of doctor, though, ND (naturopathic), see detail below.
IF this is a recent bite and you are lucky enough to have a current bulls eye rash, you might be able to get abbreviated treatment with a regular MD, but there is no guarantee and they would not have the fuller education required.
However, there are a couple LL NDs who are ILADS educated and there is an active lyme support group that meets once a month. Contact them for all options in your health care providers, testing, etc.
An ND is a naturopathic doctor. Not all know about lyme (or know enough) so be sure anyone you see is ILADS educated. There are at least 2-3 in Portland and few others around the state.
The Kaiser Papers – not by or from Kaiser Insurance but about how they deal with lyme inquiries
Also gives background regarding lack of lyme assessment / treatment in general, regardless of one’s insurance coverage.
OREGON SUPPORT GROUPS listed at BOTTOM OF PAGE
Other than to see one of the few Oregon ILADS educated LL ND, many in Oregon jump north to Washington state or head south to California to see a LL MD - or travel elsewhere.
WHY you need an ILADS "educated" or "minded" Lyme Literate doctor (whether MD or ND, or both) - starting with assessment / evaluation for lyme, OTHER tick-borne diseases, and other chronic stealth infections - and all that goes along for the ride.
Medical "models" explained here, as to differences in the ISDA & ILADS models of assessment & treatment - and exactly why it is so very important to know the differences. -
Posts: 48021 | From Tree House | Registered: Jul 2007
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posted
You might give her info on the Drs in WA, that is the list I sent.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96222 | From Texas | Registered: Feb 2001
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- I don't have doctors in WA. Just the support groups listed in the Kaiser Papers. Sorry.
I do have some names of 2 good LL NDs in Portland, though.
Marissasue, if you want those, I can PM them to you. The support groups are so much up to date than I am, though, for both Oregon and Washington.
If you Google, you may find a FaceBook page for a Eugene, OR support group. While a longer drive, they seem to have a strong presence and know things I likely do not. I don't "do" FaceBook, though.
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