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5 years of suffering, mis-diagnosis, surgery and treatments and still not much improvement. Fevers, low WBC, joint pain, irritability, fatigue, stomach issues, brain fog, etc. All the hours of research and praying point to Lyme. I've had multiple ticks each year for the past 10+ years, but all Lyme tests by 'regular' MD's come back negative. I am out of options with the conventional route. I would like to find an LLMD to get properly tested. Thank you!
Posts: 2 | From Milford, pa | Registered: May 2015
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
They are far and few between, unfortunately. You need to go where they are.
Also most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner to see a LLMD by doing this.
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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