posted
Please refer me to a LLMD in the Portland Oregon area.
Posts: 1 | From United States | Registered: Feb 2016
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- Welcome (yet sorry for why you are here). Unfortunately, Oregon is one of the most lyme hostile states and there are no LLMDs "allowed" so to speak.
There are, however, several good LL NDs (naturopathic physicians) who are ILADS educated.
Many in Oregon go out of state for LLMD &/or see a LL ND here. In Oregon, NDs can prescribe Rx, so that is one advantage. Another excellent advantage is that lyme requires major support and NDs are excellent in that regard.
But do not go to just any ND, they must be lyme literate and ILADS educated.
You should first connect with the state lyme support group and then with the Portland one. Hope detail below helps. Good luck. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
Oregon Lyme Disease Network & local group listings
This group has been working very hard to help expand awareness and, hopefully thereby, improve access to treatment - but there is strong resistence. Be sure to read over the links so you understand fully the stance against lyme that the Oregon Medical board takes - so that you can know how best to find the help you need.
Connect with them for guidance in doctor selection.
The Kaiser Papers – not by or from Kaiser Insurance but about how they deal with lyme inquiries. Also gives background regarding lack of lyme assessment / treatment in general, regardless of one’s insurance coverage.
LymeDisease.org - an excellent educational organization -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- The leader of the Portland lyme support group just sent out an email explaining that he is not able to reply to inquiries in a swift manner right now due to his health challenges.
His email includes this, and I thought it might be good to share with you:
The following are a couple of things you can do:
Facebook - If you are on Facebook I would encourage you to join the "Oregon Lyme Disease Network" group if you are not already a member.
[He writes that] Recently I have not been very good at forwarding email to you from OLDN and this will allow you to stay up to date with Lyme in Oregon, and help out on Lyme legislation and other areas when needed. Here is a link to that group:
Support - When referring others to me for support let them know that I may not be able to respond right away, and it may take more than one try.
If you are able to provide support yourselves that would be great.
If you do not feel qualified I'm sure some of the other Lyme support leaders in the state would not mind helping. You can find information for the support groups in the state at the following link:
Portland Lyme Support Group - Remember for planning purposes and for sharing with others, the group meets on the second Sunday of the month from 1-3 pm in the second floor conference room at Legacy Good Samaritan Hospital, 1040 NW 22nd Ave. in Portland.
In May we will be meeting on the first Sunday.
. . . I especially want to thank Barbara who has stepped in and led the meetings when she has been able. . . .
. . . Please do not feel that you can't or shouldn't email me. The purpose of this email is to help you understand what is going on if you do not get a response, to better allow you to keep informed and help with what is going on statewide with the Lyme Disease Network . . . .
[end email from David, Portland group leader] -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. You need to go where they are.
Most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
- David,
Can't tell if you've come back to check replies or not. Hope so.
A good place to connect and learn about various aspects of treatment & options for doctors, etc.
Portland, Oregon Lyme Support Group meeting
Sunday, February 14, 2016
Topic: Sharing, learning, and encouragement
Time: 1:00-2:50 pm
Location: Legacy Good Samaritan Hospital, 1040 NW 22nd Ave, Portland, Second Floor Conference Room
The building is across the street from the Hospital's main entrance. There is a parking garage behind this building where you can park and a doorway in the garage on the first level that connects to the building.
They will be meeting in the second floor conference room. There is an elevator if you can not take stairs and signs will posted. Remember to get a parking pass at the meeting.
Parking Change:
Good Samaritan Hospital has added gates to their parking structures. You will need to pick up a parking validation pass at the meeting which you will need when leaving the parking structure.
Fragrance Free:
As a reminder, please refrain from using scented soaps and dryer sheets or from wearing scented perfumes, colognes, lotions etc. the day of the meeting.
Many individuals with Lyme also deal with chemical sensitivities. Unfortunately we have had some that have left the meeting due to the impact that fragrances have caused. -
Posts: 48021 | From Tree House | Registered: Jul 2007
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic