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I was bitten 3 years ago and had a rash but was told I was fine.
After 3 years of constant "stomach bugs" or "bacterial infections", migraines, fatigue, chronic sinusitis, light sensitivity (etc...)
Recently my headaches had gotten so bad I couldn't function and started getting nose bleeds, my eyes were red and swollen had constant shortness of breathe this finally got my Dr. To run a full work up of tests since she couldn't figure out what could be causing such a widespread array of symptoms.
A week later(saturday)they called and said "your lyme numbers are a bit off so I called in a prescription of doxy for you to start right away". End of conversation.
No explanation of what I have or what to expect with the treatment. No mention of herxing or supplements or dietary changes or detoxing (still to this day).
I woke up the following Monday and was in so much pain I could not walk. My symptoms have grown 50x since then.
In the multiple follow ups since then I have been put on alprazolam, naproxen and notriptaline. And sent to a neurologist.
The neurologist does not believe I have lyme and makes it very clear that she doesn't believe in chronic lyme.
My primary Dr. Is now backtracking on her diagnoses since I have been on doxycycline for a month and not gotten better. Saying my numbers were very low so I didn't necessarily test positive. Even though I have the symptoms to back it up.
I have had blood draw more times then I can remember at this point, a Cat scan, MRI, and MRA.
I am scheduled for an EMG tomorrow and they now want me to schedule a spinal tap.
I would really like to get in contact with an LLMD before wasting more time, energy and money on dr's that aren't going to treat correctly.
Posts: 1 | From MA | Registered: May 2016
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You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!
A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.
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