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» LymeNet Flash » Questions and Discussion » Seeking a Doctor » Seeking LLMD info for Northern NJ/NY area

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Author Topic: Seeking LLMD info for Northern NJ/NY area
raynareg
Junior Member
Member # 48164

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Good Morning,

I'm seeking a LLMD in the Northern NJ/Westchester NY/NYC or even PA area. I live in Lake Hopatcong NJ and willing to travel for a good referral. Being treated by infectious disease doctor for over a year now, and neurologist, etc. and it's not helping. Thanks in advance for any info!

Posts: 1 | From Lake Hopatcong, NJ | Registered: Jun 2016  |  IP: Logged | Report this post to a Moderator
Tincup
Honored Contributor (10K+ posts)
Member # 5829

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Sorry you are having such a rough time.

www.MarylandLyme.org has a doctor referral page that covers all states. You can find it listed in the left hand menu. Good luck! Feel better soon!

--------------------
www.TreatTheBite.com
www.DrJonesKids.org
www.MarylandLyme.org
www.LymeDoc.org

Posts: 20353 | From The Moon | Registered: Jun 2004  |  IP: Logged | Report this post to a Moderator
TF
Frequent Contributor (5K+ posts)
Member # 14183

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I don't recommend any of the lyme specialists in the areas you named. If you are willing to travel to the Washington, D.C. area, let me know. The doc I recommend will do telephone appointments so you would only have to travel to the D.C. area once every 3 months.

Welcome to Lymenet! We will help you as much as we can.

Posts: 9931 | From Maryland | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
hopingandpraying
Frequent Contributor (5K+ posts)
Member # 9256

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Welcome to Lymenet! PM sent for MD.

Stay away from Infectious Disease doctors. They think one dose of antibiotics is enough to treat Lyme and that chronic Lyme doesn't exist.

Read about the controversy regarding Lyme Disease and its treatment:

http://www.clinicaladvisor.com/features/controversy-continues-to-fuel-the-lyme-war/article/117160/

You need to be evaluated and treated by a Lyme-literate doctor (LLMD). Non LLMDs have no clue about this horrible disease or its complex treatment!

A LLMD is one who has treated Lyme disease and the co-infections which come with it for many years and has gotten patients well. A good one will follow Dr. B's Guidelines, the "gold standard" for Lyme treatment.

Here is a link for them:

http://www.lymenet.org/BurrGuide200810.pdf

LLMDs are far and few between, unfortunately. You need to go where they are.

Also, most LLMDs do not accept insurance due to the politics surrounding this horrible disease. Read poster TF's explanation, "Why Lyme Doctors Don't Take Insurance":
http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=025539;p=0

When calling for an appointment, ask if they have any cancellations or a waiting list. Patients have been able to get in sooner by doing this.

Check the online state Lyme groups at:
https://groups.yahoo.com/neo/groups/NewJerseyLyme/info

Maybe they can help.

Some more resources (including Support Groups info):
http://whatislyme.com/websites-and-support-groups-by-state/

http://www.lymenet.org/SupportGroups/UnitedStates/NewJersey/

The top LLMD, Dr. H, has written a book entitled, "Why Can't I Get Better?". It is an excellent source of information.

Read "Cure Unknown" by Pamela Weintraub. Get it at your local library or buy it used on Amazon.

View "Under Our Skin" for free on https://www.viewster.com/movie/1193-15367-000/under-our-skin/

Btw - I know you are new to Lymenet, but you should not write the name of your town, because this is a public forum with all sorts of people on it. Read this link about it:

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=2;t=011844;p=0

To remove it, go to "My Profile" in the top middle section of the Lymenet page under Lymenet Flash, then click "Edit Profile" on the left-hand side.

Scroll down to "Profile Fields" then down to "Location". Make your changes, then click "Update Profile".

I would also remove the name of your town from your post. To do this, click the pencil/paper icon, make your changes, then click "Edit Post.

I don't know if you are using your real name as your username on Lymenet, but I would not use it here for the same reasons listed above. You would have to contact one of the moderators in order to change it.

Posts: 8981 | From Illinois | Registered: May 2006  |  IP: Logged | Report this post to a Moderator
   

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