LymeNet Flash: NEED LYMES DOCTOR IN MN

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » NEED LYMES DOCTOR IN MN

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Author

Topic: NEED LYMES DOCTOR IN MN

AshOg
Junior Member
Member # 46023

posted

I am having a very hard time finding any lymes doctors in MN. I've found a couple and they dont accept new patients. I'm having an awful time with pain. Do you know any lymes doctors in Minnesota? Thank you so much time for your help! I appreciate it!

Posts: 2 | From St. cloud, Minnesota | Registered: Jun 2015 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for MN.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

They are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in earlier by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MinnesotaLyme/info

Maybe they can help.

Some more resources for you:
www.lyme-aware.org/minnesota.html
http://mnlyme.com

http://www.lymenet.org/SupportGroups/UnitedStates/Minnesota/

Dr. H, the top LLMD, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Check the local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

Hangingonbyathread
Junior Member
Member # 46161

posted

Hello AshOg, I'm also in MN and wondering if you have had any success in finding a LLMD? I'm currently on a waiting list that is over 100 patients long to see Dr. F...would love to get in somewhere sooner!!

Thanks!

[ 07-02-2015, 05:25 PM: Message edited by: faithful777 ]

Posts: 3 | From United States | Registered: Jul 2015 | IP: Logged |

AshOg
Junior Member
Member # 46023

posted

I got in to Dr. B in MN. the wait could be a few months away but he does accept new patients. Hope u have good luck!! It's also very expensive ($500-fisrt time patient & 595 to send your blood to hvw a culture created). It will be worth it if he can help after culture comes back! Best of luck to you! I know how hard it can be and it honeetly sux at times!

[ 07-02-2015, 05:24 PM: Message edited by: faithful777 ]

Posts: 2 | From St. cloud, Minnesota | Registered: Jun 2015 | IP: Logged |

Hangingonbyathread
Junior Member
Member # 46161

posted

Thanks for your response, he is a Neurosurgeon? I've spent over $10,000 this past year (and that is WITH insurance) to try to figure out what is wrong with me. Totally presenting as MS, however no lesions to be found. I've even been seen at the Mayo and had the lymes test run thru a spinal tap-negative. So, not too hopeful that is what I have..but desperate to find answers!

Best wishes to you as well!

Posts: 3 | From United States | Registered: Jul 2015 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Hangingon ... Give up on Mayo and doctors who try to find Lyme through a spinal tap. That would be about a 20% chance of finding Lyme that way.

The catch is.. They DON'T WANT TO FIND LYME BECAUSE THEN THEY WOULD HAVE TO TREAT IT.

Only an LLMD will work when it comes to finding and treating Lyme.

Reliable Lyme info:

http://flash.lymenet.org/ubb/ultimatebb.php/topic/1/88555

[ 07-02-2015, 10:42 PM: Message edited by: Lymetoo ]

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001 | IP: Logged |

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