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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » MICHIGAN Dr needed

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Author Topic: MICHIGAN Dr needed
RNSomes74
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Helping my Mother look for a Dr in Michigan, preferably as northern Michigan as possible, who is Lyme familiar.

My Mother was bitten by a tick, now going on 4 years ago, and developed a bulls eye rash. At the time she believed that if symptoms didn't accompany the rash, she was fine. Since that time her health has progressively declined. She has had a Lyme test which resulted negative almost two years ago. I am looking for someone who is familiar with progressed Lyme's and possible false negatives.

Posts: 1 | From Michigan | Registered: Aug 2015  |  IP: Logged | Report this post to a Moderator
Lymetoo
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False negatives are VERY common. I'm very sorry she is now going downhill. I sent you some names and information about who to contact.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96222 | From Texas | Registered: Feb 2001  |  IP: Logged | Report this post to a Moderator
hopingandpraying
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Welcome to Lymenet! PM sent for MI.

The bull's-eye rash is definitive for Lyme.

Your dear Mom needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. She needs to go where they are.

Also, most LLMDs do not take insurance due to the politics surrounding this disease. Read poster TF's explanation about this:

"Why Lyme Doctors Don't Take Insurance"
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/MichiganLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):

www.lyme-aware.org/michigan.html
www.mlda.org [Contact Linda at (888) 784-5963]

http://www.lymenet.org/SupportGroups/UnitedStates/Michigan/

The top LLMD, Dr. H, has written a new book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due tot neurological problems from Lyme.

To do this, click on the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

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