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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » SEEKING LLMD IN RALEIGH AREA

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Author Topic: SEEKING LLMD IN RALEIGH AREA
JNNC
Junior Member
Member # 47450

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HI. I AM LOOKING FOR A LLMD IN THE RALEIGH AREA FOR MY 6 YEAR OLD BOY.

For the past 3.5 years he has:

- lower muscles tone
-needs vision therapy

-aches from area from his ankle to top of thighs ache at night and during the day when climbing stairs or riding bike

-wakes up during the night
-Has a hard time focusing/concentrating

-headaches on and off (not constant)

Our Dr. did a labcorp test and IiG 41 came back "present. People have mentioned that he could still have Lyme.


THANK YOU!

[ 02-03-2016, 08:03 PM: Message edited by: JNNC ]

Posts: 1 | From Apex, NC | Registered: Feb 2016  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for NC & VA.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

Unfortunately, LLMDs are far and few between. He needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When you call for an appointment, ask if there are any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NorthCarolinaLyme/info

Maybe they can help you.

Some more resources for you (including Support Groups):
www.lyme-aware.org/north-carolina.html

http://www.lymenet.org/SupportGroups/UnitedStates/NorthCarolina/

Here are some links for you to read about Lyme Disease and children:

https://www.lymedisease.org/lyme-basics/lyme-disease/children/

https://sites.google.com/site/marylandlyme/children

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Also read "Cure Unknown" by Pamela Weintraub. Check your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme.

To do this, click the pencil/paper icon, make your changes, then click "Edit Post". Thanks.

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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