LymeNet Flash: Seeking LLMD in TX!

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD in TX!

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Topic: Seeking LLMD in TX!

ggrose
Junior Member
Member # 35978

posted

My 22 yr old son most likely contracted Bartonella in October 2015 at college in CT.

He is getting sicker every day.

He has the classic rash which is spreading.

He was sick for two years in high school and his first year of college with Lyme, Babesia, etc., when we lived in CT.

He was cured after seeing a Lyme-literate doctor for 6 months on his 3rd go round with treatment then.

We moved to Dallas, TX 1.5 years ago and I know there are fewer Lyme doctors here.

I am having trouble finding one who is available.

Please, if anyone has any suggestions of doctors in the Dallas/Fort Worth Area who are Lyme-Literate I would be very grateful!

He has two insurances right now, Aetna and Blue Cross, but I know most of the good doctors are out-of-network.

The speed of getting an appointment and and their knowledge of tick-borne illnesses are the most important factors.

Thanks for any suggestions!

Posts: 2 | From Ridgefield | Registered: Jan 2012 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for TX & MD.

Your dear son needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. He needs to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

I don't know if you are able to travel, but please read the following about LLMDs and Texas which was recently posted about TX:

"Texas is not a great place to find a good Lyme doctor. Texas threatens its Lyme doctors and gets them to move or stop practicing without notice.

Then, if they start up again a year or so later, they do it to them again. So, there really are few Lyme doctors there and no top notch ones.

Because of the sorry state of affairs in Texas, many folks from Texas are coming to the D.C. area for testing and treatment for Lyme disease and it's co-infections.

Everyone is very happy with him and he follows the Burrascano protocol. Burrascano was the Lyme Disease pioneer and the #1 Lyme doctor in the world before he retired a few years ago. Patients came from every country to be treated by him.

The doc I recommend can see you in a few days and I don't think you would regret it. After the first in person visit, you can do telephone or Skype appointments with him monthly. So, there would be little travel involved, only a few times per year.

At least half of all Lyme patients travel out of state for their care. The doc is the key to the diagnosis and for getting rid of this horrendous disease. I can't emphasize that enough-the doc is the key.

This is what I wrote to another Texan in Sept. Look at the following thread to see all of our discussion:

http://flash.lymenet.org/scripts/ultimatebb.cgi/topic/1/132642?#000018

Read what other Texans wrote in this thread about trying to get proper care in Texas.

I certainly would pursue seeing a good Lyme doctor. A number of folks from Texas are seeing the doctor I am recommending."

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/TexasLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/texas.html
www.txlda.org

http://www.lymenet.org/SupportGroups/UnitedStates/Texas/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8981 | From Illinois | Registered: May 2006 | IP: Logged |

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