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My friend is currently out of money and critically ill, we fear how long she will be able to hold on. She has been to several hospitals in the area and they just give short term meds for all the co-infections and run x-rays and such and discharge her. The last hospital sent a social worker in to tell her Lyme disease is not real. Please help us find her a doctor that can help
-------------------- shell Posts: 1 | From Boston | Registered: Feb 2016
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God bless you for being such a wonderful friend and trying to help her. She needs to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
Unfortunately, LLMDs are far and few between. Your friend needs to go where they are.
Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
Scroll down for financial help, etc., available from several sources.
Also call them to ask if they can recommend anyone for your friend.
The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need. I think coverage is up to 75%. View on www.lymetap.com
Btw - please break up your posts into 2-3 sentence paragraphs, as there are people on Lymenet who cannot read large blocks of text due to neurological problems from Lyme. Thanks.
Posts: 8978 | From Illinois | Registered: May 2006
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