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Seeking help in either VA which is where I travel home to on the holidays or the closest to AL which is where I live. Thank you!!
Posts: 2 | From auburn al | Registered: Feb 2015
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Welcome to Lymenet! PM sent for VA, MD & FL.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
None in AL. They are far and few between, unfortunately. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.
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Thank you so much! Quick question. Can you direct me to any articles regarding false negative results from Lyme testing? Thanks again!!
Posts: 2 | From auburn al | Registered: Feb 2015
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Here is some very good information written by poster 'Keebler':
"There are many false negatives (because it's missed so often) but if it "sees" a positive, it's because it's there. Can't have a positive if it's not there to "see".
Still, even the best test, with the best lab (IGeneX in Palo Alto, CA is the best lab for the kind of tests they run) . . . still, Lyme can be very difficult to test. Someone with Lyme may not register on a test.
Lyme is to be a clinical diagnosis. Yet, if there is a positive test, that, with symptoms, offers confirmation. And, because the CDC criteria is so misaligned, a person might have just one positive band and still be very ill with Lyme.
A person might have zero bands show at all . . . and still be very ill with Lyme. The test may show later, though. These are things that the LL doctors know all about.
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