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Help! 8 years undiagnosed Lyme; almost died 4 times; now 3 years into successful treatment - but out of money to travel from WY to Chicago area. Need LLMD right away, as compounding pharmacy shut down unexpectedly, and I will have no meds in 7 days!! Thyroid is the most time urgent.. as are sleeping meds. I'll consider alternate protocols if proven. I have babesia bartonelli also, and probably 2 other coinfections. I'm very disciplined and work HARD to stay alive, but must not travel 3500 miles every month any more - I must get a job at home to pay for treatments! Can't get insurance, so I'm a cash payer. Help!
Posts: 2 | From Northern Wyoming | Registered: Sep 2015
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posted
Welcome to Lymenet! PM sent for MT. I don't know of any in WY, NE or SD.
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
I was told doctors in CO do not treat aggressively enough, because CO is extremely tough on any doctor who does. The medical board is relentless on them. Posters on Lymenet from CO recommend going out-of-state to see a LLMD.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.
To do this, click on the pencil/paper icon, make your changes, then click "Edit Post". Thanks.
Posts: 8981 | From Illinois | Registered: May 2006
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