LymeNet Flash: Doctor needed in NYC

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»	LymeNet Flash » Questions and Discussion » Seeking a Doctor » Doctor needed in NYC

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Author

Topic: Doctor needed in NYC

sickinnyc
Junior Member
Member # 47461

posted

Hi there,

Hoping to get a referral to a LLMD doctor in NYC.

I want to share my background in case anyone has some thoughts are similar experience and symptoms.

I got sick around summer of 2013, started with general symptoms of constipation, weight gain, and fatigue. Was told it was nothing and to maybe try some laxatives and go for walks and drink coffee.

Another doctor said I'm hypothyroid and started on armour BUT 3 other doctors said they would have never given me this diagnosis.

I guess that could make sense seen the symptoms got worse and have about an additiona; 50 symptons of which all where listed on dr. h's lymes check list.

The only thing that was found so far was a positive ANA with high titer and mycoplasma.

My current doctor does not think its lymes but ordered the test.

Why I'm looking for a LLMD is to figure out once and for all if its lymes and co, and also order the right blood test.

If anyone has any comments to my situation please let me know. Again, any referral in nyc would help. I might see dr. h.

Thank you,
sickinnyc :confused

............................................

(editing out doctor's name per Lymenet rules - see Terms and Conditions below, #5 rule - also breaking up your text for easier reading for many here)

[ 02-07-2016, 04:16 PM: Message edited by: Robin123 ]

Posts: 4 | From United States | Registered: Feb 2016 | IP: Logged |

sickinnyc
Junior Member
Member # 47461

posted

excuse the typos, I'm currently not feeling well and bedridden

Posts: 4 | From United States | Registered: Feb 2016 | IP: Logged |

hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

posted

Welcome to Lymenet! PM sent for CT.

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewYorkLyme/info

Maybe they can help.

Some more resources for you (including Support Groups info):
www.lyme-aware.org/new-york.html
www.empirestatelymediseaseassociation.org

http://www.lymenet.org/SupportGroups/UnitedStates/NewYork/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on www.hulu.com

Posts: 8982 | From Illinois | Registered: May 2006 | IP: Logged |

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